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Open Medicine Foundation Canada

@OpenmedfCanada

OMF Canada is fundraising to support open, collaborative research to find treatments and diagnostic markers for ME/CFS and related chronic complex diseases.

omfcanada.ngo
Joined August 2019
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Tomorrow, Triple Giving November begins. For one month, generous matching donors will triple every gift to OMFCA — up to $500,000. It’s the most powerful way to support #MECFS and #LongCOVID research all year. 🔗 Learn more: ow.ly/MYkz5102HPJ
Two hands passing a small red paper heart between them, set against a warm beige background. A calendar icon and the dates 11/1–12/1 appear alongside the text “#TripleGivingNovemberOMF.”

ALT Two hands passing a small red paper heart between them, set against a warm beige background. A calendar icon and the dates 11/1–12/1 appear alongside the text “#TripleGivingNovemberOMF.”

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You’re helping shape how we think about designing trials in our clinical trials network lite (CTN Lite) initiative. Join Dr. Danielle Meadows for a webinar on trial design considerations that apply across all CTN Lite trials. 🔗 REGISTER NOW: ow.ly/MWTr5101q63
Webinar announcement featuring Dr. Danielle Meadows discussing CTN Lite trial design on November 12 at 3 PM ET.

ALT Webinar announcement featuring Dr. Danielle Meadows discussing CTN Lite trial design on November 12 at 3 PM ET.

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RECOVER-TLC’s third annual hybrid workshop is Nov. 4–5, 2026 — in person at The Bethesdan in Bethesda, MD, or virtually via Zoom. 🔗 Register (free): ow.ly/klSM50ZZxs9
Registration and Agenda: RECOVER-Treating Long COVID (TLC) Workshop, November 4–5, 2026. Background shows an audience at a conference.

ALT Registration and Agenda: RECOVER-Treating Long COVID (TLC) Workshop, November 4–5, 2026. Background shows an audience at a conference.

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Dr. Danielle Meadows shares OMF’s CTN Lite survey results on post-exertional symptom worsening in ME/CFS and how patient feedback is shaping decentralized, precision-medicine, patient-centered clinical trials. 👉 Watch the webinar recordings: ow.ly/IVHZ50ZYWiT
Headshot of Dr. Danielle Meadows smiling, featured in a webinar on CTN Lite PEM Deep Dive Survey Results by Open Medicine Foundation Canada.

ALT Headshot of Dr. Danielle Meadows smiling, featured in a webinar on CTN Lite PEM Deep Dive Survey Results by Open Medicine Foundation Canada.

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OMF Founder & CEO Linda Tannenbaum visited OMF’s ME/CFS Collaborative Research Center at Montreal earlier this month. Each member presented their work. “They are excited about their own research,” Linda said. That energy fuels everything we do. 💙
OMF Founder & CEO Linda Tannenbaum visiting the team at OMF’s ME/CFS Collaborative Research Center in Montreal

ALT OMF Founder & CEO Linda Tannenbaum visiting the team at OMF’s ME/CFS Collaborative Research Center in Montreal

OMF Founder & CEO Linda Tannenbaum visiting the team at OMF’s ME/CFS Collaborative Research Center in Montreal

ALT OMF Founder & CEO Linda Tannenbaum visiting the team at OMF’s ME/CFS Collaborative Research Center in Montreal

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Open Medicine Foundation Canada retweeted
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👉 Learn more about this publication: ow.ly/1Lvk50ZWh6r 👉 Watch Journal Club recording: ow.ly/Ys9B50ZWh6q
New Publication: Facility-Measured Sleep Electroencephalographic Microstructures in Long COVID -...

New Publication: Facility-Measured Sleep Electroencephalographic Microstructures in Long COVID -...

New research from OMF's Computational Research Center finds measurable differences in sleep EEG microstructures in people with Long COVID and ME/CFS. Join OMF Journal Club on September 29 to go...

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Open Medicine Foundation Canada retweeted
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Open Medicine Foundation@OpenMedFOct 9
Why do people with Long COVID and ME/CFS wake up unrefreshed, even when a standard sleep study looks close to normal? A 2026 study in the journal SLEEP points to the fine-grained structure of sleep itself.
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Today is DAF Day, a day dedicated to the power of Donor-Advised Funds to make a difference. You can multiply your impact by directing a grant from your DAF to OMFCA to fuel critical #MECFS and #LongCOVID research. 👉 Recommend your grant for DAF Day: omfcanada.ngo/ways-to-donate…
Group of eight OMF's researchers in white polo shirts posing in a laboratory setting.

ALT Group of eight OMF's researchers in white polo shirts posing in a laboratory setting.

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Open Medicine Foundation Canada retweeted
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Open Medicine Foundation@OpenMedFOct 7
Multi-omics is a style of research that combines multiple layers of biological data—including genomics (genes), proteomics (proteins), and metabolomics (metabolites)---to build a complete picture of what is happening inside the body.
Graphic showing a DNA strand icon above the text 'Science Wednesdays Multi-omics' on a dark blue background.

ALT Graphic showing a DNA strand icon above the text 'Science Wednesdays Multi-omics' on a dark blue background.

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The 2026 Stanford Community Symposium recordings are now on YouTube. Every talk is now online, including Danielle Meadows, PhD, OMF's VP of Research Programs and Operations, on the clinical trial landscape in ME/CFS and Long COVID. ▶️ ow.ly/WwBQ50ZSFYF
Announcement for 2026 Stanford Community Symposium recordings featuring Ronald W. Davis, PhD, and Danielle Meadows, PhD, available on YouTube.

