MND warrior. Raising awareness of MND, let's find a cure! #MND #ALS Pittsburgh Penguins fan 🖤💛 #LetsGoPens
Runcorn, England
Joined November 2017
- Tweets397
- Following247
- Followers250
- Likes4.6K
Rob lost his battle with MND on the 19/11/2023 but asked for this account to remain in his memory to raise awareness.
Rob Barrie retweeted
We do $85 hockey mystery jersey boxes.
You get ONE random jersey in the mail in your size.
RT this tweet if you want to WIN a free one.
DM us if you want to learn how to buy one on Thursday during our drop.
If I could walk/run then yes possibly it would.
But considering that I can't do either, this post by yourselves doesn't help my mental health one bit.
This post is appalling @mndassoc sort it out! 😠
This quoted post is unavailable.
I made my first TikTok, showing how I play on my Xbox with Motor Neurone Disease (ALS) - check it out!
Likes, comments and follows are appreciated.
tiktok.com/@robbarrie389/vid…
As some of you may know, there has been a big update in regards to my missing hockey sticks 😆 they have been located and I should have them back before Christmas!! A big thank you to everyone for all your support, I really don't think I'd get them back without you all!
🖤💛
There’s a happy ending to this story! liverpoolecho.co.uk/news/liv…
Absolutely devastated at the news of Doddie Weir's passing, after a courageous battle with Motor Neurone Disease. My deepest condolences to his friends and family. 💙🧡
Fly free big man... 💔
ALS / MND Is heartbreaking 💔
A pioneer to hockey, A legend to the NHL and to us all.
Börje lost his life today to ALS, rest in peace Börje Salming.
💙🤍
Rob Barrie retweeted
🚨AUTHENTIC JERSEY GIVEAWAY🚨
With the Hockey season around the corner @HockeyTomorrow is giving away any authentic hockey jersey of your choice. 🏒
To enter:
1. Follow @HockeyTomorrow
2. Like & Retweet this tweet.
3. Reply with your size & player you want!
Good luck! 🤝
Join us in wishing a very Happy 40th Birthday to @Rob7Burrow 🎂
🏆Grand Final winner x 8
🏆Challenge Cup winner x 2
🌎World Club Challenge winner x 3
🥇League Leaders winner x 3
🏅Harry Sunderland award winner x 2
#OneRobBurrow
This is me trying out Para Ice Hockey or Sled Hockey back in 2019 with @MancMayhemPIHC it was a great experience and I had a great time too!
What an experience! Could I do this, possibly maybe @penguins ?? 🙏 🖤💛
3 years ago, I went on a river cruise aboard a steam boat built in 1903 which is nicknamed "The Danny" at the end of the cruise I was invited to join the boats crew and captain for a group photo, the captain gave me his captain's hat for which made a good photo! ⚓ #memories
