Raising awareness and providing support in the greater Oregon area
Portland, OR
Joined January 2013
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Rescind the Medicare proposal restricting access to prosthetic limbs, returning amputees to 1970’s standards of care. wh.gov/iIIoi
OR EDS Meeting Reminder - eepurl.com/bfw2Knhope to see you this Sat at 3 pm for the meeting at Good Health PT
OREDS Meeting This Saturday - Exciting Information from the EDNF Conference Concluded! #Oregon #EDS #support - eepurl.com/bb8Tv1
Educational Meeting Speaker -Heather Goodell TOMORROW - eepurl.com/5AKJb
RT @swillis07: Excellent and thoughtful article about hyper-mobility! fb.me/2GgB380Ku
Ehlers–Danlos Syndrome, is a connective tissue disorder with different presentations that have been classified into several primary types.
Osteogenesis Imperfecta: inherited connective tissue disorder caused by a mutation in the genes coding for type I collagen
What happens when patients with chronic illness enter higher education? wbur.fm/NTq8dY #eds #ehlersdanlossyndrome
#pelvicpain &mwomen (pub. Sept. 2014) - discusses #IC, #mastcell & other causes of #chronicpain #gyn #pain: books.google.com/books?id=CU… #spoonie
EDS POSTER: How can #EhlersDanlosSyndrome affect a child in school? ow.ly/CpVGA #EDS #HMS #hypermobility ow.ly/CpVGB
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Chronic widespread pain and neurophysiological symptoms
in joint hypermobility syndrome (JHS) (AKA EDS)... fb.me/2NDRI4nLS
Here is a great guide Mast Cell Activation Disorder and how to get your dx.... fb.me/2TFIEzreW
OR EDS November Support Group Meeting Reminder - eepurl.com/79-h5
I came out last night to be a sufferer of Joint Hypermobility Syndrome - and the challenges I face as a traveller ow.ly/CM971
When does Hypermobility become a problem?
Read: tl.gd/n_1sckhaa
FB Group for EDSers who use or wish 2 learn more about utilizing #Cannabisasamedicine ow.ly/CMaCG #cannabis #EDS #ehlersdanlos
Yogi or not, this is SOOOOO important ~Hypermobility vs Flexibility: Do You Know the Difference? ow.ly/CM8Y0 #yoga