CEO @pbcfoundation, also Chair Paed/Rare Liver Diseases Council @globallliver Chair @liverpatients Support Advocacy Strategy Listening Views my own
Edinburgh, Scotland
Joined December 2013
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Now that I am rested, I wanted to reply properly to this. Thank you Michelle. I appreciate the sentiment as I do what I can. But here is the thing: you are my heroes. You are my inspiration. Every single peraon affected by PBC that I encounter: helpline, online, face-to-face 1/
Is this a thing?? blog.maryannedemasi.com/p/ma…
Robert Mitchell-Thain💙💛 retweeted
We're talking about community engagement, patient engagement and advocacy to change the name of PBC from #Cirrosis to Cholangitis with Dr. Robert Gish. @AASLDtweets #TLM25 w/ @PBCRobert @PBCFoundation in Washington D.C.
#PrimaryBiliaryCholangitis
#PatientSupport – at Washington, DC
Robert Mitchell-Thain💙💛 retweeted
Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets
w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation
aasld.org/the-liver-meeting/… @AASLDtweets #Liverhealth
#PrimaryBiliaryCholangitis – at Orland Park, IL
Robert Mitchell-Thain💙💛 retweeted
This Thursday, Primary biliary cholangitis (#PBC), will be the focus on @lifetimetv 🖥 with @Montel_Williams and Olga Villaverde on @BalancingActTV
"Behind the Mystery 🔎". Set your alarm to 6:30am, CST/7:30am #PBCAwarenessMonth #YouAreNotAlone 💚 – at Chicago, IL
@British_Airways is this really how you treat your loyal customers?
Convo 1- change of 1 part of a flight £150
Phone goes dead
Convo 2- 3 minutes later- change of 1 part £3004
Three thousand and four pounds.
I know from comments around your new points system, many think @British_Airways are desperate to lose loyal customers. I just didn't realise you were this desperate to alienate your own #avios loyalty members
Interesting times in #CustomerServiceFail lessons for all.
Robert Mitchell-Thain💙💛 retweeted
#IQILS are at #EASLCongress 2025 in Amsterdam
Do stop by stand S13 to meet the team
Robert Mitchell-Thain💙💛 retweeted
The @PBCFoundation are holding 2 talks today at #EASLCongress
Project 90:90, providing better care in PBC at Track Hub 6
Providing better care in PBC: innovative solutions for today's challenges at MTE 3
Don't miss out on catching these today!
Satellite symposium with @GileadSciences at @EASLedu congress #Amsterdam
Another optuon in PBC to prevent disease progression?
#UDCA #OCA #Elafibrinor #Seladelpar #ANewHope @PBCFoundation @LiverPatients @Collettepbc @PBCMo @josewillemse @electricdreamz
Quite possibly the busiest PBC academic session ever.
I mean ever.
Ever ever.
Dr Gideon Hirshfield sharing linerixabat data on itch in #PBC at @EASLedu congress in #Amsterdam
@PBCFoundation @LiverPatients @Collettepbc @PBCMo @adyeoman @GSK @josewillemse
Gutted to say not going back to @MySamsonite . Lord knows I travel, but poor service refusing a faulty item to repair/replace (a product still on the shelves in the shop) is not what I thought the Samsonite brand was about. Live and learn. Share, ask, go elsewhere.
Robert Mitchell-Thain💙💛 retweeted
Huge credit to The Laurel Bank Hotel in Glenrothes, Fife for doing this at Christmas. So many folk are struggling at this time of year - in particular, with loneliness, isolation and financial worries. We need to harness the community spirit and compassion shown by this hotel.
Robert Mitchell-Thain💙💛 retweeted
Thank you @ChrisGPackham & @CarolineLucas for acting with integrity - a quality that is severely lacking in government and some NGO's currently.
@RSPCA_official, instead of wasting time, energy and donations by trying to hide the truth, why don't you simply clean up your act⁉️🤬
Robert Mitchell-Thain💙💛 retweeted
Recently I chaired a roundtable to discuss an interim report on Primary Biliary Cholangitis, an autoimmune liver disease that primarily affects women.
It was a pleasure to meet @PBCFoundation CEO @PBCRobert & campaigners to hear about their work supporting those living with PBC.
Robert Mitchell-Thain💙💛 retweeted
“This is a pernicious condition that we know too little about, which sees the body attack its own cells. Many of those affected by unbearable symptoms that massively reduce their quality of life, feel misunderstood even by the health service.” @PBCRobert
healthandcare.scot/stories/3…
Robert Mitchell-Thain💙💛 retweeted
“PBC is under-diagnosed, and my hope is that we can raise awareness of the condition in the hope that more people who do have symptoms come forward sooner.”
@stephentbarclay @IpsenGroup @LiverTrust
healthandcare.scot/stories/3…
Robert Mitchell-Thain💙💛 retweeted
The role and skills of leaders needs to change, in line with profound changes in the workplace. In a new article in @HarvardBiz, a group of experts has identified 6 essential skills to thrive as a leader in the new environment:
1) emotional aperture - the ability to understand and tune into the emotional dynamics of others
2) adaptive communication - knowing how and when to adjust our behaviour & leadership style, connecting to the emotional energy of others
3) flexible thinking - able to flex with competing priorities & hold opposing ideas in our heads
4) perspective seeking, taking & coordinating - actively seek different perspectives & integrate new information into our approach
5) strategic disruption skills - questioning long-standing practices & pushing for continuous learning and improvement
6) resilient self-awareness - recognising our own boundaries/limitations & setting a healthy example for others.
There are links to lots of useful resources for developing these skills: hbr.org/2024/10/6-essential-…. By @knightrm.
I would add a 7th essential skill: network & connection skills – ability to operate with both formal & informal influence and build sustainable relationships.
