Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised
England
Joined March 2007
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This week I spoke to @JamesTGallagher at @BBCRadio4 about what it is like to be #immunocompromised and #shielding from covid for nearly 1000 days.๐
bbc.co.uk/sounds/play/m001d5โฆ
Here's a ๐งต about why I told my family's story. 1/15 @LUPUSUK @RAIRDA_org #evusheld #Forgotten500k
Shannon Peters Banks retweeted
Many thanks to @mrjamesob for giving a voice to Clinically Vulnerable Families๐๐๐ founder, @lara_wong.
They discussed job losses since the start of the pandemic, air filters and more...
1/
Shannon Peters Banks retweeted
We need multiple Covid preventions & protections URGENTLY. The #Clinically Vulnerable (about a third of the population!) remain at risk. The โCEVโ/immunocompromised remain at HIGH RISK. We need #CleanAir #MasksInHealthcare We STILL need #PrEP #Monoclonal #Antibodies @GwynneMP
Such a great podcast episode - thank you @cathy_finnis for representing us. @cv_cev #cev open.spotify.com/episode/2pAโฆ
Shannon Peters Banks retweeted
๐ Anyone can become Clinically Vulnerable, even a King or future Queen.
๐ต With age, everyone will become Clinically Vulnerable.
๐จ We shouldn't accept missing out on our lives due to "fear". Instead, we must reduce risks so *everyone* can fully live their lives.
ALT Prince William says he missed Paris Olympics because of COVID fears for Kate Prince William has met 2024 Olympians Adam Peaty and Tom Dean, and Paralympians Maisie Summers-Newton and Louise Fiddes, as he visited at Birtley Community Pool in Gateshead. Thursday 3 October 2024 19:44, UK Paris 2024 Olympics Prince William 0:25 Prince William has told some of Britain's top medal-winning swimmers how COVID fears for Kate stopped him going to the Paris Olympics.
Shannon Peters Banks retweeted
๐ฅClinically Vulnerable Families ๐ฅ
Quite a moment as Dr Catherine Finnis take the stand as volunteer deputy leader of CVF.
1/ FOLLOW THIS THREAD
ALT Dr Catherine Finnis swears in
Shannon Peters Banks retweeted
#MasksInHealthcare
CVF members who wore good quality (FFP2/ FFP3) masks were told to remove them by staff who may have been poorly informed.
10/
Shannon Peters Banks retweeted
๐ ๐๐๐ฃ๐ฏ ๐ ๐ฎ๐๐ธ ๐ฃ๐ผ๐น๐น
For those who have worn an FFP3 mask for over 3 hours:
๐ท ๐๐ข๐ท๐ฆ ๐บ๐ฐ๐ถ ๐ฆ๐น๐ฑ๐ฆ๐ณ๐ช๐ฆ๐ฏ๐ค๐ฆ๐ฅ ๐ข๐ฏ๐บ ๐ฏ๐ฆ๐จ๐ข๐ต๐ช๐ท๐ฆ ๐ด๐ช๐ฅ๐ฆ ๐ฆ๐ง๐ง๐ฆ๐ค๐ต๐ด ๐ต๐ฉ๐ข๐ต ๐ฎ๐ข๐ฌ๐ฆ ๐บ๐ฐ๐ถ ๐ฉ๐ฆ๐ด๐ช๐ต๐ข๐ฏ๐ต ๐ต๐ฐ ๐ธ๐ฆ๐ข๐ณ ๐ฐ๐ฏ๐ฆ ๐ข๐จ๐ข๐ช๐ฏ?
2%Yes, breathing issues
2%Yes, skin irritation
28%No, but uncomfortable
68%No, no issues
1,047 votes โข Final results Shannon Peters Banks retweeted
โ ๏ธTRIGGER WARNINGโ ๏ธ
This part has made people cry and vomit. It will bring back emotions and experiences faced by our families.
"Cara's" story was why CVF was needed in August 2020. We wanted to avoid this. We could and should have.
No child should ever carry this burden!
2/
Shannon Peters Banks retweeted
๐จ Do not underestimate the importance of today! ๐จ
CVF are finally able to take our advocacy for #SafeSchools to the next level.
