
The @iPainOfficial hosts #NERVEmber project each Nov since 2009 - NERVEmber® brings awareness to 150+Conditions that have nerve pain involvement including #CRPS
International
Joined September 2018
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NERVEmber® retweeted
Arizona rare disease community: Your voice matters!
The Arizona Rare Disease Advisory Council (ARDAC) has launched the AZ Rare Disease Community Survey to identify unmet needs of patients, caregivers, and providers.
Please complete it and share widely with your networks.
Take the survey: qualtricsxmf7b47qnbj.qualtri…?
#RareDisease #Arizona #ARDAC #RareDiseaseAwareness

ALT Arizona rare disease community: Your voice matters! The Arizona Rare Disease Advisory Council (ARDAC) has launched the AZ Rare Disease Community Survey to identify unmet needs of patients, caregivers, and providers. Please complete it and share widely with your networks. Take the survey: https://qualtricsxmf7b47qnbj.qualtrics.com/jfe/form/SV_bwKRqob5BvCF3ro? #RareDisease #Arizona #ARDAC #RareDiseaseAwareness See less
NERVEmber® retweeted
BIGGS
My team of amazing patriots are ready to save the west!
Let’s go vote!
@TPAction is at your service!
Tpaction.com/freedom
NERVEmber® retweeted
New season, new strength. Dive into the Fall 2026 iPain Living Magazine — real voices, real tools, real hope. Free digital access. iPainLiving.org #iPainLiving #Fall2026Issue #NERVEmber
NERVEmber® retweeted
Join award-winning author and chronic pain advocate Michele Roys for a special FREE global virtual celebration as her memoir But You Look Just Fine launches as an audiobook which is narrated by Michele herself. Hosted by TV presenter, broadcaster and author Andrea Hayes, the evening will be a chance to connect, be inspired, and celebrate resilience — for anyone facing an invisible struggle, or who loves someone who is. Thursday, September 24th | 7 PM Irish | 2 PM Eastern | 11 AM Pacific - Free, but registration is required.
REGISTER HERE - eventbrite.ie/e/but-you-look… #PainAwarenessMonth
NERVEmber® retweeted
All of this!!! #PainAwarenessMonth
Lived experience is not “anecdote.” It is essential knowledge for research questions, trial design, endpoints that matter, and treatments people can actually use. Partner earlier. Partner better. #PainAwarenessMonth #VoiceForPainAwareness #MyPainIsLike
NERVEmber® retweeted
The best pain plans are co-created: patient goals + caregiver reality + clinician judgment + therapies that fit real life. Partnership beats paternalism. #VoiceForPainAwareness #MyPainIsLike
NERVEmber® retweeted
Arizona - Living with a rare disease or chronic pain in rural Arizona can feel isolating. This fall, we’re bringing support closer to home.
More Info: internationalpain.org/bringi…
iPain’s Rural Rare Disease Project is hosting 4 FREE, family-friendly, accessible community days across
Pinal, Gila, Coconino, and Navajo counties.
Apache Junction — Sat, Sept 26, 7–11 AM
Payson — Mon, Sept 28, 11:30 AM–1:30 PM
Flagstaff — Mon, Sept 28, 5–7 PM
Mogollon Rim — Wed, Oct 1, 11 AM–2 PM
Stations include genome-sequencing info, healthy eating on a budget, movement & nature for pain management, wellness resources, and Q&A.
RSVP encouraged (not required): 480-760-1197 or [email protected]
Learn more: internationalpain.org
Hope is true. Come as you are.
#RareDisease #ChronicPain #RuralHealth #Arizona #CRPS #iPain
NERVEmber® retweeted
Article spotlight (Pg 66): The Evolution of Hope in the Face of Disease, Dying, and Death. Profound reflections on finding and keeping hope. Comforting and deeply human. #iPainLiving #Hope #ChronicIllness
NERVEmber® retweeted
Article spotlight (Pg 62): A Delaware Home’s Extraordinary Patriotic Legacy. A moving story of American history, family, and enduring spirit. Perfect for our 250-year celebration. #iPainLiving #America250
NERVEmber® retweeted
Invisible pain is still pain. No scan, no lab value, no “you look fine” cancels lived experience. Validation is part of treatment. #PainAwarenessMonth #VoiceForPainAwareness #MyPainIsLike
NERVEmber® retweeted
Understanding pain means holding two truths at once: pain is real and it can change. Education, movement, support, and good medicine can all help the nervous system feel safer. #PainAwarenessMonth #MyPainIsLike #VoiceForPainAwareness
NERVEmber® retweeted
Article spotlight (Pg 40): A Prescription for Joy - From Burnout to Other Therapy. Move from exhaustion to renewed joy with helpful approaches for caregivers and warriors alike. #iPainLiving #Burnout #Joy
NERVEmber® retweeted
Grateful for the time to share our stories and priorities on behalf of Arizona’s rare disease community. Together we’re amplifying the voices of patients & caregivers across the state! #AZRareTeam Proud moment for the #AZRare Team! 💜 Met virtually with our Arizona Senators' and Congressmens' offices as part of #RareAcrossAmerica2026 with @EveryLifeOrg More meetings to come! #MakeADifference #IAmRare
🤖 Made with AI
NERVEmber® retweeted
This morning carries fresh strength.
God already went ahead of us.
Clearing paths, opening doors, and covering our familes with favor we didn’t even see coming.
Walk into today with full confidence and a full heart.
NERVEmber® retweeted
Article spotlight (Pg 26): Escaping Pain and Rediscovering Purpose Through Travel. How travel can open new doors to healing and meaning. Get inspired! #iPainLiving #ChronicPain #Travel
NERVEmber® retweeted
Cover Story spotlight (Pg 48): Rising Strong Through Caregiving and Crisis Illness. An inspiring look at courage and growth in the hardest moments. Do not miss this one. #iPainLiving #Caregiving #Resilience
NERVEmber® retweeted
Tomorrow- Saturday 11:00 a.m. PST
Hope to see you there!
Happy Independence Day! ❤️🤍🩵
The Kratom Gals Weekly Watch & React Show youtube.com/live/YwLd-B_4D9k… via @YouTube

























