Ruth (@Ruth2729) header
Ruth (@Ruth2729) profile picture

Mother of autistic learning disabled son failed by a broken mental health system. Now free from Carstairs - Will not stop until I get my boy home🏡❤️

Joined September 2020
Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)Photo by Ruth (@Ruth2729)
Today is my autistic son's 23rd birthday. 4th birthday I haven't seen him. 4th year he has spent alone in a room, heavily drugged lying under a blanket distressed and distraught. Hope he got his card, as I have no contact at all. Love and miss you son. Will never give up on you.x
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Ruth retweeted
Replying to @Telegraph
Once a diagnosis is written in a chart, every new provider reads it first. That's how one mistake follows a person for years. A real second opinion should be a right, not a privilege.
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"The cement walls surround a room the size of a parking space, and the only furniture is a mattress on the floor. Because the lights are on 24/7, I have no idea whether it’s day or night. Every so often, a hatch will open and someone will pass me some food or a pill. It’s like being buried alive. "I am not in prison, but sectioned in a psychiatric unit, where people are “taking care” of me." "During my four years of psychiatric misdiagnosis, doctors filled me with drugs that made me dribble and twitch. The only way I was able to leave the NHS mental health system was to literally escape and run away to another country." Read Alexis Quinn's full story below ⤵️ telegraph.co.uk/health-fitne…
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Piia shares some of her insights into the debilitating effects of psychiatric drugs and how these are all too often misdiagnosed as another mental health problem.
The Long-Term Effects of Antidepressants w/ Professor @joannamoncrieff youtu.be/oln9GCALkOM?si=0IGs…
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The @MHRAgovuk has announced new safety measures for antidepressants, strengthening warnings about suicidal thoughts and behaviours. For Stephen’s Voice, this is deeply personal. We have spent years campaigning to raise awareness of the fact that antidepressants and similar medications can, in some people, actually trigger suicidal thoughts and behaviours…..the very opposite of what most people would expect from a medication intended to help them. Our beloved Stephen died on 29 July 2016. His death changed our family forever. Since then, we have fought for greater understanding of prescribed harm, clearer warnings and the right of every patient to make informed decisions about their treatment. 💜 BUT WHAT DOES THIS WARNING ACTUALLY MEAN? It means that antidepressants, even when taken exactly as prescribed, can cause suicidal thoughts and behaviours in some people. A person can follow their prescription, take the recommended dose and do everything they have been advised to do, yet still experience this serious adverse reaction. We welcome this strengthened warning and improved patient information in the UK - including the long overdue recognition of persistent sexual dysfunction that can occur, even when treatment is stopped. Post SSRI Sexual Dysfunction (PSSD) is now also included in the patient info leaflets. A massive well done to everyone who has helped bring about this important step and push it forward! This is precisely the kind of progress Stephen’s Voice has been pushing for here for years. Yet, despite meeting with politicians and representatives on numerous occasions, alongside other families affected by prescribed harm, we are still waiting for meaningful action that matches the urgency of this issue. We need more than meetings, sympathetic words and promises. We need action, transparency and better communication of medication risks across the island of Ireland as our suicide rates continue to soar. No warning can bring Stephen back. But better information and appropriate safeguards could help others recognise a serious adverse reaction and prevent further tragedy. People deserve to know the risks BEFORE it is too late so they can make informed decisions and also recognise warning signs and seek help. For Stephen. For every life lost. For every family still searching for answers 💜 #StephensVoice #PrescribedHarm #PatientSafety #SuicidePrevention
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With millions of people taking psychiatric drugs, it's clear not everyone will experience violent or suicidal reactions when taking them. But what drug regulatory agency warnings confirm, is that a percentage of the population will. Of nearly 410 psychiatric drug warnings, 27 warned of violence, aggression, hostility, mania, psychosis or homicidal ideation; 49 warned of self-harm or suicide/suicidal ideation; 17 were for addiction or withdrawal effects; and 27 were linked to Serotonin Syndrome found in antidepressant use and marked by symptoms that include agitation, restlessness and confusion. Professor David Healy a leading psychopharmacology expert and Professor of Psychiatry at Bangor University in Wales said, “Violence and other potentially criminal behaviour caused by prescription drugs are medicine’s best kept secret.” #MentalHealthMatters #MentalHealthAwareness #MentalHealth #psychiatry #psychiatrist #antidepressants #prescribedharm #SSRIs
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I am going to take a little break from X for a while, but before I do, I wanted to leave something behind. When the System Becomes the Harm I wrote this after years of trying to navigate courts, complaints, regulators, health and social care systems, and asking what happens when the very structures created to protect vulnerable people begin causing harm of their own. This is not only about one family or one case. It is about access to justice, accountability, the power of professional narratives, the exhaustion of endless procedures, and what happens when families spend years trying to get somebody, anybody, to look at the whole picture. One sentence in it probably explains why I wrote it: “Justice should not depend upon who can survive the bureaucracy longest.” I hope people will read it, reflect on it and, if they feel able, share their own experiences too. Too many people go through these systems believing they are alone. They are not. Sometimes speaking is the beginning of accountability. For now, I am taking a little time away. Please read, reflect and share if you think it matters. ❤️ docs.google.com/document/d/1…
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Ruth retweeted
New allegations of abuse, stealing and sexual assault at homes run by the Blue Ribbon Healthcare Group, a private care company for people with learning disabilities, have been uncovered by ITV News Investigations Editor @DanielHewittITV itv.com/news/2026-09-28/stea…
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‘Retired NHS psychiatrist Peter Scott-Gordon wrote he had personally experienced akathisia & suicidal ideation as a direct consequence of trying to come of an SSRI..people contacted him on a regular basis to share similar experiences, several of whom later took their own lives.'
