Sick Cells’ mission is to elevate the voices of the SCD community and our stories of resilience.
United States
Joined October 2011
- Tweets3.9K
- Following628
- Followers3K
- Likes3.2K
Sick Cells retweeted
I just presented my comments @ my 1st MOHealthnet Prior Authorization Meeting!😲 Was SUPER nervous but I had 2 Outstanding @SickCells Advocates helping me! Emma Andelson & Mariah Scott!🙌🏿 I stressed the importance of the #patientvoice too!🗣️
#SCDAdvocacy
#SickleCellLifeOfMemej
Sick Cells retweeted
The Finding Equity in Value whitepaper: Racial and Health Equity Implications of U.S. HTA Processes was released and co-created by IVI and @SickCells with the goal of advancing racial and health equity within HTA. #healthequity #minorityhealth ow.ly/jrmX50NNSHo
Sick Cells retweeted
Nevada speaking with @SenJackyRosen office today during the SCD Advocacy Day hosted by @SickCells @SCCConsortium and @SCDAAorg
#MakeSickleCellPolicy
❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️🌙❤️
Sick Cells retweeted
Our President Kevin Wake in DC for Advocacy On The Hill & Rare Disease Week! Patient Advocate & #SickleCell Warrior Kevin, is a reminder that, as he says, We are More than our diagnosis. #SCD is a #raredisease affecting under 200,000 in the U.S.🦓
#RareDC2023
#SickleCellMidwest – at Washington, DC
ALT Photo of Uriel E Owens Sickle Cell Disease Association Of The Midwest President and Sickle Cell Disease Patient, and Patient Advocate, Kevin Wake. He's wearing a gray suit with a blue shirt with a yellow tie with blue spots and wearing a green conference badge around his neck that says, Rare Disease Week On Capitol Hill. In the background stands the Capitol building in Washington DC.
Sick Cells retweeted
Meeting so many dedicated #sicklecell healthcare workers and physicians is the highlight of my week!
Sick Cells retweeted
Thank you so much @biba_tinga for all that you do to support those with #sicklecelldisease #BlackHistoryMonth
The Interdisciplinary Centre for Black Health is bringing to you the first video in the sickle cell awareness series in partnership with SCDAC
#BlackHistoryMonth
youtube.com/watch?v=wP60yUnH…
Sick Cells retweeted
Today Prosecutor Mears attended the @INSickleCell Advocacy Day at the Statehouse. Working alongside our colleagues at the Statehouse, we will continue to advocate for equitable healthcare for all. @RCShackleford @CherrishPryor @AndreaHunley_IN @Monroelovesgolf Rep. Greg Porter
Sick Cells retweeted
Uriel E. Owens’ memory is honored over 42 years by serving the needs of people with SCD throughout KS and MO. Owens made a lasting imprint on his family & community, & still impacts through assistance, advocacy, education & scholarships.
#BlackHistoryMonth #SickleCellMidwest
Sick Cells retweeted
Dr. John K. Haynes discovered amino acid differences in sickle cells, developed methods to study sickle cells used in large-scaled screening programs, & created programs to recruit minority students to medical schools & science fields.
#BlackHistoryMonth #sicklecellmidwest
Sick Cells retweeted
Truly inspirational 🥰. Please take a minute out of your day to vote for these advocates. It is not an easy task, and these amazing individuals are doing such great work for the sickle cell community.
Link to voting is (in our bio/ [sc101.link/SCAY22Advocate])
Sick Cells retweeted
People with the sickle cell trait (HbAS) may contract malaria but experience less severe forms of the disease. People with SCD have little protection against malaria. Consult your doctor for guidance about protection against malaria.
#FSCDR #MythorFact #SCDAwareness #malaria
Sick Cells retweeted
Join us January 19th!
Register here: bit.ly/3ZaI2gY
#sicklecellwarrior #SCD #sicklecellstrong #boston #bostonevents #sicklecellawareness #sicklecelldisease #MSCA #summercamps
Sick Cells retweeted
Dr. Titilope Fasipe (@DrTitiFasipe), a hematologist at Texas Children's Hospital, said #sicklecell is often described as having "glass shards running through your blood vessels."
news.yahoo.com/america-child…
ALT Despite daily excruciating pain, Myles, 16, acts so much like other teens, people don't realize how sick he is.
Sick Cells retweeted
Incredible work by @KPrussienPhD @drlisaschwartz looking at barriers to transition from peds to adult #SickleCell care w/a close look at systems of power
So important to create a setup for a smooth and trusting landing on the adult side free of bias and misconceptions
#ASH2022
Sick Cells retweeted
#SickleCell disease disproportionately impacts the Black community. Read about Jeremy D. Cornelius who lives with this devastating disease & how to make an appointment to donate at our sickle cell drive in Flint on Nov. 30 rdcrss.org/3EglZvG
Sick Cells retweeted
Donate Blood for Warrior Princess Gia and Sickle Cell Warriors like her. Come to Pearson Center this Saturday to donate with @RedCrossNevada at the Dr.Charles Drew Blood Drive ,visit
redcross.org to sign up!
#MakeSickleCellPopular #DonateForGia #SickleCell
♥️🌙♥️ – at Paradise, NV
Sick Cells retweeted
The @UTexasPharmacy team joins us during our S.O.S. call to discuss sickle cell action plans! Are you interested in learning more about individualized pain care plans? Join us tomorrow night at 6 PM CST and make sure to fill out the survey with the QR code prior to the meeting!
Sick Cells retweeted
Listen to the #PCORI2022 Annual Meeting keynote from @Sickcells president, Ashley Valentine who shares her family’s personal journey as patient advocates for #sicklecell and how this experience shaped her approach to #patientengagement in research.
Sick Cells retweeted
Patrice Sterling is an award winning author, advocate mom and speaker.
Join us Nov. 4-6th at the Sickle Cell Caregiver Summit w/ Patrice Sterling, who will lead a conversation on Palliative Care / Chronic Pain #SickleCell!
