@SclerodermaRF

Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://xitter.cf/t.co/b5D1YSUThT

 Royal Free Hospital, London
sclerodermarf.blogspot.com/
Joined October 2017
  • Tweets4.4K
  • Following916
  • Followers875
444Media
Happy #WorldSclerodermaDay #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #RareDisease #Autoimmune #LifeChanging #UnknownCause #NoCure #Scleroderma #Raynauds #ConnectiveTissue #Collagen #Arthritis #InvisibleDisability #ChronicPain #DreamSnatcher #SclerodermaAwarenessMonth
Royal Free Charity@RoyalFreeChty29 Jun 2022
Today is #WorldSclerodermaDay. Scleroderma is a rare autoimmune condition that affects the skin and connective tissue and @RoyalFreeNHS runs a special unit to help treat the condition.
Close up of Nicola Whitehall, sat outside in a leafy area, holding two small dogs.

ALT Close up of Nicola Whitehall, sat outside in a leafy area, holding two small dogs.

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SclerodermaRF retweeted
nicola whitehill@cosmicfairy4445h
#RaynaudsAwarenessMonth blog.raynaudsscleroderma.co.… Huge thanks to Dr Kevin Howell and @LouKParker for their dedication and expertise raynaudsclinic.com royalfreecharity.org/donate #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #Raynauds #RareDisease #NoCure
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blog.raynaudsscleroderma.co.… #InvisibleDisabilitiesWeek #Fatigue royalfreecharity.org/donate select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure #UnknownCause #Exhaustion
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#InvisibleDisabilitiesWeek Medical research provides #HOPE royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
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SclerodermaRF retweeted
Scleroderma Forum
@ScleroForumOct 21
Enhance your understanding of #scleroderma with our newly uploaded slide decks and literature highlights. Visit the #SclerodermaForum today to access these free resources: ow.ly/eZSL50ZMy6H
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'Keep researching, never stop, never' 1min 30secs 'Living with a rare disease without a cure, is most character building, that's for sure' : blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #NoCure
World Scleroderma Foundation@WorldsclerofndOct 21
🎬 A Soul in Struggle gives a voice to those living with systemic sclerosis, sharing their stories of courage, resilience and hope. From Venice, a powerful message of awareness. Watch the video and discover more! #IWSF #SystemicSclerosis #ASoulInStruggle
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youtu.be/_GYIZ8Vh4EQ?is=WJUL… 'Keep researching, never stop, never' 1min 30secs @Worldsclerofnd Medical research provides #HOPE royalfreecharity.org/donate royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #NoCure

Docufilm " A Soul in Struggle" Tariler

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

youtube.com
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#InvisibleDisabilitiesAwarenessWeek #Flashback 2017 blog.raynaudsscleroderma.co.… #RaynaudsAwarenessMonth If I had a £ for every time somebody said to me, "But you look so well" #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #SystemicSclerosis #LifeChanging
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SclerodermaRF retweeted
RaynaudsRF@RaynaudsRfOct 15
youtu.be/xLmGIpHvLgM?is=0bmN… What is Raynaud's phenomenon? Watch this comprehensive video to find out! #RaynaudsAwarenessMonth #RaynaudsFreeWorld #BePartOfResearch raynaudsclinic.com
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blog.raynaudsscleroderma.co.… #WorldArthritisDay RIP Anne Mawdsley 😇 royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… Royal Free Charity provides a free Will writing service. I'm honoured to be @RoyalFreeNHS Visionary #SclerodermaFreeWorld #NoCure
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irishtimes.com/ireland/2026/… RIP Niamh 😇 Thinking of Michael and her family and friends at this sad time. 12 years of living with scleroderma having been given a 2 year prognosis when diagnosed. #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #UnknownCause

‘She was my dream girl’: Michael Flatley pays tribute to his wife Niamh O’Brien at funeral Mass

‘I’m looking forward to our next dance in heaven together,’ Flatley says in eulogy in Dublin on Saturday

irishtimes.com
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SclerodermaRF retweeted
Scleroderma Forum
@ScleroForumOct 11
⏰ One week to go! Dr Veronica Batani will join Professors Iain McInnes, Ed Vital, Dr Megan Macleod and Dr Flavia Sunzini at #Cytokines2026 in Glasgow. Together, they’ll explore ‘Unravelling cytokine biology through reverse translation of immune disease therapies,' discussing how treatment insights can deepen our understanding of cytokine pathways and disease mechanisms. 📅 18 October | 13:00–14:30 Don’t miss this expert symposium!
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blog.raynaudsscleroderma.co.… #WorldMentalHealthDay royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
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SclerodermaRF retweeted
Scleroderma Forum
@ScleroForumOct 9
The August edition of our #scleroderma Literature highlights is now available! Discover emerging therapeutic innovation in #SSc all curated in one place. Access for free on the #SclerodermaForum: ow.ly/us6a50ZMy2F
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SclerodermaRF retweeted
nicola whitehill@cosmicfairy444Oct 9
blog.raynaudsscleroderma.co.… #RaynaudsAwarenessMonth royalfreecharity.org/donate Select Scleroderma and Raynaud's royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #Raynauds #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
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SclerodermaRF retweeted
Louise Parker@LouKParkerOct 5
Delighted to have made it into the Mail on Sunday health pages yesterday! Thank you @MeikeLeonard for the interview. Let’s hope we can help more sufferers going into the winter months. raynaudsclinic.com
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SclerodermaRF retweeted
nicola whitehill@cosmicfairy444Oct 3
Woweeee 13 years ago! Still no cure 😱 royalfreecharity.org/donate Scroll down until Scleroderma and Raynaud's option. Leave a gift in your Will : royalfreecharity.org/giftsin… I'm honoured to be a @RoyalFreeNHS Visionary. #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch
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SclerodermaRF retweeted
Scleroderma Forum
@ScleroForumOct 2
Looking to stay current in #SystemicSclerosis research? This month’s #SclerodermaForum Literature Highlights are now available. Access them here: ow.ly/JsKl50ZMy16
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SclerodermaRF retweeted
RaynaudsRF@RaynaudsRfOct 1
October #RaynaudsAwarenessMonth raynaudsrf.blogspot.com/2019… My Raynaud's experience: blog.raynaudsscleroderma.co.… #RaynaudsFreeWorld #Research #Raynauds #BePartOfResearch #NoCure justgiving.com/fundraising/r… #Vasospasm #BlueFingers #BlueToes #Pain #DigitalUlcers #Gangrene #Amputation
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#WorldHeartDay royalfreecharity.org/donate Choose your amount, then click donate now. 'I'd like to donate to a specific appeal or fund' Scroll down until Scleroderma and Raynaud's option OR royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #PAH
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SclerodermaRF retweeted
Scleroderma Forum
@ScleroForumSep 22
The Scleroderma Forum offers over 10 hours of learning from leading scleroderma experts 🧠 Through our library of podcasts and webinars, there are plenty of resources to dive into. Find them all over on our website: 🔗ow.ly/Fk7j50ZPCC4 #Scleroderma #SSc #MedicalEducation
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