Over Sharks and Spiky Objects retweeted
Dr William Weir on how the influence of Simon Wessely and his colleagues created an overriding tendency among doctors to insist that #MECFS is a psychological disorder.
Clip from @hope4mefibroni Collaboration for Change 2026
Over Sharks and Spiky Objects retweeted
Is anyone going to discuss what happened to our T and B cells thanks to Covid? Will this be what makes the medical profession wake up?
This is not weird niche conspiracy theory stuff BTW.
Kent's meningitis outbreak is deeply unusual and defies easy explanation, according to our health and science correspondent.
More here: bbc.in/4smkWCr
Over Sharks and Spiky Objects retweeted
On #LongCovidAwarenessDay the Guardian thought it would post this article, decrying the massive rise in young people off work due to ill health or disability in the last decade....without mentioning covid ONCE
theguardian.com/society/2026…
Over Sharks and Spiky Objects retweeted
British Mums when they enter their teenage child’s bedroom on a weekend morning starter pack:
-*doesn’t knock, enters the room at 90mph*
-*rips open the curtains with remarkable force*
-“Are you still in that bed?”
-“And are you planning on getting up today?”
-“Come on… UP!”
-“You’ve had long enough”
-*refers to the room/bed as a pit*
-“It stinks in here” / “It’s a tip in here”
-“You’re missing the day!”
-“Breakfast is on the table and it’s getting cold” (even though it’s just cereal)
-*aggressively hoovering the landing, occasionally hitting the door*
Over Sharks and Spiky Objects retweeted
WHITE PAPER ALERT:
Specialist SEND support in every school and community gov.uk/government/news/speci…
You can find all the documents here: gov.uk/government/publicatio…
Over Sharks and Spiky Objects retweeted
On SNJ Today: Our first initial overview of the Government's proposals to change SEND— rights are given but more are taken away specialneedsjungle.com/send-… #SaveOurChildrensRights
ALT image shows screenshots from the papers
Over Sharks and Spiky Objects retweeted
Ok, so sales have been ridiculously low for the past few weeks, with social media throttling our reach and fatigue kicking my butt.
So I'm going to practice what I preach and ask for help. Can you give us a boost to help us stay afloat by: placing an order, sharing our posts, or
Over Sharks and Spiky Objects retweeted
‘The education system likes to put children in little boxes and if you don't fit in that box, you get pushed out’
In our special Woman’s Hour episode live from the BBC Radio theatre, 17-year-old Katie shared her experience of navigating the SEND system ⬇️
Over Sharks and Spiky Objects retweeted
We need to get #MyalgicEncephalomyelitis patients out of "chronic fatigue" services and into the hands of ME specialists who have multidisciplinary expertise that's capable of properly responding to a multi-system disease.
Over Sharks and Spiky Objects retweeted
All-Party Parliamentary Group on ME @CMonaghanSNP
Carol Monaghan, who was MP for Glasgow West and Chair of the APPG on ME, has lost her seat in the general election.
This means that we will now have to find another MP who is willing to take on this role and re-establish the APPG on ME.
With @actionforme and the @MEAssociation forming the APPG Secretariat, I will be discussing the way forward with AfME next week.
I would like to express my thanks to Carol for the extremely effective way in which she has chaired the APPG on ME over the past five years and I am very sorry to be no longer be working with her on parliamentary matters.
bbc.co.uk/news/election/2024…
Dr Charles Shepherd (MEA Hon. Medical Adviser)
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #APPGonME
ALT IMAGE DESCRIPTION: An image of Carol Monaghan with the wording All-Party Parliamentary Group on ME - Carol Monaghan. The ME Association Logo (bottom right)
Over Sharks and Spiky Objects retweeted
Brianna was addicted to social media: teens need online protection - today's front page from The Independent 📰
You can download a digital newspaper every morning with a subscription to Independent Premium
Subscribe here 👉 bit.ly/3Q6bzWD
Over Sharks and Spiky Objects retweeted
Article placing profiteering from quack treatments to people with ME/CFS, and the BBC program's promotion of quackery, in the wider context including the history, lack of any effective treatment and very low research funding.
skeptic.org.uk/2024/02/drago…
#MEcfs #CFS #PwME
ALT Dragons’ Den’s uncritical promotion of ear seeds is an insult to ME/cfs patients like me By Sorrel Kinton 7th February 2024
Over Sharks and Spiky Objects retweeted
Highlights the NEED for VERY public apology @BBCDragonsDen
“The harm being done by platforming businesses like #AcuSeeds goes beyond parting desperate people from thirty quid they probably don’t have The exploitation in this case is contemptible but the bigger harm is epistemic“
Dragons’ Den’s uncritical promotion of ear seeds is an insult to ME/cfs patients like me | Sorrel Kinton @Sorrelish
The Acu Seeds debacle shows how understandably desperate ME/cfs are - and how vulnerable to misinformation from authoritative sources
skeptic.org.uk/2024/02/drago…
Over Sharks and Spiky Objects retweeted
Guardian letters, linking pupil absence to problems with the schools system: theguardian.com/education/20…
Over Sharks and Spiky Objects retweeted
This wasn’t just a slip of the tongue. These comments by people in positions of privilege and influence reveal deep-seated bigotry and ignorance which cause real harm to disabled children and their parents/carers.
bbc.co.uk/news/uk-england-co…
Over Sharks and Spiky Objects retweeted
Merryn Crofts’ life was cruelly robbed by severe ME. Now her incredible mum is calling for the BBC to take further action on the Dragons’ Den ear seed scandal @MEAssociation @MEActNet
mirror.co.uk/tv/tv-news/my-d…
Over Sharks and Spiky Objects retweeted
The Dragons' Den scandal isn't just some casual cock-up - the dangerous claims play into a wider culture of misinformation about ME that patients and charities have been fighting for decades @DailyMirror @MEActNetUK @MEAssociation
mirror.co.uk/tv/tv-news/drag…
Over Sharks and Spiky Objects retweeted
Editors/producers etc I’m available to write/talk about this issue. My story on the episode was the first to be published (digital spy). I’m an award-winning journo & broadcaster who has ME & specialises in disability.
Holliebfreelance [at] gmail
Please RT ❤️ #pwME #DragonsDen – at East, England
BBC have pulled the AcuSeeds episode from iPlayer! Fantastic news!
Slightly overdue, I might add but let’s celebrate wins when we can get them. Thanks to @MEAssociation, @actionforme & YOU who helped make this happen! #pwME #MECFS
mirror.co.uk/tv/tv-news/brea…
Over Sharks and Spiky Objects retweeted
Why is it OK that the BBC can praise themselves for exposing false medicine claims in one programme but defend themselves for airing false medical claims in another?
Don't they realise that #AcuSeeds is exactly the same kind of scam product that Panaroma investigated?
