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Patients FCR

@PatientsFCR

Patients for Clinical Research: putting patients in control of bio research. Like if Github/Matchdotcom mash-up, make research baby. #hcinno #pfcr

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patientsfcr.org
Joined December 2013
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The Clinical Trial Model Is Up for Review ow.ly/OluHf Just tripped over this on PubMed. AGREE. #pfcr #pharma #research
The Clinical Trial Model Is Up for Review: Time, Expense, and Quality of Results Are at Issue, As...

The Clinical Trial Model Is Up for Review: Time, Expense, and Quality of Results Are at Issue, As...

Costly medications have raised questions about the role that long, complex clinical trials play in drug pricing. Approval of a drug takes, on average, 14 years, costs more than $2 billion, and has a...

pmc.ncbi.nlm.nih.gov
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Saving A Life on Vimeo ow.ly/OeMrr Why #clinicaltrials are SO important. #pfcr #multiplesclerosis
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HOLD THE PRESSES!!! Wave the Flag! Susannah’s Coming! ow.ly/NC1Dx @pfanderson on why @SusannahFox + HHS = WIN 4 HUMANS! #mydata
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Virotherapy: melanoma successfully treated w/ herpes-based drug ow.ly/NuBOa Phase 3 trial. 10% complete remission. WOW. #pfcr

Virotherapy: skin cancer successfully treated with herpes-based drug

‘Virotherapy’ uses modified herpes virus to attack melanoma cells and has potential to overcome cancer even when disease has spread throughout the body

theguardian.com
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This Yale Doctor Is Coding His Own App With Apple's ResearchKit - BuzzFeed News ow.ly/N2ey6 LOVE this! #pfcr #hcinno
Gilead’s Gaffe Leads Drugmakers to Pledge More Openness on Price ow.ly/Muk1z About bloody time. #s4pm #pfcr #hcpt
AllTrials – WHO calls for all clinical trial results to be published ow.ly/LEuDB Now to hold feet to fire ... #pfcr #openscience
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More than half of 60 Minutes devoted to "Killing Cancer" but no independent perspective ow.ly/L1P0A HT @healthnewsrevu #pfcr
About CureClick ow.ly/KQuCD We're passionate about accessible science + research, so this seemed a no-brainer! #pfcr
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Apple Launches ResearchKit Platform With 5 mHealth Apps ow.ly/K9SW4 YES! #pfcr #s4pm
Regulatory Uncertainty Causing Retesting Confusion for Patients Considering New Ovarian Cancer Rx | GenomeWeb ow.ly/JB6fN #pfcr
EPatients on the Front Lines: Precision Medicine, the FDA, and Me | Gray Connections ow.ly/JraFK THIS. Exactly this. #s4pm #medx

EPatients on the Front Lines: Precision Medicine, the FDA, and Me

On February 19, 2015, I was an invited patient advocate speaker at the 11th Annual Moores Cancer Center Industry/Academia Translational Oncology Symposium. My topic, “EPatients on the Front L…

grayconnections.net
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Ireland leads a drug breakthrough in fight against MS, Alzheimer’s - IrishCentral.com ow.ly/JdNQH Slainte! #pfcr #s4pm
RT @jimtate: You had me from "tattoo". @MightyCasey + the #ehr that can't be lost. #PatientEngagement #Engage4Health hitechanswers.net/patient-en…
Patients, what can docs do better? Docs, what can pts do to improve their healthcare? Share in #LCSM Chat 2/12 8PM ET wp.me/p3YWzz-bu
Sequence your microbiome ow.ly/IkVOi THIS is interesting. Not genome, but biome. #pfcr
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New Technique Allows Bioengineers To "Reprogram" Genetic Code ow.ly/I9dpL GeekTASTIC! #pfcr #science
RT @lawaghorn @ABC7News @DougHillABC7 432 people died EACH YEAR fm measles 1958 -1962. 1,700+ people that didn't 'fight it + live'
Three Recommendations for President Obama’s Precision Medicine Initiative ow.ly/I3krW YES, PLEASE. #pfcr #s4pm
#LCSM chat Thursday 1/29 at 8PM ET/5PM PT: "How do patients decide where to seek cancer treatment?" ow.ly/I2HiD
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