Chronic illness advocate, researcher, content creator, and educator. #MS #HSD #dysautonomia. Interests: #disabilityrights #ableism #microbiome
South East, England
Joined May 2011
- Tweets938
- Following544
- Followers550
- Likes1.1K
Pinned Tweet
We've finished the analysis! The @mssocietyuk Hampshire MS Survey results are in! How do the local #msservices in your part of #Hampshire compare to other areas? What is the impact of having or not having an #msnurse on your care? Find out 👉 manylemons.com/writing/the-r… @BartsMSBlog
Follow these two PhD scientists as they test out #me/CFS theories on themselves while collecting loads of data- vagal stimulation, #ketosis #antibiotics #probiotics #prebiotics
OMG. My dream! - two scientists with #ME/CFS, #hypermobilityspectrumdisorder, taking their theory (a theory I've had for a few years eek!) and running experiments to gather hard data! First step: calm your system by improving vagal tone #healingyournervoussystem #vagusnerve
The first step in trying to manage/treat #MECFS and #LongCovid is often overlooked. If you react to EVERYTHING now and cannot tolerate even basic interventions w/out an allergic /mcas reaction - this video is for you. @remissionbiome
Dr Melanie Hopper retweeted
It costs £581 a month more to be disabled in the U.K. (@scope) and it can sometimes be difficult for non disableds to wrap their head around that… so here are some examples last month of the #DisabilityTax I’ve had. #NEISvoid #DisabilityTwitter
"Everything can be taken from a man except one thing - the last of the freedoms - to choose one's attitude to any given circumstance, to choose one's own way" - Victor Frankel instagram.com/p/Ck5mZFaKlv7/…
THANK YOU @Emmabarnett!!! I was so so hoping that your superb hosting of @bbcwomenshour would bring desperately needed highlighting and discussion of #medicalmisogyny and the lack of understanding, diagnosis, and treatment of #autoimmunedisease #MECFS #pots 🙌🦸♀️ #PTSD
Around 4 million people have an autoimmune disease in the UK - so around 8% of the population. But of these 4 million, 78% are women. Reporter Carolyn Atkinson talks to Professor Lucy Walker and Nina Christie, who currently lives with three conditions bbc.in/355R5oN
Hoping the world will now call out the #ableism that we've been experiencing for so long - telling us that it's not possible to work remotely, that it's not 'reasonable' to enable us to work remotely, when it clearly IS! and leads to better productivity and inclusion! #nobrainer
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
When you discuss the pros and cons of #homeworking, do you consider how it enables many people with #chronicillness #disability to finally be able to work? Do you know what #ableism is? manylemons.com/covid-19/covi… #MyAccessiblePandemic @BBCRadio4 #youandyours @Patchworkhub
Fantastic @BBCNews article about how homeworking means many people w/ disabilities and chronic illnesses can now work! Thanks @chr0nicallycute for raising awareness and creating this hashtag! #MyAccessiblePandemic #Ableism #remoteworking #homeworking #hybridworking #youandyours
Call for Evidence - 6 key areas. Uk Gov Women's Health Strategy. Really hope that @UKPoTS @ehlersdanlosuk @mayadusenbery @EndometriosisUK @DrEReinhold are part of the conversation 🙏. A message to them: if I can help create evidence as a patient, please dm me .#TalkWomensHealth
📣 @DHSCgovuk want to hear from women across England about their experiences of health and care.
Your views will help shape a new women's health strategy to better meet women’s needs.
Have your say 🗣️
#TalkWomensHealth
And for any doc who wants to train up for #longcovid #Fibromyalgia #me check out @TheEDSociety #projectecho - we need you!!!! #medics #specialism #medictraining #pots #dysautonomia
Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Let’s flood their desks with CVs. #SaveTheClinic #medics #doctor
Dr Melanie Hopper retweeted
Is any doctor with a special interest in #POTS looking for a clinic to head up? Dr Jamie Fulton is retiring and @UHP_NHS are claiming they have to close the clinic because of lack of someone to take over. Let’s flood their desks with CVs. #SaveTheClinic #medics #doctor
Anyone live in #hampshire or #dorset with #ms? We run virtual cuppas & sessions like this one 👇 Check us out!
📌Hampshire private group: facebook.com/groups/hampshir…
📌Dorset private group: facebook.com/groups/dorsetMS…
📌Public page:
facebook.com/hampshireMSsupp…
@MSTrust @mssocietyuk @MSUK6
I help run Hampshire MS Support (HMSS) facebook.com/hampshireMSsupp… and today we've organised a free session with breathandrecover.co.uk about using the #breath to induce relaxation #restanddigest 25 peeps on the video call! 🙌 #breathworks #mindfulnessandpain #mindfulnessandanxiety
I've taken over the @shiftms account this weekend! We're talking about #ms and #sleep today. Come join us! #twittertakeover @MavisAyer1 @ConorKerley @GeomechSteph @SMartChoiceMS @emmadragon @Shoshana1979 @GCarr_Neuro @TrishnaBharadia @Kanjalina @niamhbrid
Sitting at U.K. lab’s #inclusiveibm Disabilities event listening to talks about #invisibledisabilities Excited to be networking with fellow spoonies as I return to work #enablement #fluctuatingconditions @IBMAccess @IBM
What a frank, positive, open, safe, confident and supportive space @moiratzitzika created as she spoke as a sex therapist and researcher at #mssessions19 So glad I got to see her speak again @shiftms @eumsplatform
Dr Melanie Hopper retweeted
#MS is part of life but not all of it. ☝
✅ 1st dates don’t require show-and-tell
✅ If worth pursuing = worth telling
✅ Tell when you'd want to know
✅ Half-truths lay a shaky foundation
✅ Risk is easier upfront
✅ Some will be frightened off; others won't
#MSsessions19 – at Bucharest, Romania
ALT Moira Tzitzika at MS Sessions 2019
Walk for just 20mins and your cognition improves! Just 20mins! These differences were seen directly after walking just once! Aerobic fitness helps your #brainhealth #mssessions19 @ConorKerley @shiftms @eumsplatform
