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PROBE Study

@PROBEstudy

Investigating patient perspectives on outcomes that matter most to their life & care. 🌍 #PROBEStudy | https://nitter.gq/t.co/aIUqO1AyyC

 Global
probestudy.org
Joined May 2017
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Photo by PROBE Study (@PROBEstudy)Photo by PROBE Study (@PROBEstudy)Photo by PROBE Study (@PROBEstudy)Photo by PROBE Study (@PROBEstudy)Photo by PROBE Study (@PROBEstudy)Photo by PROBE Study (@PROBEstudy)
Is the World Ready for Gene Therapy? Just finished presenting at #ISPOR2022 on Patient Perspective on HTA for Gene Therapy. Early patient engagement + Patient Important Outcomes are key to demonstrating value. See our full supplement onlinelibrary.wiley.com/toc/… @PROBEstudy
Is the World Ready for Gene Therapy?: Haemophilia: Vol 28, No S2

Is the World Ready for Gene Therapy?: Haemophilia: Vol 28, No S2

Click on the title to browse this issue

onlinelibrary.wiley.com
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Thank you Mike - PROBE is powered by the voice of patients. Available in 105+ countries 45+ languages. #WFHCongres2022 we announced a global integration and collaboration with the World Bleeding Disorder Registry @wfhemophilia. @PROBEstudy
Michael Makris (@ProfMakris) profile pictureMichael Makris@ProfMakris8 May 2022
Mark Skinner explained the PROBE patient reported outcome (PRO) questionnaire. It has been developed over the last 10 years and is probably the best PRO for #hemophilia out there. #WFH2022
Image from Michael Makris (@ProfMakris)
Image from Michael Makris (@ProfMakris)
Image from Michael Makris (@ProfMakris)
Image from Michael Makris (@ProfMakris)
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After listening, to learn more about @PROBEstudy or to participate visit probestudy.org. We are working to enhance the direct patient voice in health care decision making for people living with #hemophilia. Amplify shows.acast.com/amplify/epis… via @acast
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