Official account of @DrAmandaBrandow and @AshimaSinghPhD's #SCD research in WI focused on improving patient outcomes & healthcare at MCW. Tweets are our own
Milwaukee, WI
Joined September 2019
- Tweets347
- Following108
- Followers199
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SickleCellWI retweeted
Meet James Griffin, a #Warrior & #PublishedAuthor with #SickleCellDisease. This #SickleCellAwarenessMonth, we're launching a photoblog series to elevate and humanize the powerful stories of members of the SCD community, like James. Read his story here: scdcwi.org/scdc-wi-community…
SickleCellWI retweeted
Amanda Brandow DO. Congratulations on Your Alaafia Lifetime Award. Thank you for being a beacon of hope and a force for positive change. This recognition is well-deserved, and we are proud to stand with you in the continued work toward justice, healing, and empowerment.
SickleCellWI retweeted
February is Heart Month. Did you know that people with SCD face an increased risk of high blood pressure and other heart-related complications? Protecting your heart is essential—take steps toward better heart health with this helpful guide from the CDC: buff.ly/4jVLM07
SickleCellWI retweeted
This special report on sickle cell disease explores the promise and challenges of new therapies.
This is editorially independent content produced with support from @VertexPharma trib.al/1QxYLm4
SickleCellWI retweeted
Blood donations from Black donors can help save lives! Sickle cell disease (SCD) affects about 100,000 Americans, most of whom are of African descent. Blood from donors of similar race and ethnicity can help reduce health problems during a blood transfusion. Watch to learn more:
SickleCellWI retweeted
Calling all people with #scd who have #givenbirth in the past 2 years! Check out this #researchopportunity & contact Elizabeth Borto at [email protected] to see if you are eligible to participate in this study @MedicalCollege @childrenswi @Froedtert @NorthwesternU
SickleCellWI retweeted
ASH RC Data Hub Accurately Confirms SCD Diagnosis Type: ow.ly/BCJx50Un0Cl
#ASH24 #SickleCell #ConquerSCD
SickleCellWI retweeted
November is #NationalFamilyCaregiversMonth. We would like to extend our deepest gratitude to all family members who care for #warriors with #sicklecelldisease! @SickleCellWI
SickleCellWI retweeted
Register for the Sickle Cell Data Collection Summit today! The SCDC state programs will showcase their work and highlight how their data are being used to impact the #SickleCell community in their state. Register: bit.ly/4ddJoxi
ALT Promotional graphic for the Sickle Cell Data Collection (SCDC) Summit on Monday, October 28 at 10:00 AM ET. U.S. map with 16 SCDC funded states shaded red. SCDC and CDC logo.
SickleCellWI retweeted
Grateful for the opportunity to Co-Chair the development of new #sicklecell research priorities with @ASH_hematology. Thanks you to all experts who worked on developing these and to investigators who will address these with research. @MCW_Research @drdavemke @MCWPediatrics
Updated #SickleCell research priorities are live! For the next 5 years, we encourage researchers to study unaddressed questions and specific research topics aimed to help #ConquerSCD.
Read the announcement here: ow.ly/MIjA50TvoAV
SickleCellWI retweeted
Today is Day 1 of the SCD Policy Forum. We start at 11AM ET to learn about the federal priorities for the sickle cell disease community and prepare for Day 2's Virtual Hill Day. Stay hydrated and see you soon! #SCDPolicyForum #FundSickleCell #SickCells #SC3
SickleCellWI retweeted
Today on #RareDiseaseDay, we reflect on the progress that has been made in #SickleCell and resolve to stay the course.
Learn about recent progress and get updates on what ASH and partners are doing to improve the lives of all affected with SCD: ow.ly/KJg750QH9Rn
SickleCellWI retweeted
Curious about SCD in WI?Check out this snapshot from the CDC's #SickleCellDataCollection program in WI! Gain insights into the prevalence and epidemiology of SCD in WI. Let's raise awareness and advocate for better support and resources! @CDC_NCBDDD @MCW_Research @UWHealth @DHSWI
SickleCellWI retweeted
What we really want this Valentine's Day is improved access to high-quality outpatient care for individuals living with #SickleCell.
#HealthPolicyValentines #ConquerSCD #SickleCell #SCD #sicklecelldisease #FundHealth #DontCutCures
SickleCellWI retweeted
Happy #WorldSickleCellDay! There was an average of 23 #SCD births in WI during 2016-2020. Comprehensive care is necessary to prevent complications in these children. #SCDC-WI @Childrenswi @Medicalcollege @UWHealth @CDC @DHSWI @Sickcells. Learn more at: cdc.gov/ncbddd/hemoglobinopa…
SickleCellWI retweeted
FDA approved the lovo-cel gene therapy for SCD. Sick Cells is pleased to see this life-saving therapy come to market. This is an important step for the future of care for people and families living with SCD.
Watch the press briefing here at 12:30 PM Et: bit.ly/3RdpLMU
SickleCellWI retweeted
National Community Advisory Board (NCAB) member Rilwan Hollis shared an optimistic view of the future – improved treatment and care & a more comprehensive understanding of #sicklecell. Thank you for helping us celebrate our NCAB members & their impactful work to #ConquerSCD!
