@bstensland.bsky.social retweeted
Sir Chris Hoy says he has terminal cancer and his wife Sarra has an aggressive form of MS
Yet he remains positive and still feels ‘lucky’
Can only admire the resilience and attitude of some people
Sir Chris Hoy, the six-time Olympic gold medallist, announced in February that he has cancer. Now, he reveals publicly that his illness is incurable. He tells us how he is determined to find hope and happiness on the home straight thetimes.com/magazines/the-s…
@bstensland.bsky.social retweeted
Paris Olympics open today!
Even more special as twins @Laviai & @LinaFJNielsen are among Team GB's best Olympic gold medal hopes. Both have MS.
They are running the 4x400m relay. Laviai is also going for gold in the 400m & Lina in the 400m hurdles.
olympics.com/en/news/laviai-…
@bstensland.bsky.social retweeted
Ocrevus jab approved in England!
People with MS on Ocrevus/ocrelizumab can now have a 10 min injection vs current 4/5 hr hospital infusion.
The injection is just as effective as the infusion, trials have shown.
Over 9,000 ppl in England are on Ocrevus.
theguardian.com/society/arti…
@bstensland.bsky.social retweeted
It has come to my attention that in Norway “up and not crying” is a fairly common response to “how are you” and I demand the rest of us adopt this immediately
@bstensland.bsky.social retweeted
ALT If you say chronic illness into a mirror 3 times, someone will appear behind you and tell you to just try yoga.
@bstensland.bsky.social retweeted
In case u couldn't read it before:
Why I set up the RH Prize for Women's Research
You don't have to be a man to win an MS research award, but it sure helps...
% of women scientists awarded:
Charcot Award - 5%
John Dystel Prize - 10%
Barancik Prize - 20%
multiple-sclerosis-research.…
@bstensland.bsky.social retweeted
“If disabled people were represented in politics according to their proportion of the UK population, there would be about 136 disabled MPs. There were, in fact, just five in 2021.” @Lucy_Webster_
theguardian.com/commentisfre…
@bstensland.bsky.social retweeted
I spoke with @WalesOnline about #multiplesclerosis #thisisms and the health service in 🏴 and beyond too. Hopefully raising awareness on chronic illness needs during a key time @mscymru @mssocietyuk walesonline.co.uk/news/healt…
@bstensland.bsky.social retweeted
Broke: prince of Wales in a boring velvet suit at the BAFTAs
Woke: Norwegian salmon billionaire as a decaying garden statue in a fable about destruction and cyclicality
@bstensland.bsky.social retweeted
We share the sad news that our founder, boob chief, colleague, friend and queen of glittering turds, Kris, has died. Kris approached life in a creative, fun and fearless way, showing us that it is possible to live life to the full with cancer. Statement at coppafeel.org
@bstensland.bsky.social retweeted
It’s Multiple Sclerosis Awareness Week.
Sending love to everyone affected by this condition.
#MultipleSclerosis #MSAwarenessWeek
@bstensland.bsky.social retweeted
Worrying plans surrounding Personal Independence Payment (PIP) have been announced today.
Charlotte Gill, Head of Campaigns and Public Affairs, at the MS Society, says: “The PIP process has meant over a decade of stress, indignity and humiliation for many people with MS. (1/5)
@bstensland.bsky.social retweeted
There is no such thing as “a sick note culture.” There is a record high NHS waiting list, crippling housing costs, widespread food poverty, stagnant wages and inadequate benefit rates, a broken social care system, dire mental health services, and closed Sure Start centres.
@bstensland.bsky.social retweeted
Thank you @bbc5live we have already received donations and followers. Each donation will be acknowledged with a personal thank you email - something I have done since the charity started.
The big difference with our charity is that we self-fund. This means that 100% of your donation goes to research at King's College Hospital, London. We have no salaries, no overheads, no advertising, no merchandise. We have no quirky gimmicks to draw you in, just the story of a wonderful and incredibly brave young woman. We pay our own expenses, including PayPal and PO Box fees. If you want to donate to a charity, please think of us. Charlotte, you will never be another brain tumour statistic, you will change things. My daughter Charlotte 18.2.1997 - 24.2.2016 RIP
charlottesbag.com/
@bstensland.bsky.social retweeted
Could u help ur mother - who had severe MS - end her life on her own terms?
A hugely moving essay by M @AnnieBrooker_ who at 26 cared for her mother, held her as she shuddered with severe pain & watched her die.
Pub by @FitzcarraldoEds
theguardian.com/books/2024/f…
