MelanieLipham222 retweeted
#FridayFeels: We take snacks seriously at Hope, as a small but very human way to help folks feel good while they’re here. Thus, we have many pictures of HBRF’s clinical team serving snacks with smiles, in between their myriad of other tasks. But like there can never be too many snacks, too many smiles, or too much hope… here’s one more photo. Enjoy, and have a wonderful #weekend!
-Gratefully, the team at HBRF.
#patientsfirst #fridaymorning #FridayVibes #nurse #nurselife #nurseappreciation #Science #research #snacks #macros #Health #nutrition
MelanieLipham222 retweeted
I see this all the time...
Breakthrough COVID-19 Vaccine Injury Study Links mRNA Vaccines to Triggering Autoimmune Diseases trialsitenews.com/a/breakthr…
#EBVcausesMS Do you remember when you had EBV/mono/herpes & how long was it before onset of your MS? @societywithms @GavinGiovannoni @artalexakis @1capplegate @MathewEmbry @AaronBosterMD @Brandon_Beaber instagram.com/reel/Cn75Tk1Dv…
Unbelievable! We’ve been holding our breaths for a cure too! lol Maybe that’ll get us some attention?!🙄🤦🏼♀️ People are suffering & we’re worried about how marine mammals can hold their breath. I mean, I LOVE animals, but dang.🤷🏼♀️I want my legs & basic functions back.@SocietyWithMS
MelanieLipham222 retweeted
We are tracking all trials that for #MScure and repair in our database. See column EBVRx for those targeting EBV. Click the link to join our research study group where we discuss this.
societywithms.org/research-d…
MelanieLipham222 retweeted
Here is the link to this presentation discussing EBV as a cause of MS from the European Charcot Foundation
buff.ly/3bEWYQb
MelanieLipham222 retweeted
"This data is consistent with an ongoing anti-EBV immune reaction in MS and strongly suggests EBV latent-lytic cycling is a driving MS disease activity."
-@GavinGiovannoni
#MultipleSclerosis #EBVcausesMS #MS #BrainHealth
#WomensBrainHealth #EBV
gavingiovannoni.substack.com…
Nice job Atlanta police! Forget about folks with MS or anyone else whose disabled. You’ve got more important things to do. Wonder why crime@is like it is? When the police don’t even care about the citizens, why should anyone else? I hope everyone shares this!
MelanieLipham222 retweeted
@jsakermar711 We hear you! Thank you for supporting our efforts. @SocietyWithMS is tracking all the FDA trials that can #CureMS and repair damage to the CNS. Also repurposed drugs can be prescribed now. See Antivirals For MS profile in our database
societywithms.org/research-d…
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MelanieLipham222 retweeted
The MS community has been supporting PwALS in their valiant efforts to secure early access to therapies in trials. Congratulations on securing funding to pay for Expanded Access fees to get #DrugsInBodies!
And thank you to so many of the ALS Champions & members of the Appropriations committee for making this possible.
@RepMikeQuigley @SenatorDurbin @lisamurkowski @ChrisCoons @SenatorBraun @RepKayGranger @SenatorLeahy @SenShelb
This is a wonderful opportunity and experience to get your stem cells that help repair the damage MS has/is doing. Go get you some!!! Oh! And the staff at Hope Biosciences is amazing! Love them dearly! ☺️🧡🧡🧡🧡
Did you know? In less than an hour we administer 200 million stem cells that go on to repair the body in ways that we never thought possible. Recruiting for our Parkinson's Disease, MS, & Long COVID clinical trials, link in bio. #RegenerativeMedicine #ClinicalResearch #FridayFact
Hear the cries?? @US_FDA @FDA_Drug_Info I read things like this every day. You should have to, as well. We need early access to drugs and treatments without delay. @SocietyWithMS societywithms.org
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I want people to hear and read the cries of people with MS. We need drugs and treatments without delay.
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MelanieLipham222 retweeted
@MLipham222 is the President of @SocietyWithMS.
This is our mission!
Although I believe HSCT works for some w/MS, that title is WILDLY misleading. HSCT IS NOT A CURE FOR MS. That’s why @SocietyWithMS is a patient led movement that tracks over 100 clinical trials for a cure &/or nerve remyelination. We want something that works for everyone w/MS.🧡
MelanieLipham222 retweeted
The world and we spinal cord complete injury are waiting for a successful human clinical trials please make us walk again @TelAvivUni ,@NervgenP ,@neuralink ,@NatureNeuro ,@BlackrockNeuro_ ,@synchroninc ,@US_FDA ,@ChinaScience ,@newscientist
MelanieLipham222 retweeted
"...while there is no “holiday break” from a chronic condition, we can sometimes put our care on the backburner which can lead to stress and an unwanted spike in symptoms." Read more about Balancing Health and the Holidays in our blog post at link below! nervgen.com/balancing-health…
MelanieLipham222 retweeted
My Neurologist $23.000 billed to insurance for a 20 min visit to check my reflex’s and offer me Drugs
Copaxone $33.000 for a six week supply billed to insurance
Gabapentin, $1,300 a year
Provigal $1.500 a month
An MS patient cured of this disease $0
MelanieLipham222 retweeted
iamals.org/action/sign-the-p… We only have a few hours left. There are about 30000 Americans with Als and that is our goal with 30000 names. Please help save our lives. Love you all.