Parrotfish ๐ŸŒ (@Parrotfish13) header
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No longer a PhD student because I am full time caring for 2 people with #LongCovid #LongCovidKids #LCK #pwME #POTS #MCAS #Lyme

United Kingdom
Joined August 2018
Photo by Parrotfish ๐ŸŒ (@Parrotfish13)Photo by Parrotfish ๐ŸŒ (@Parrotfish13)Photo by Parrotfish ๐ŸŒ (@Parrotfish13)Photo by Parrotfish ๐ŸŒ (@Parrotfish13)Photo by Parrotfish ๐ŸŒ (@Parrotfish13)
It was a privilege to be at @covidinquiryuk as part of @LongCovidKids last week. Over 100,000 children are affected in the UK. They live with horrendous symptoms every day. Some like my son have had to give up physical activity, friendships and full-time education. Others are confined to bed, invisible to society; unable to tolerate light, sound and even food and drink. There are no approved treatments and no proper services for these children. Families are often forced to seek private healthcare. On top of this, they have to fight to be believed; too many have been accused of fabricating their childโ€™s disease simply for advocating for them or because the childโ€™s attendance has dropped below targets. It is not a few months of lockdown or masking that has damaged the health of our children. It is the recurrent exposure to a deadly vascular virus which continues to kill & disable millions. Covid never went away; we know that the risk of Long Covid is cumulative (5% with each infection). The risk of acquiring it can be dramatically reduced by cleaning the air in indoor spaces; yet there is zero investment into this area, and children continued to be forced back to unsafe classrooms. This is despite the evidence that apart from reducing the risk of respiratory infections, ventilation improves academic performance and attendance. Of his (at least) 5 infections, 3 of my sonโ€™s were acquired through school. We wouldnโ€™t drink dirty water; why are we happy to breathe dirty air? I hope this inquiry results in some accountability for those responsible for the negligence that has resulted in the mass disabling of millions of children and adults. And that there is increased recognition of the need for treatment, support and most fundamentally, for these children & their families to be believed. This is for you my boy ๐Ÿ‘ฆ๐Ÿผโค๏ธ. โ€˜Abbuโ€™ will never stop fighting for you. #COVIDinquiry #children #longcovid #longcovidkids #publicinquiry #volunteers
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Please support, sign, circulate our petition for safer health care petition.parliament.uk/petitโ€ฆ
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The Long Covid groups speak as one today, telling the world that anyone can get #LongCovid Please share our message and call for treatment, #CleanAir and support for the millions living with Long Covid. #ItCouldHappenToYou longcovidgroups.org/it-couldโ€ฆ
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๐Ÿ—“๏ธ Today is the dayโ€ฆ ๐Ÿ“ฃ Long Covid Groups Awareness Campaign comes together. ๐Ÿšš On the day the former Prime Minister Boris Johnson faces the UK Covid-19 Inquiry, our โ€œIt Could Happen To Youโ€ digivan campaign will hit the streets of London.
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Parrotfish ๐ŸŒ retweeted
Today Boris Johnson is at the Covid Inquiry. So are we. Today we deliver a letter to No10 requesting investment into research and trials for Long Covid. Please sign our petition. bit.ly/46Hjjn1 longcovidgroups.org #LongCovid #LongCovidKids #ItCouldHappenToYou
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1.9 MILLION people (at last count) are living with #LongCovid This includes 62,000 kids Anyone can get Long Covid #ItCouldHappenToYou Over 2,000 signatures since yesterday. Letโ€™s keep this momentum going & deliver the letter tomorrow with as many signatures as possible ๐Ÿ”—๐Ÿ‘‡๐Ÿผ
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ANYONE CAN GET LONG COVID #ItCouldHappenToYou PLEASE share the messages we are putting out on Social Media this week We are working in unison with the other #LongCovidGroups on behalf of the #LongCovidCommunity and the wider public to get the message out. ๐Ÿ”— below ๐Ÿ‘‡๐Ÿผ
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Parrotfish ๐ŸŒ retweeted
There is NO CURE for Long Covid. We urgently need more investment into RESEARCH for Long Covid. Please sign the petition: bit.ly/46Hjjn1 #ItCouldHappenToYou #NoCure #ResearchLongCovid #TreatLongCovid #LongCovid #LongCovidKids
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Parrotfish ๐ŸŒ retweeted
๐Ÿ“ฃSIGN #LongCovidGroupsโ€™ LETTER TO NO. 10 โžก๏ธ bit.ly/46Hjjn1 Approx. 2m in UK with debilitating #LongCovid. โ—๏ธThere is No Cure! โ—๏ธLast dedicated research funding from Government was in 2021 - minimal focus on treatment! @long_covid #ResearchLongCovid #ItCouldHappenToYou
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