Media and campaigns organisation dedicated to raising awareness of muscular dystrophy and changing attitudes towards disability.
UK
Joined April 2014
- Tweets2.2K
- Following2.7K
- Followers7.4K
- Likes6.3K
Muscle Owl retweeted
'It's exhausting, I was really angry'
Former Paralympic champion Baroness Tanni Grey-Thompson spoke to #BBCBreakfast after she had to crawl off an LNER train at London King's Cross - when there was no-one to help her
bbc.co.uk/news
Muscle Owl retweeted
If @lner’s new trains from CAF do not feature level boarding for passengers using wheelchairs, it will be interesting to hear the company’s explanation in the court cases that I suspect will follow. #levelboarding
Muscle Owl retweeted
At 22.17 (train got in at 22.02) I decided to crawl off. Had to move all my stuff onto the platform. Member of cleaning staff offered to help. They’re not insured.
Muscle Owl retweeted
@LNER you know when you fail to assist disabled passengers it’s unlawful right? Minimum £1200 compensation for a ONE OFF… this isn’t a one off.
Why can’t you get your sht together & function properly?
You’re in an industry based on comms & you can’t even get the basics right.
Muscle Owl retweeted
The theme of #WDAD21 is ‘Adult Life & Duchenne’. Today people with #Duchenne are increasingly living into their 20s, 30s and beyond thanks to advances in treatments. Whilst there is currently no cure, promising research is taking place. Find out more 👇
buff.ly/2WSkF0E
Muscle Owl retweeted
🎬 WE ARE LIVE! It’s not too late to join the online event ‘Adult Life & Duchenne’. Click the link below to tune in.
Interpretation in Spanish, Ukrainian and Russian. 🎈
live-online-events.zoom.us/w…
Muscle Owl retweeted
🗓 1 week
👥 100 patient advocates
🌏 50 countries
💁♀️ 33 global experts
⏱ 20+ hours training
Come join Duchenne Patient Academy 2020! #DuchennePA2020
Register before Nov 13 ↓
duchennepatientacademy.org/
#PatientAdvocacy #RareDisease #SciComm
Muscle Owl retweeted
Today it is World Duchenne Awareness Day #WDAD2020 around the globe amazing people are raising awareness for #Duchenne and #Becker Muscular Dystrophy. Don't miss at 15:00 CEST youtube.com/watch?v=yuB_87No…
Muscle Owl retweeted
Tune in today September 7 at 9 AM EDT for a livestream event on #Duchenne and the brain, featuring PPMD's Clinical Care Advisor, Kathi Kinnett for #WDAD2020 worldduchenneday.org/wdad202…
Muscle Owl retweeted
📹 AND WE ARE LIVE! Join the #livestream with clinicians, researchers and families who share their experience on learning and behavioral challenges in #Duchenne and #Becker MD.
youtube.com/watch?v=yuB_87No…
Muscle Owl retweeted
I never thought I would use twitter to beg for my life. I'm angry and scared. We are all being betrayed if we let our most vulnerable people die. youtu.be/EcRtAsdpg30 @TheBMA @BnsJaneCampbell @Tanni_GT @DHSCgovuk @guardian @rarediseaseuk @GeneticAlliance
Muscle Owl retweeted
A powerful plea by @DMDPathfinders' Dr. Jon Hastie for equity for vulnerable people who get denied critical care in times of #COVID19 pandemic. "Why are we asking front-line staff to make heart-wrenching decisions on who to save?"
I never thought I would use twitter to beg for my life. I'm angry and scared. We are all being betrayed if we let our most vulnerable people die. youtu.be/EcRtAsdpg30 @TheBMA @BnsJaneCampbell @Tanni_GT @DHSCgovuk @guardian @rarediseaseuk @GeneticAlliance
Muscle Owl retweeted
Thanks to @MuscleOwl for working with us and producing this great video (bear in mind it was recorded last week before the shielding guidelines were in place) facebook.com/muscleowl/video… #DMDAdultLiving #COVID19
Muscle Owl retweeted
Stayed in London last night at @premierinn as speaking at an event this morning. Sorry if I stink today but this has to be the most useless accessible shower I have seen! How the hell do I get up there ?! 😂
Muscle Owl retweeted
Shout out to the students who took A-levels whilst dealing with disablity, sickness, or mental health problems. No matter what grades you got, can I confirm you’re an absolute warrior and deserve all the 👏 👏 👏 #alevelresults2018
Muscle Owl retweeted
Raxone for Duchenne Muscular Dystrophy: Eligibility & Criteria youtu.be/TEQ2v-7EiLA via @YouTube @alljoinjack @DuchenneUK @ActionDuchenne @MDUK_News @DMDPathfinders @DuchenneFSG @MuscleOwl
Muscle Owl retweeted
Raxone for Duchenne Muscular Dystrophy: Eligibility & Criteria youtu.be/TEQ2v-7EiLA via @YouTube @alljoinjack @DuchenneUK @ActionDuchenne @MDUK_News @DMDPathfinders @DuchenneFSG @MuscleOwl
Muscle Owl retweeted
A lovely evening dinner after day two at the EURODIS rare disease patient advocacy summer school.
#eurodis #duchenne #raredisease #advocacy #barcelona @MuscleOwl @Clairelohanlon @CEO_Shelley @daria_wojtal