ALT Announcement for 2026 Stanford Community Symposium recordings featuring Ronald W. Davis, PhD, and Danielle Meadows, PhD, available on YouTube.

Stanford 2026 Community Symposium recordings now available on YouTube featuring Ronald W. Davis, Ph.D., and Danielle Meadows, Ph.D.

ALT Stanford 2026 Community Symposium recordings now available on YouTube featuring Ronald W. Davis, Ph.D., and Danielle Meadows, Ph.D.

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👉 Dr. Danielle Meadows, OMF's VP of Research Programs, will walk through the results in a live webinar on October 7 at 3 PM ET. 🔗 Register: ow.ly/Hgom50ZS0R2 🔗 Learn more: ow.ly/w4ym50ZS0So A recording goes out to everyone who signs up!
Webinar announcement for PEM Deep Dive Survey Results with Dr. Danielle Meadows on October 7 at 3 PM ET.

ALT Webinar announcement for PEM Deep Dive Survey Results with Dr. Danielle Meadows on October 7 at 3 PM ET.

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Last day to complete the Understanding Post-Exertional Symptom Worsening in ME/CFS survey. Your responses go directly into CTN Lite trial design — shaping the terminology, outcome measures, and how crashes are defined and measured. 👉 Take the Survey: ow.ly/pImY50ZITNr
Last day to participate in Open Medicine Foundation Canada's study on post-exertional symptom worsening in ME/CFS patients and caregivers.

ALT Last day to participate in Open Medicine Foundation Canada's study on post-exertional symptom worsening in ME/CFS patients and caregivers.

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Subscribe to OMFCA's newsletter 👉 ow.ly/9fFS50ZOLOm When you do, you’ll get the latest on OMF research, announcements & more. We share news in both French and English. Your information is kept private, and you can unsubscribe anytime. #pwME #MECFS #LongCOVID #pwLC
Envelope with a newsletter invitation from Open Medicine Foundation Canada against a soft autumn leaf background.

ALT Envelope with a newsletter invitation from Open Medicine Foundation Canada against a soft autumn leaf background.

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Dr. Janet Mullington and her team released a paper on their investigation of sleep electroencephalographic microstructures. The team studied these microstructures in the context of non-restorative sleep and daytime fatigue in #MECFS and #LongCOVID. ow.ly/pcnf50ZNXvs
Close-up of a brain scan on a monitor with a blurred person wearing EEG electrodes in the background, highlighting sleep microstructures in Long COVID research.

ALT Close-up of a brain scan on a monitor with a blurred person wearing EEG electrodes in the background, highlighting sleep microstructures in Long COVID research.

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Open Medicine Foundation Canada retweeted
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Traditional clinical studies require participants to travel to a single site (a barrier that leaves many people unable to take part). Decentralized studies offer more flexible options for participating in research like local lab visits, home collection kits, or virtual check-ins.
Graphic with an atom icon and text reading 'Science Wednesdays Decentralized study' on a dark blue background.

ALT Graphic with an atom icon and text reading 'Science Wednesdays Decentralized study' on a dark blue background.

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ICYMI: OMFCA is asking our community to complete the Understanding Post-Exertional Symptom Worsening in #MECFS survey. The survey takes 20–30 minutes and is anonymous. Your responses go directly into CTN Lite trial design. Deadline: September 18. 🔗 ow.ly/wRQT50ZITV6
CTN Lite Survey: Understanding Post-Exertional Symptom Worsening in ME/CFS

CTN Lite Survey: Understanding Post-Exertional Symptom Worsening in ME/CFS

A Deep-Dive Patient Survey on Crashes, PEM, and What Meaningful Improvement Looks Like Post-exertional symptom worsening (PEM/PESE/PENE) and crashes were the top priority for treatment research...

docs.google.com
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Introducing OMF Journal Club: Research Insiders. Free to join. Choose your member perks: ✔️Early paper alerts ✔️Automatic registration for every Journal Club session ✔️Automatic recording delivery 👉 Become a Research Insider today: ow.ly/PbhG50ZHNFt
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How close are we to precision medicine for #MECFS and #LongCOVID? Dr. Chris Armstrong, Director of the Melbourne ME/CFS Collaboration, joins Steve Gardner on the Biology Matters podcast to explain where the science is heading. 🔗 youtube.com/watch?v=O_KRzKhi…
Discussion on advancements in precision medicine for ME/CFS and Long COVID by Dr. Chris Armstrong.

ALT Discussion on advancements in precision medicine for ME/CFS and Long COVID by Dr. Chris Armstrong.

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Irma has lived with ME/CFS for over 70 years. At 86, she's still thinking about the people who come after her. "Even modest contributions, when directed thoughtfully, can help move research and understanding forward." 🔗 Support OMFCA: ow.ly/4rQ250ZG9NJ
Irma sits beside her husband. Below their photo, a quote reads: "Meaningful impact does not require wealth or status. Even modest contributions, when directed thoughtfully, can help move research and understanding forward."

ALT Irma sits beside her husband. Below their photo, a quote reads: "Meaningful impact does not require wealth or status. Even modest contributions, when directed thoughtfully, can help move research and understanding forward."

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Open Medicine Foundation Canada retweeted
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In #MECFSresearch, understanding contraindications is important because of the vulnerability of the people living with the disease. For example, graded exercise therapy—once widely recommended—has been shown to be contraindicated for people with #MECFS, as it can trigger #PEM.
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