SCTPN is a Brooklyn, NY based NPO with a global reach. With #1ViralVoice we speak for #sicklecelldisease.
1139 St. John's Place, Brooklyn, NY 1121…
Joined March 2013
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SCTPN retweeted
Happy Black History Month Queens! Honored to work alongside you all and continue to encourage and inspire our next generations of leaders. We are our ancestors wildest dreams and their hopes and aspirations!
We are #BlackGirlMagic. A blessing and honor to serve with my Sisters in Government. #SheReady #BHM ❤️💚🖤
SCTPN retweeted
BREAKING: Watch the exact moment Fox News reveals to their audience that Vice President Kamala Harris has completely eliminated Donald Trump’s lead in the polls. This has the Trump campaign in pure panic. Retweet so all Americans see this.
SCTPN retweeted
On this week’s episode, Dr. Z and Dr. C sit down with Dr. Alex Glaros, a rising star in sickle cell disease, who shares his story about his journey to become a pediatric hematologist. Listen here: bloodstreammedia.com/cheat-c…
SCTPN retweeted
Young adults with #SickleCell with a delay of over six months, were twice as likely to be hospitalized than those who switched in under two months. sicklecellanemianews.com/new…
SCTPN retweeted
@statnews reveals a disturbing trend of #SickleCell patients pressured into sterilization. These women deserve bodily autonomy and informed choices about their #reproductivehealth.
#HealthcareEquity
#coercivecare
#coercivesterilization
#STATnews
Series: statnews.com/2024/05/21/sick…
SCTPN retweeted
Everyone in the sickle cell community we want to offer you a chance to participate in our World Sickle Cell Day Talent Show. Please submit a 4 minute video.
Our extended deadline is 6/12 @ 11:59 pm ET. Any talent is welcome!
docs.google.com/forms/d/e/1F…
#sicklecell #sicklecellevent
SCTPN retweeted
JCRC quick facts you need to know about Sickle Cell Disease (SCD). #ACentreOfExcellence
SCTPN retweeted
On this #NationalDNADay, we celebrate the advancements in #geneticresearch that shape our understanding of inherited conditions like #SickleCellDisease (SCD).
We also honor the resilience of those living with SCD & the incredible strides made in education and awareness of #SCD.
SCTPN retweeted
We hope this motivates you to keep going and remember that sickle cell does not define you.
Save this for later and tag a sickle cell warrior to see this.
#SickleCellProdigy #SickleCell #SickleCellWarrior
SCTPN retweeted
“About 1 in 3 black donors will match a patient with sickle cell disease”
#SickleCellProdigy #SickleCell #BloodDonation #BlackBloodDonors
SCTPN retweeted
Children with sickle cell anemia are vulnerable to serious infections and stroke, but many do not receive the preventative care that could help them stay healthier for longer, a Children's Hospital Los Angeles study found: news-medical.net/news/202403…
SCTPN retweeted
This National Public Health Week 2024 we're focusing on new tools and innovations! Discover how an innovative EHR tool enhanced the delivery of consistent timely care for those with SCD here: bit.ly/3TKqhn3
SCTPN retweeted
Our Patron, and UK's first sickle cell and thalassemia nurse specialist, is urging the SCD community to send comments to NICE by next week 💪 Please get involved
This Post is from an account that no longer exists. Learn more
SCTPN retweeted
Disappointed by NICE's draft decision on Exa-cel gene therapy for sickle cell. With @AnthonyNolan, we urge NICE to reconsider. Share your views in the consultation by April 11. Let's ensure NICE hears from everyone impacted. Details: ow.ly/s2BS50QT7HJ
SCTPN retweeted
Individuals living with #SCD often overlook infections, despite being the leading cause of death among SCD patients.
Drawing from personal experience, Oluwatosin Adesoya stresses prevention and timely treatment in her most recent column.
Read more here.
tinyurl.com/4trrytw9
SCTPN retweeted
While CRISPR-based gene therapy shows promise for sickle cell disease, pharmaceutical companies are working to create treatments that are simpler to produce and can be accessed by a broader population.
Read more here.
tinyurl.com/4spvrefd
SCTPN retweeted
The transition from Pediatric to Adult Care can be difficult for many young adults, but especially for those with #SCD. This infographic from @oneSCDvoice provides tips for every transition stage:
SCTPN retweeted
Let's pull together for support, understanding, and empowerment! See you there!
📅 Date: Saturday, April 27th!
⏰ Time: 11:30 AM - 1:30 PM PST
📧 Contact: Calvanay N. at the [email protected]
#PullUp #SupportGroup #SickleCellAwareness #YouAreNotAlone
SCTPN retweeted
RHIF is on a mission! We're teaming up with local stakeholders to ensure access to sickle cell services across Busoga. Every child deserves quality healthcare. Join us in spreading awareness and support! @BisangaAtwooki @ddanielroy
@SickleCellMI
#HealthForAll #CommunityOutreach