Safety for children, school staff, families, and communities from not just Covid, but *all* airborne contaminants.
@thetuc
1/
Shannon Peters Banks retweeted
THREAD: the summer Covid wave in the UK continues.
Basically, there is a LOT of Covid around and not a lot of other respiratory viruses.
If you have cold or flu symptoms, it's probably Covid.
The latest hospital data from England shows steady, quite high levels. 1/8
Shannon Peters Banks retweeted
Its 2022 again. The mistakes made then being made again.
An innovative company with a solution for the immunocompromised out off due to our lengthy assessment process
Lets start getting this sorted
@GwynneMP @wesstreeting @libdemdaisy @DHSCgovuk @peterkyle @SalBrinton
If you are immunocompromised and live in the US you can now get protective treatments via the pharmacy. We are seriously lagging behind the US and Europe as patients in the UK have been left for 4 years now as they have no protection. @DHSCgovuk @wesstreeting @UK_Life_Science
Shannon Peters Banks retweeted
๐งต The #UKCovidInquiry's first report on ๐ฅ๐ฒ๐๐ถ๐น๐ถ๐ฒ๐ป๐ฐ๐ฒ ๐ฎ๐ป๐ฑ ๐ฃ๐ฟ๐ฒ๐ฝ๐ฎ๐ฟ๐ฒ๐ฑ๐ป๐ฒ๐๐ has been published.
While it addresses many critical areas, it missed significant issues faced by Clinically Vulnerable (CV) families. Hereโs what you need to know...
1/ #CVAwareness
Shannon Peters Banks retweeted
Thanks to @NikolaBrigden @MarkOak04974342 @martin_eve for your relentless efforts in supporting & providing invaluable info for the 1.8m still with no protection from Covid. Also the team who have produced our new website. Thank you @DavidSmithWales for your ongoing support.
Shannon Peters Banks retweeted
Clinically Vulnerability Should Be Added to the Equality Act.
The Covid pandemic has drastically altered the landscape, exposing heightened risks and unprecedented challenges for people who are Clinically Vulnerable.
TLDR: ๐HELP needed 10 & 11๐
#CVAwareness #CVEquality
1/ ๐งต
![CLINICAL VULNERABILITY IS AN EQUALITY ISSUE We are the highest risk of the worst Covid outcomes. Government policy never considered our new needs. 98% of CV people feel healthcare is unsafe [Mar '24] 98% 65% of mask wearers have experienced Mask Abuse [Jan '24] 1 in 5 CV families withdrew children from unsafe schools [Sept '22] 82% of CV households lost work / retired early due to high Covid risks [Mar '24] Clinically Vulnerable Families](https://pbs.twimg.com/media/GPxebOZXkAAWqAb.jpg?name=orig)
ALT CLINICAL VULNERABILITY IS AN EQUALITY ISSUE We are the highest risk of the worst Covid outcomes. Government policy never considered our new needs. 98% of CV people feel healthcare is unsafe [Mar '24] 98% 65% of mask wearers have experienced Mask Abuse [Jan '24] 1 in 5 CV families withdrew children from unsafe schools [Sept '22] 82% of CV households lost work / retired early due to high Covid risks [Mar '24] Clinically Vulnerable Families
Shannon Peters Banks retweeted
๐ฉปJoint and muscle pains occur in 85-90% of #SLE #lupus patients. I just put up an article for patients about the causes and treatments:
๐lupusencyclopedia.com/lupus-โฆ
![Lupus Joint and Muscle Pain [February 2025 Update]](https://pbs.twimg.com/card_img/2115648351127453696/km5oWhkI?format=jpg&name=800x419)
Last week I went to see a specialist in the hospital and like always when Iโm indoors I was in a mask. The first question he asked me was โwhy are you wearing that thing?โ
Would you be offended? I was.
#immunocompromised #cev #lupus
Shannon Peters Banks retweeted
It will be interesting to find out if/how well @AstraZeneca #Sipavibart & @Invivyd #Pemgarda mAbs stand up to the #FLiRT lineages? The #immunocompromised remain at high risk of severe disease consequences. We have not been made a priority - to the detriment of everyone.
