Mam to a unique teenager 😎❤ Wife to a husband who doesn't get Twitter 💑 Pet... Gwen 🐶 Mostly fuelled by caffeine ☕
Dublin, Ireland
Joined September 2009
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It can be so difficult to let people know how hard life is without adequate Adult Disability Services,while keeping Matthew's privacy & dignity at the same time. M has needed 4 changes of clothes today.I'm sure you can imagine why!I've done this alone.I can't ask M to try to...
Avril Bán-Dearg 🎀 retweeted
#StormIsha
A scene has been made safe after a shed was lifted 20 feet into the air over a wall by high winds.
Firefighters from Tara Street fire station were called to the incident off Kevin Street.
Avril Bán-Dearg 🎀 retweeted
This is a personal callout on behalf of Sean.
On Sunday he was taking part in an @IrishWheelchair 'run n Roll' event in St Anne's Park in Raheny. Having done 2.5k of 5 he overtook someone and fell out of his chair sideways. He was on his @BatecMobility device.
He was attended to by @orderofmalta who were on site but also by a really nice guy from Artane called Oliver (or as he introduced himself to Sean as Ollie). He had just qualified as a nurse 2 days previously and is based in Beaumont Hospital.
Sean would love to be able to contact Ollie. If anyone knows him please let us know. Please RT
@rteliveline @ClassicHitsRdio @LouPhelan @mulvanypeopleb1 @adayinmywheels @LunchtimeLiveNT #healthcare
Avril Bán-Dearg 🎀 retweeted
🚨More out today! Ungrads failing!
@IrishRail @TFIupdates @EamonRyan @AnneRabbitte @InclusionIre @RBoydBarrett @mulvanypeopleb1 @DisabilityFed @AsIAmIreland @CarersIreland @fussireland @struggleiswheel @IrishWheelchair @centralremedial @ILMIreland @adayinmywheels @WaterfordDN @IrelandPhysical @fussireland
Avril Bán-Dearg 🎀 retweeted
We hope you can support our protest on Monday. In a week with exams results out, children starting schools. We are once again left battling for our children/ adolescents. It has to stop.
Avril Bán-Dearg 🎀 retweeted
1/ Yet another disappointment today when we went to Tramore beach while on holidays in Co. Waterford. We didn’t have internet access to book the beach wheelchair & it wasn’t possible to book by phonecall. We got through to the girl in charge & she said only one client per day.
Avril Bán-Dearg 🎀 retweeted
A group of families of young people with intellectual disabilities have staged a protest at Leinster House over a lack of day services
rte.ie/news/2023/0825/140171…
Avril Bán-Dearg 🎀 retweeted
Great turnout today, we have just found out that there are another 9 children involved from St Michael’s House on the Southside. That is 22 young people with no adult services. On a day with the leaving cert results out, shame on our services and government.
Avril Bán-Dearg 🎀 retweeted
Today #AccessForAll were into support @StMichaelsHouse Raheny as they protested the fact 13 students who are finished their 2nd level education have no where to go and no supports now they have crossed into #adulthood.
Another glaring #inequality that #society cannot ignore anymore! As you get older as you try to live your life as a person with a disability your support network is taken away from you and you are #abandoned.
#EnoughIsEnough
ALT Group of disability activists protesting outside the dail.
ALT Bernard chatting to RTE
ALT Families hold up pictures of the children who are being abandoned.
ALT Bernard and one of the organisers of todays rally.
Avril Bán-Dearg 🎀 retweeted
June 2021 Jack waited 8 months for an adult place, his bestie in 2022 only got a place now and this year his friends from @StMichaelsHouse Baldoyle , along with others from Raheny school don’t have any place. Saying you thought it was sorted @AnneRabbitte isn’t good enough
Today #AccessForAll were into support @StMichaelsHouse Raheny as they protested the fact 13 students who are finished their 2nd level education have no where to go and no supports now they have crossed into #adulthood.
Another glaring #inequality that #society cannot ignore anymore! As you get older as you try to live your life as a person with a disability your support network is taken away from you and you are #abandoned.
#EnoughIsEnough
ALT Group of disability activists protesting outside the dail.
ALT Bernard chatting to RTE
ALT Families hold up pictures of the children who are being abandoned.
