Joined November 2016
Martha’s Rule aims to protect patient safety, but focusing on the obligations of the health system— not the "rights" of patients—will best serve this goal. From our new paper - Getting rights right: implementing ‘Martha’s Rule’ jme.bmj.com/content/early/20… @Ethox_Centre
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Not only does calling something ‘trusted’ not make it so, calling something ‘trusted’ does not make it trustworthy. TREs are (still) not about trust - Our reply to critics jme.bmj.com/content/early/20… @mark_sheehan_ox @rjmilne @Paige_Fitzs
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Why should we trust institutions with our genomic data? New commentary in CMAJ: Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent cmaj.ca/content/194/44/E1511 #Genomics #bioethics #dataethics
A state-of-the-art vault makes a (data)bank more secure, but not more trustworthy. Read why in 'Trust and the Goldacre Review: why trusted research environments are not about trust', with @mark_sheehan_ox, @rjmilne, and @Fitz_Paige jme.bmj.com/content/early/20… #bioethics #dataethics
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