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I was thrilled to hear that a recent scan showed my brain tumour area is still looking pretty good. It’s simply amazing to still be here enjoying life! I’m incredibly grateful to the outstanding medical team who care for me so well. Thank you Helen Wheeler, Michael Back, Marina Kastelan and colleagues for your dedicated teamwork. Best wishes to everyone including during our Aussie summer months! @NthSydHealth @Sydney_Uni #glioblastoma #braincancer #Brainstorm

Unfortunately there is a larger volume of quickly growing brain cancer (glioblastoma, IDH WT, unmethylated etc) in my left brain. The prognosis is poor. Whilst some of my recurrent tumour was removed last week, some of it couldn’t be because of its site. While the neoadjuvant triple doses of immunotherapy &/or anticancer vaccination I received may have made a difference in my brain tumour & survival, more work needs to be done in a clinical trial to prove this. Either way, I am proud of the data produced after treatment with neoadjuvant immunotherapy (and recently published in the prestigious journal Nature Medicine) which I hope will make a difference for others. I greatly appreciate the support of all my family, friends & colleagues who have been looking after me so well & the incredible research that has been performed. I hope the latter will change the field & patient outcomes in the not too distant future. @SydneyLHD @Sydney_Uni @NthSydHealth @COBLH @AllenAndUnwin @gmaddox @Channel9 @AllisonLangdon @smh @Dr_Brindha #glioblastoma

Fantastic news!!!!!! Amazingly, my latest MRI brain scan shows no recurrence 10 months since my #glioblastoma presented with a seizure in #Poland. Median time to recurrence is 6 months. I’m extremely hopeful that the novel #neoadjuvant combination #immunotherapy I’ve had & the scientific changes we demonstrated in my tumour post versus pre immunotherapy are being translated into clinical benefit! I’d be thrilled & very proud if this novel approach makes a difference for me & future #brain #cancer patients. Thanks @ProfGLongMIA for devising & facilitating this superb approach & other members of multidisciplinary team including the @MelanomaAus team & other specialists @Dr_Brindha, Helen Wheeler, Michael Back & many others. Well done also to our @MelanomaAus translation research team including @HelenRizos! Special thanks for the ongoing support of my wife Katie, 3 kids Em, Matt & Luce, bro Mark, @subbie & many other family & friends! @SydneyLHD @Sydney_Uni @MelanomaAus @ausoftheyear

How am I travelling? Pretty well. A few minor medical hiccups but nothing too serious. Recent challenges: antiepileptics, prolonged URTI/cough, viscid mucus secretions, semi-blocked ears & dry skin the main ones together with some lack of energy. Some minor abnormalities in blood tests. I have a great team of specialists looking after all aspects of my care! Thank you all and your wider teams very much for all the support & assistance you are giving me to fight this wretched supposedly incurable brain cancer #glioblastoma with world 1st #neoadjuvant combination #immunotherapy & a personalised anticancer vaccine led by @ProfGLongMIA. @ProfGLongMIA & I look forward to seeing many people at Melanoma March at Iron Cove Bay in Sydney this Sunday at 7am to either run/jog the 7k Bay Run or walk 4K. Please register at melanomamarch.org.au (onsite rego unavailable). @MelanomaAus @SydneyLHD @Sydney_Uni