What is the purpose of medical journals? You may be told that they exist to communicate, validate, and preserve medical knowledge. In reality, medical publishing is about earning money, saving prestige and avoiding upsetting the drug industry. buff.ly/29zsvDC
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Ruth retweeted
NHS 'unable to treat and look after' people with learning disabilities, says care commission chair The NHS is failing people with learning disabilities and hospitals are “unable to sufficiently treat and look after” them, says Baroness Louise Casey, the head of the government’s commission into adult social care, as ITV News Investigations Editor @DanielHewittITV reports itv.com/news/2026-09-17/case…
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🌟 I’m honoured to be one of the six finalists for the 2026 ECTA Community Hero Award. I was nominated for the work I continue to do through #MatthewsCampaign—fighting for truth, accountability and safer mental-health care following the death of my son, Matthew. This campaign was born from heartbreak, but it continues because families deserve answers, patients deserve protection, and preventable deaths must never be accepted. Nearly 100 people were nominated, and the winner will now be decided by a public vote. If you believe this work matters, I would be incredibly grateful for your vote. 🗳️ Please vote for Melanie Leahy here: docs.google.com/forms/d/e/1F… Please also share this post—every vote and every share helps Matthew’s voice reach further. The campaign is not over. I will keep fighting. ❤️ #MatthewsCampaign #CommunityHero #ECTA2026 #MentalHealthReform #PatientSafety #JusticeForMatthew
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Ruth retweeted
Let that sink in. Akathisia is the worst condition imaginable, and the only way to get it is via a doctor and prescribed medication. Isn't that the true definition of insane?
Not only is it the worst the only way to get it is from medication. You’re not born with it. It’s not contagious. It’s an injury that you can’t get it from assault or an accident. The only way to get it is from a doctor who after he causes it can’t even recognize it
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'Graeme Irvine, the Senior Coroner for East London, said it was like "ground hog day" as he heard evidence of "the same" errors, "over and over again," including the falsification of patient observation records and slow emergency responses.'
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Ayla's final diary entry.
A post was shared recently on a mental health forum about a nurse struck off after someone died in their care.
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Let's talk about the #NHS and what happens when you dare to complain. Because this is something people need to understand. I didn't complain because I was bored. I didn't complain because I had nothing better to do. I didn't complain because I wanted a fight. I complained because my daughter was being harmed. I saw things happening that I believed were wrong. I raised concerns. I questioned decisions. I challenged a professional. Because that's what you are SUPPOSED to do when you believe a vulnerable person isn't being properly protected. Except apparently there is a massive difference between telling people to " speak up " and actually having the audacity to SPEAK UP. Because once I did? Everything changed. Instead of simply dealing with the concerns I had raised, I became the concern. Think about that. A mother raises concerns about what is happening to her vulnerable daughter... and suddenly the spotlight turns onto the mother. My behaviour. My credibility. My motives. My questions. My complaints. My refusal to shut up. Apparently that was easier to investigate than the original problem. And THIS is what makes me so angry. Because when you're dealing with a huge organisation like the NHS, they have the power. They have the professionals. They have the records. They have the lawyers. They have the complaints departments. They have the language. They have the institutional power. And what does a parent have? Their voice. So when that parent uses the only weapon they have, their voice, why does the system seem so determined to take that away from them? I was not asking for special treatment. I was asking for my concerns to be properly investigated. I was asking people to listen. And instead I found myself fighting a system that seemed far more interested in dealing with ME than dealing with what I was raising. That is the part I will never forget. Because once you've experienced it, you see the complaints system very differently. You realise that " please complain if you're unhappy " sounds wonderful until you actually make a complaint that someone doesn't want to hear. Then suddenly you're difficult. You're challenging. You're unreasonable. You're the problem. No. I was a mother trying to protect her daughter. And I make absolutely no apology for that. If my refusal to stay quiet makes me " difficult, " then so be it. If asking questions makes me " difficult, " then so be it. If refusing to accept answers I believe are inadequate makes me " difficult, " then I'll happily wear the fooking label. Because my daughter's welfare matters more to me than making professionals comfortable. And here's my message to the NHS: Don't tell families to speak up if you're going to punish them for doing it. Don't tell us complaints are welcomed if what you really mean is, " We welcome complaints that don't make us uncomfortable. " Don't tell us patient safety comes first if the person raising a patient safety concern ends up being treated like the problem. And don't expect me to quietly disappear because the system has made it exhausting to keep fighting. I'm still here. I'm still asking questions. I'm still documenting what happened. I'm still challenging what I believe was wrong. And I'm still speaking. Because my daughter deserved better. And frankly? So does every vulnerable person whose family has the courage to say: " Something isn't right here. " Maybe the NHS should stop asking, " Why won't this parent shut up? " And start asking: " Why did we give her something to complain about in the first place? "
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Replying to @ZoeJames2024
The NHS complaints system does not investigate harm. It manages the person exposing it. Records shift, ranks close, reputations are protected and the family is labelled “difficult.” Patient safety ends where institutional embarrassment begins.
