Chiltern branch of the Motor Neurone Disease Association. Supporting people living with MND locally
Buckinghamshire
Joined July 2012
- Tweets956
- Following358
- Followers825
- Likes412
MNDAChiltern retweeted
Huge thank you to all of our MND Connect Helpline volunteers for the incredible support they offer those living with and affected by #MND.
Contact our helpline via:
π 0808 802 6262
π§ [email protected]
We're proud members of @HelplinesUK
#HelplinesAwarenessDay24
MNDAChiltern retweeted
You can make a huge difference to the MND community. Find out more below π
We're 86 away from our target of 800 letters to MPs.
Urge your MP to become a member of the #MND group in Parliament and attend the next meeting in March.
It is vital people with #MND continue to have a voice in Parliament.
Write today π
ecampaigns.mndassociation.orβ¦
ALT Help ensure people with MND continue to have a voice in Parliament! MND Association logo.
MNDAChiltern retweeted
Are you interested in sharing your experience of MND to help identify which research should be prioritised? If so, @Lifearc1 would like to hear from you.
Together with @MNDScotland & @MNDoddie5, we're excited to support LifeArc's MND Insights Group!
MNDAChiltern retweeted
Support care grants can make a huge difference, offering essentials like:
β’ Riser recliner armchair
β’ Adaptations to property
β’ Stairlifts
β’ Washer dryer toilet
β’ Respite care costs
"I'm now able to sit in the living room with my family, not stay in bed all day" π¨βπ©βπ§βπ§
MNDAChiltern retweeted
Weβve launched our latest campaigning action for the new #SupportMNDCarers campaignβοΈ
We need you to write to your MP, urging them to back our call for a government review of carer's assessments.
Take a minute and email them today π
ecampaigns.mndassociation.orβ¦
ALT Text reads: Take a minute and email your MP today!
MNDAChiltern retweeted
Iβve released a book about my Dads battle with the disease. He was 11 months from diagnosis to death. All profits are being split between @mndassoc & @MNDoddie5 DM me to buy one #MND
MNDAChiltern retweeted
What a moment. @Rob7Burrow and his family are truly incredible and I donβt think itβs possible for me to love Sir Kevin Sinfield anymore than I currently do
BBC Sports Personality of the Year 2022 | Watch live on the BBC
MNDAChiltern retweeted
Today Chair of the APPG on MND @ALewerMBE raised the challenges unpaid MND carers face around accessing respite services.
Good to hear @Helen_Whately commit to reviewing specialist training for MND for the social care workforce in upcoming social care reforms.
MNDAChiltern retweeted
Best of luck to supporters Kate and Dan who will be taking on the epic Three Peaks Challenge on the 5-6 Aug to raise money for the association in honour of Kate's Dad Chris who has the disease. You can show your support by donating here justgiving.com/fundraising/kβ¦
MNDAChiltern retweeted
It's #GlobalMNDAwarenessDay - a day to raise awareness of motor neurone disease around the world.
β’ 6 people will be diagnosed today
β’ 6 people will die today
β’ It has NO cure
Please retweet our graphic highlighting the key facts. More people need to know π thank you! #MND
MNDAChiltern retweeted
We're delighted to announce and be part of a new MND Collaborative Partnership that has committed Β£4.25 million to MND research.
This investment seeks to make MND treatable within years, not decades.
#GlobalMNDAwarenessDay #DrivingMNDResearch
MNDAChiltern retweeted
Today I have started my Campaign to become a Trustee for the MND Association! Please read my post on Facebook - Ian Lev featuring my new poem βTime With MNDβ Please vote for me when the Ballot opens from the 30th May - cheers! Keep Strong πͺ Keep Positive!π
MNDAChiltern retweeted
Newly diagnosed with #MND? It's obviously a hugely difficult time for you and your family. If you are looking for support please join this friendly online group - next meeting April 22. @1stchatter @sarahjebson @MNDsouthlondon @MNDwestsussex @westsurreymnda
MNDAChiltern retweeted
Who likes a nice gin? π
Well now you can enjoy one knowing you've contributed to the fight against MND thanks to Paul Jameson's @50MillionGin.
Paul, who has #MND, created the gin to celebrate #United2EndMND. Β£8 of every bottle sold, will be donated to the Association!
MNDAChiltern retweeted
Nominations to become an MND Association Trustee are now open.
Our Trustees are a group of volunteers who take overall responsibility and act collectively to govern the organisation, ensuring our long-term aims are met.
Closing date ποΈ ππ ππ©π«π’π₯ ππππ. Click below.
MNDAChiltern retweeted
MND Matters Episode 13
πππ ππ‘π’π§π€ πππ§π€ ππ§π πππ¨π«π²ππ¨π¨π€
Learn more about how technology can help those with #MND and hear from Mike and Diana, both living with the disease, who have used the new #IWillAlwaysBeMe voice banking book.
Click below to listen now!
MNDAChiltern retweeted
Fancy your chance of winning:
β’ A coffee with Eddie Redmayne OBE
β’ Tickets to the sell-out Cabaret show
β’ Overnight stay at the Corinthia Hotel, London
Help us raise money for the MND Association π€ click below to enter our prize draw closing a week today!
MNDAChiltern retweeted
Hold us to our five promises...
π€ mndassociation.org/mndpromisβ¦
#MNDPromises
MNDAChiltern retweeted
This is a brilliant project which I have been honoured to be part of, well done to the team who had the creativity and innovation to make this happen !! @mndassoc
βVoice is a huge part of our identityβ
New software is helping those living with motor neurone disease to preserve their voices.
Richard Cave from the MND Association explains to #BBCBreakfast how this technology is changing lives ‡οΈ
MNDAChiltern retweeted
Want to get involved in an event where you're in control?
Why not try your own virtual event! Whether itβs a 10km run or a 20km Cycle, sign up now - because people with MND have no time to wait π mndassociation.org/takeover-β¦.
#TakeOverMND
