A @kidneycareUK @kidney_research research study for UK young adults with #kidney #transplant or #dialysis. Part of @ukrenalregistry & @bristoluni #speakstudy
Bristol, England
Joined November 2015
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Kidney disease is hard for mental health as well as physical health. Following the 2022 launch of our psychosocial manifesto, catch up with what we've been doing this #MentalHealthAwarenessWeek & what we're asking for kidneycareuk.org/manifesto
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Really great presentation by Alex Hamilton @_ajhamilton #Brill2gether and the result of this study is fascinating..
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The #YAKGVirtual schedule looks great, especially looking forward to sharing some @SPEAKstudy data on diversity in CKD among young adults on Sunday.
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We are deeply saddened to announce the death of our founder, Mrs Elizabeth Ward OBE, who died at the age of 93 on Monday 20 July. She dedicated her life to improving the quality of life for kidney patients: kidneycareuk.org/news-and-ca…
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Some exciting news:
⚠️We have ethical approval for #SPEAK2, a 5-year follow up of the original @SPEAKstudy led by @mo_altalib
⚠️ We are currently recruiting to #SPEAKPD, a mixed-methods study exploring the experiences of #youngadults using peritoneal dialysis
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#theSHAREStudy : #researching how children and young adults with a #kidney condition (and parents) are coping during #COVID19
@asdarlington @unisouthampton @UniOfYork @BAPNnephrology
Parent survey: isurvey.soton.ac.uk/37305
Child/Young adult survey: isurvey.soton.ac.uk/37312
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Excited to be able to share the details of our annual residential weekend, funded by @kidneycareuk! This is a FREE weekend for all renal patients between 18 and 30 years of age, and will take place 11-14 Sept. 2020! Please see the poster below for more information!
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Absolutely delighted to say we have been funded by the Bristol Health Research Charity to carry out a @SPEAKstudy 5 year follow up!
bhrcharity.org
@mo_altalib
Looking for patients to help codesign the study @YAKidneyGroup @BRSYoungAdults 👍🏻
Excited to be working with @mo_altalib to undertake secondary analyses and (subject to funding) a 5-year follow up of @SPEAKstudy... How does psychosocial health change over the life course in young adults with kidney disease?
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@SPEAKstudy highlighted the challenges of living with CKD. @YAExpDm we are interested to understand how #dialysis/ #transplant choice selection affects #youngadults psychosocial and mental well-being. We love to hear from @YAKidneyGroup. Email me at [email protected]
Excited to be working with @mo_altalib to undertake secondary analyses and (subject to funding) a 5-year follow up of @SPEAKstudy... How does psychosocial health change over the life course in young adults with kidney disease?
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This sounds like an amazing next step! Quite a few of us (initial participants) are now over 30, and facing some of the same issues, but also a whole host of different ones... – at Manchester, England
Excited to be working with @mo_altalib to undertake secondary analyses and (subject to funding) a 5-year follow up of @SPEAKstudy... How does psychosocial health change over the life course in young adults with kidney disease?
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Excited to be working with @mo_altalib to undertake secondary analyses and (subject to funding) a 5-year follow up of @SPEAKstudy... How does psychosocial health change over the life course in young adults with kidney disease?
The @SPEAKstudy, led by @_ajhamilton, has revealed the stark reality of being a young UK adult on dialysis or with a kidney transplant. Find out more and how it’s enabled more research to start bit.ly/2OVyu9x #renalresearch
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Fantastic lay summary of the results of the @SPEAKstudy led by @_ajhamilton - assessing impact of medical and psychosocial issues on young people with kidney disease @Kidney_Research
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ICYMI on the #AJKDBlog: @Maximal_Change interviews @_ajhamilton on @SPEAKstudy and the impact of RRT on young adults in the UK buff.ly/2K2ChyO
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A new study for young kidney patients (18 to 30) and decision making. If you want to know more contact Sarah Ofori-Ansah @SarahAnsah12 (who has worked at the SKU) via [email protected]
Do also watch the video. vimeo.com/321959132
@YAKidneyGroup may also be interested.
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You can now apply for the Young Adult Weekend!!
Contact this account if you are interested and I will let you know how to apply.
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⚡️ “SPEAK study lay summary” by @SPEAKstudy Did you take part? Check out the results
nitter.gq/i/moments/109886115364…
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It’s taken it’s time! But this really important summary is finished! I took part and I hope other young adults with kidney failure find this helpful 🤷🏻♀️❤️
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Its too late to now decide that our mental health should also be considered when being treated with Dialysis!! It also doesnt help that your postcode determines how well you are cared for!!!!
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Fantastic insight into what it’s really like to have kidney disease as a young adult, presented with a perfect mix of gifs and data! 🤩 #speaksummary #youngadults #chronickidneydisease #chronicillness – at Manchester, England