ALT Bernard and one of the organisers of todays rally.
Avril Bán-Dearg 🎀 retweeted
Thank you so much for your support today. For anyone asking about my #edfringe show, my one woman play is ‘Sunsets’. It’s about rom coms but also family. I’d love to have you there. I’m performing until the 27th at @Gildedballoon at 12.20pm. Thank you xx tickets.gildedballoon.co.uk/…
Avril Bán-Dearg 🎀 retweeted
Please please spread the word about the Elephant in the room project. It is all about mental health. I was so honoured that President Michael D signed the Elephant for the Samaritans and for me. There will be twenty elephants and hopefully this project will raise lots of money.
Avril Bán-Dearg 🎀 retweeted
We just had a horrendous experience in Dublin Airport
@Ryanair closed the doors to our flight in front of our face. People had walked through seconds earlier. We explained that we our four year old is autistic and needs to get on the plane last. Right as we were about to board he needed to pee. Then he lost his important flyer lanyard and we were looking for it. Staff didn’t care and kept repeating that it was closed. Nobody had even been allowed onto the plane at this stage and were all still queuing. We begged and pleaded to let us on. My poor son was having a meltdown because he was ready to get on the plane.
How can @Ryanair treat an autistic child with such a lack of understanding or empathy
The staff in @DublinAirport are all angels! They were AMAZING – at Fingal, Ireland
Avril Bán-Dearg 🎀 retweeted
I’d like to get a bespoke bike made for Jack so that I could take him to the canal & on the greenway. It would have to have electric assist. I would want to carry him behind me in his own wheelchair or preferably buggy as he has a hood/ sun canopy to protect him. Similar to pic.
Avril Bán-Dearg 🎀 retweeted
This could be my son next year scandalous no place for an 18 yr old with #DownSyndrome after finishing school @OCallaghanCian @sean_haughey @AodhanORiordain @RichardbrutonTD @DMitchellTD shameful treatment of our children @HSELive @StMichaelsHouse @josephamadigan @AnneRabbitte 🧵 – at Dublin City, Ireland
Avril Bán-Dearg 🎀 retweeted
How is it okay to expect an exhausted parent to spend 3 hours a day driving her disabled adult son to a day service? @DonnellyStephen @rodericogorman @AnneRabbitte @CarersIreland
Once again, those with the highest support needs are neglected and ignored. With @Pink_Avvy
ALT Words pic: After a year of battling, and a false start, we've found an Adult Day Service for M. He's doing well, doing short settling-in days. However, it's a 40 minute drive away, which is gonna be tough for me 4 times a day. I'm trying to get transport for him. But it's very scarce! Especially for someone complex like M, as he needs an escort too. Transport used to be ok in most areas, but they seem to be having a real crisis now. It's sad, cos it's important for independence. And we need it too. They're putting school leavers and families in such a tough position with the lack of transport now. It's like you should be so grateful to get a day service place at all. I'm going after them for it, cos I can't be on the road almost 3 hours a day!
Avril Bán-Dearg 🎀 retweeted
It’s that time of the year again when people caring receive the respite care grant.
Every year we get the headlines and we are supposed to feel grateful but if we look at the detail for just a carer.
Carers €236pw = €12,272py
Domiciliary €320pm = €3,840py
Respite grant €1,850py
TOATL = €17,962
PUP - €350 “the minimum needed to survive” as set by Gov in 2020
= €18,200
Without any added supports we are €238 below what was deemed the min needed to survive in a #CostOfLivingCrisis and government commissioned its own report which is online and it states people living with a disability in their lives need on average between €9,482-€11,734 more per year then those people who do not have disability in their lives just to survive, and still we see no action taken.
#DisabilityTwitter #DisabilityPoverty
#CaringPoverty
@LeoVaradkar @MichealMartinTD @EamonRyan @HHumphreysFG @InclusionIre @DisabilityFed @IrishWheelchair @ILMIreland @TomClonan @COLCIreland @fussireland @CarersIreland
jrnl.ie/6082483
Avril Bán-Dearg 🎀 retweeted
Ava Barry, the daughter of medicinal cannabis campaigner Vera Twomey, has died aged 13 jrnl.ie/6079392t
