Independent organization of sickle cell stakeholders representing patients, caregivers and healthcare professionals
Hackensack, NJ
Joined July 2016
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- Following567
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SickleCellForum retweeted
🎉 Join Us at the Campus Carnival! 🎉
🗓 Date: July 17, 2024
📍 Location: Warrior University at The Westin Atlanta Perimeter North
Do you remember orientation at school? Well, this is going to be even more fun for the whole family! 🎓🎈
🌐 Learn More: sicklecellconvention.org
SickleCellForum retweeted
We want to offer you a chance to participate in our 🌏World Sickle Cell Day Talent Show 🎭. Please submit a 4 minute 📹video or less showcasing your talent🎤. Videos are excepted from participants across the globe.🗺️
🔗 Sign up for talent show: docs.google.com/forms/d/e/1F…
SickleCellForum retweeted
🏆 Kyrelle Lammy, an 11-year-old Coventry talent battling #sicklecell anaemia, clinches Disability Champion & Best Supporting Actor awards!
🎭 From Stage Coach at 4 to PQA Coventry training, Kyrelle's star is rising in TV, stage, and beyond!
rb.gy/zlb61i
#SCMidwest
SickleCellForum retweeted
We have a few action-packed days ahead of us! Your health and safety are our top concern. Take breaks if you need to and stay hydrated. If you need help during the week, don’t hesitate to reach out to a staff member or volunteer for assistance. #SCDCommUNITY #SCDAA23
SickleCellForum retweeted
Another great conference not to be missed! This one is extremely special as it focuses entirely on #Sicklecelldisease and #Thalassaemia. Thanks to @ascatconference founder @PdbInusa & @ERNEuroBloodNet. Patients are given the opportunity to share and be involved properly!
SickleCellForum retweeted
Dominic Goodson is a sickle cell warrior, advocate and president of @SCDForum.
After being diagnosed with sickle cell anaemia at age five, Dominique has learned to manage her condition and uses her experiences to advocate for people with sickle cell. 🧡
ow.ly/SUvj50P3eZB
SickleCellForum retweeted
With God and Us by your side we are committed to this cause
World Sickle Cell day 2023
#WorldSickleCellDay
#EkitiSCDWalk2023 – at Ekiti, Nigeria
Today, we honor the warriors who battle sickle cell disease with grace and determination.
It is a day to raise awareness, show support, and celebrate the incredible strength and resilience of individuals and families affected by this condition.
#WorldSickleCellDay
SickleCellForum retweeted
Happy #WorldSickleCellDay2023! @ERNEuroBloodNet has prepared a special newsletter gathering all the actions developed on the #ERN to raise awareness & support #SCD patients!
Take a look: eurobloodnet.eu/newsletter/b…
#WSCD23 #SickleCellAwareness #WorldSickleCellDay #ERNeu #HealthUnion
SickleCellForum retweeted
We are currently hearing from #SickleCellWarrior, Concy Bwomono from Sweden! Concy Bwomono is speaking on support and treatment of #SickleCell as a Kronisk Blodsjukdom (Chronic Blood Disease) in Sweden. Join us on ZOOM by registering at tinyurl.com/wscd22register!
SickleCellForum retweeted
In preparation for World Sickle Cell Awareness Day @AuSickle will host a virtual event Sat 11th June at 5pm.
We are discussing our Newborn Screening Application and the way forward.
Register via this link to join.
us06web.zoom.us/meeting/regi…
SickleCellForum retweeted
"What patients are looking for from providers is accountability. They want to know they are listening to them & taking action based on what they are hearing." - Eric Sid @ncats_nih_gov #GGHealthEquity #CareAboutRare #RareDisease
SickleCellForum retweeted
Unable to attend the #GGHealthEquity Summit, or want more information? Check out the toolkit - Diversity of Odysseys: The Diagnostic Challenges of Underserved People with Rare Diseases #CareAboutRare #RareDisease
globalgenes.happyfox.com/kb/…
SickleCellForum retweeted
"Equity is not an outcome. Equity is an assurance." Monica Webb Hooper, PhD. @GlobalGenes RARE Health Equity Summit #GGHealthEquity – at Philadelphia, PA
SickleCellForum retweeted
What a day we had at the 49th Annual @SCDAAorg Convention. Congratulations and a job well done to our very own Dr. @whittenshurney. She had two very informative lectures on Sickle Cell Disease and Sickle Cell Trait. Day 2 starts in the morning, will you join us? #SCD2021
SickleCellForum retweeted
SickleCellForum retweeted
Do you have questions about the 8th Annual Warrior Convention? We have answers! Today from 11:00am - 3:00pm EST we will have a help desk open to answer any and all of your questions. Please join us by registering at sicklecellconvention.org!
#WarriorsConvention21
#SC3WC21
SickleCellForum retweeted
It's time to get jammin in the jamboree with Dr. Tomia Austin of the @AsOneFoundation! Let's get it started in here for #WorldSickleCellDay and have some FUN! Don't forget PRIZES will be awarded throughout the next 24 hours and the agenda is JAMMED PACKED:tinyurl.com/wscd21
SickleCellForum retweeted
TODAY is World Sickle Cell Day! Sickle Cell Community Consortium and Cayenne Wellness are inviting YOU to our FREE 24 HOUR VIRTUAL CELEBRATION! Please register here: tinyurl.com/wscd21
SickleCellForum retweeted
The SCD Coalition is pleased to announce the launch of the new SCD Therapy Fact Sheets! These fact sheets empower warriors and caregivers with vetted information on three #sicklecell therapies available in the U.S.
Explore these fact sheets today: bit.ly/SCDfactsheets
