MND Nottinghamshire Branch

We’re helping gather views from people with MND/ALS and their carers across Europe to improve care and support. Your experiences will help shape a new care pathway and highlight what really matters. The survey is anonymous, easy to complete, and available in many languages—please take part or share with others: 🔗ec.europa.eu/eusurvey/runner…

Our research shows that average wait times for genetic testing for people with MND have dropped from 18 months to around three months. The decrease follows more than a year of engagement by Association teams with NHS England, raising concerns about the impact delays in genetic testing have on people with MND. Read more. 🔗 mndassociation.org/media/lat…

On Sunday, Joff, who has MND, appeared on BBC Spotlight to share why he’s determined to fundraise for the Motor Neurone Disease Association during one of his many cold plunge fundraisers! Joff has raised over £50,000 since his diagnosis in October. Watch his feature now! ⬇️ 🔗justgiving.com/page/jon-mach…

Charity places available for Manchester Marathon 2025 📢 Be part of #TeamMND and conquer 26.2 miles in one of the UK's flattest and fastest major marathons! Whether you're chasing a personal best or soaking up the atmosphere, this race is unforgettable.

Shoutout to the incredible #TeamMND who have dived into #Swim6kinMay! Your dedication has already raised a staggering £100k for the MND community. Let's keep making waves 🏊

#TeamMND know how important Luke has been in raising awareness for the Association and the MND community. Now, he is giving you the chance to win a signed shirt to raise vital funds. We 💙 @LukeTheNuke180!

Introducing @StandAgainstMND and @mndresearch PhD student, @Hannah_Bailey00! The project Hannah is working on investigates if blocking a naturally occurring biomolecule will help to protect motor neurones. You can read the full story below 🧬