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Replying to @ZoeJames2024
You have absolutely hit the nail on the head here. Your message should be sent to every Complaints Department in the NHS. What you have described is exactly our experience and that of so many others. Complainants end up additionally traumatised and dismissed. Nothing changes.
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Replying to @ZoeJames2024
Powerful post. You are absolutely fucking bang on. When the NHS tells families to “speak up” then treats them as the problem, that’s a failure of the system, not of the parent.
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This happened to my family. we spoke out and now recorded as abusive and neglective parents along with violent towards staff who feared us, anyone who knows this knows it’s untrue, rather than deal with the team of arrogant staff from Camhs they attacked us and came after us
Let's talk about the #NHS and what happens when you dare to complain. Because this is something people need to understand. I didn't complain because I was bored. I didn't complain because I had nothing better to do. I didn't complain because I wanted a fight. I complained because my daughter was being harmed. I saw things happening that I believed were wrong. I raised concerns. I questioned decisions. I challenged a professional. Because that's what you are SUPPOSED to do when you believe a vulnerable person isn't being properly protected. Except apparently there is a massive difference between telling people to " speak up " and actually having the audacity to SPEAK UP. Because once I did? Everything changed. Instead of simply dealing with the concerns I had raised, I became the concern. Think about that. A mother raises concerns about what is happening to her vulnerable daughter... and suddenly the spotlight turns onto the mother. My behaviour. My credibility. My motives. My questions. My complaints. My refusal to shut up. Apparently that was easier to investigate than the original problem. And THIS is what makes me so angry. Because when you're dealing with a huge organisation like the NHS, they have the power. They have the professionals. They have the records. They have the lawyers. They have the complaints departments. They have the language. They have the institutional power. And what does a parent have? Their voice. So when that parent uses the only weapon they have, their voice, why does the system seem so determined to take that away from them? I was not asking for special treatment. I was asking for my concerns to be properly investigated. I was asking people to listen. And instead I found myself fighting a system that seemed far more interested in dealing with ME than dealing with what I was raising. That is the part I will never forget. Because once you've experienced it, you see the complaints system very differently. You realise that " please complain if you're unhappy " sounds wonderful until you actually make a complaint that someone doesn't want to hear. Then suddenly you're difficult. You're challenging. You're unreasonable. You're the problem. No. I was a mother trying to protect her daughter. And I make absolutely no apology for that. If my refusal to stay quiet makes me " difficult, " then so be it. If asking questions makes me " difficult, " then so be it. If refusing to accept answers I believe are inadequate makes me " difficult, " then I'll happily wear the fooking label. Because my daughter's welfare matters more to me than making professionals comfortable. And here's my message to the NHS: Don't tell families to speak up if you're going to punish them for doing it. Don't tell us complaints are welcomed if what you really mean is, " We welcome complaints that don't make us uncomfortable. " Don't tell us patient safety comes first if the person raising a patient safety concern ends up being treated like the problem. And don't expect me to quietly disappear because the system has made it exhausting to keep fighting. I'm still here. I'm still asking questions. I'm still documenting what happened. I'm still challenging what I believe was wrong. And I'm still speaking. Because my daughter deserved better. And frankly? So does every vulnerable person whose family has the courage to say: " Something isn't right here. " Maybe the NHS should stop asking, " Why won't this parent shut up? " And start asking: " Why did we give her something to complain about in the first place? "
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#OliversCampaign When Oliver had an EEG his dad joined in the fun Look how bright Oliver’s face is with that beautiful smile What unfolded next & what was done to him was barbaric After being administered antipsychotic medication for no legitimate reason he became unrecognisable
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