π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ (@Neurospindle) header
π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ (@Neurospindle) profile picture

NHS Clinical physiologist @GreatOrmondSt . @yesILAE membership task force leader. πŸ³οΈβ€πŸŒˆπŸ‡ͺπŸ‡Ί he/him

London, England
Joined March 2016
π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
I was diagnosed with epilepsy as a young adult. I’ve been seizure-free for several years, but I often think about the journey it has taken to get to this place and many that are at the beginning of that journey now. Today is Purple Day for @epilepsysociety , and I’m wearing my purple ribbon. Epilepsy affects many, but the wider effects are not commonly understood. So there’s more we can do to spread awareness and stand up to seizures. πŸ’œ
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
It's Purple Day! There are 630,000 people with epilepsy in the UK. Together, we are stronger. Together, we can Stand Up to Seizures. πŸ’œ bit.ly/4iFgPwa #PurpleDay #StandUpToSeizures #EpilepsyAwareness #TeamPurple
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Epilepsy surgery found to reverse cognitive decline in children | UCL Great Ormond Street Institute of Child Health - UCL – University College London ucl.ac.uk/child-health/news/…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
The #Onein100 campaign calls on everyoneβ€”patients, funders, government, and charitiesβ€”to come together to: - Raise awareness - Accelerate investment - Advance research Let’s drive real change for the #epilepsy community. epilepsy-institute.org.uk/on…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
πŸ“’ Help us build a health service fit for the future. We want to hear from everyone. πŸ‘‡ This is your chance. πŸ‘‡ Add your voice today. Get involved πŸ‘‰ change.nhs.uk/en-GB/?mtm_cam…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
My update on reports that far-right groups are now planning to target locations in London:
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Mobilise to defend immigration lawyers, refugee charities and asylum support centres around Britain. The far right have published a list of targets for Wednesday night. Protests are being called to defend them #RefugeesWelcome Watch this thread for local details 🧡
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Our validated routine #EEG examination for adult and child neurology residents is ONLINE! If you’re interested, have your program director/coordinator contact us at learn.eegtalk.com/contact.ht… @EEGTalk @Fabnascimen @Roohikatyal @SheikhISMD @namesare4babies
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
We’re delighted to announce that the inaugural Epilepsy Research Institute Conference will be held on 22nd–23rd May 2025 at the Hyatt Regency Manchester. The two-day conference will bring together researchers working in epilepsy and associated conditions. epilepsy-institute.org.uk/er…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
"The future seems more attainable than it was before. The quality-of-life improvement has been invaluable for Oran.” - Justine, Oran’s mum The first UK clinical trial for deep brain stimulation for extremely severe #epilepsy has begun at GOSH. gosh.nhs.uk/news/first-uk-tr…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
The UK's first trial of Deep Brain Stimulation for children with #epilepsy has begun at GOSH.πŸ“£ The first patient's daytime seizures have reduced by 80%, significantly improving their quality of life. Paediatric Neurosurgeon Martin Tisdall, who led the trial, explains more. πŸ‘‡
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
The first UK trial of Deep Brain Stimulation for children with epilepsy has begun at GOSH, lowering the first patient’s daytime seizures by 80%. This research has changed Oran’s life for the better, watch his story: gosh.nhs.uk/news/first-uk-tr…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
🚨 The deadline to register to vote is TONIGHT at 23:59 If you haven't already, register to vote here: gov.uk/register-to-vote
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
πŸ“’We welcome @FridhaVillalpa1 to the YES team who has been elected YES Latin American Representative for the term of next two years. Looking forward to work with you and spread the YES message.
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Do you have a child with epilepsy or are you a child/adolescent with epilepsy? We may need your help with a research study! VisitΒ kidsepilepsysurgery.com/cogn…! @EpilepsyInst @epilepsyaction @youngepilepsy @AmEpilepsySoc @PESAlliance @PERCepilepsy @TorieRobinson10
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Have a hospital appointment soon? Be sure to familiarise yourself with our new entrance before you come. πŸ“πŸ“’ Visit our website for directions: gosh.nhs.uk/news/gosh-main-e…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
Call for YES Latin American representative. The elections are here! See below for more details
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
The @EpilepsyInst is delighted to be launching our inaugural Emerging Leadersβ€―Symposium this May at The Francis Crick Institute. The event is free to attend and primarily aimed at early career researchers and their supervisors – read more and RSVP here: epilepsy-institute.org.uk/er…
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
#knowYES Join our Conferences Task Force if you are interested in organizing YES conferences and networking.2 major YES events coming up this year - #EEC in Rome and Asia Oceania YES congress, New Delhi. Register on the link below wkf.ms/3uS3sVJ
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π•Šπ•₯𝕦𝕒𝕣π•₯ 𝔻. π•Ž. π•Šπ•žπ•šπ•₯𝕙 πŸ‡ΊπŸ‡¦ retweeted
#knowYES Join our Advocacy Task Force if you want to make a difference and spread the word about Epilepsy with relevant research opportunities. Let's break down barriers, spread awareness, and eradicate stigma globally. wkf.ms/3uS3sVJ
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