@StrokeBrainPRC

Uni Newcastle w/ Hunter New England Health & Hunter Medical Research Institute. Tweets @gillyminn - physio stroke recovery researcher, https://xitter.cf/t.co/sBFV8eCiNm

 Newcastle, New South Wales
linktr.ee/strokebrainprc
Joined November 2016
  • Tweets3.7K
  • Following946
  • Followers1.3K
796Media
The ENAbLE / iREBOUND trial is testing a videocall-supported recovery & second-stroke prevention program. Some of the team talked to @gillyminn about what's involved for people w/ #stroke who take part, and the process of designing the program ➡️ facebook.com/watch/live/?v=1…
screenshot of zoom meeting being livestreamed to Facebook, with comments down the side of the page. There are 5 women in the zoom windows, talking.

ALT screenshot of zoom meeting being livestreamed to Facebook, with comments down the side of the page. There are 5 women in the zoom windows, talking.

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Why have role in research? Encouraging the next generation of lived experience experts in our workshop at #stroke2023 with support from @strokefdn
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We’re going to need a bigger room! Lots of people with lived experience of stroke together with researchers talking about genuine partnerships in research. Good things to come.
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@KarlyZacharia learnings from evaluation of the ENAbLE Pilot 👏👏👏- participants rated the i-REBOUND Telehealth-delivered programs highly and fidelity was high. Fatigue and health issues were barriers and the right Telehealth platform are important for success @Coralie_English
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Fatigue after stroke - current research xitter.cf/i/broadcasts/1mnxeRMgb…
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The Take Charge program improved people’s independence and quality of life after stroke and we’re testing ways to make it available online – if you’ve had a stroke in the last 12 months, you can help test the prototype 🧠🧐 bit.ly/iTakeCharge
Woman with ponytail sitting in front of a computer. On the computer screen is a female character with text boxes next to her

ALT Woman with ponytail sitting in front of a computer. On the computer screen is a female character with text boxes next to her

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Always ❤️ hearing Adrian O’Malley @strokefdn talking about #peer-led #codesign #culturechange in the Young Stroke Project
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Our colleagues @jovic_em & @maz7262 are developing a program to help survivors of #stroke get more active, w/ support. If you have had a stroke, would you chat to them, or do a 15min online survey so they know what would work best for you? bit.ly/home_ex_survey
portrait of white woman with blonde hair pulled back, smiling

ALT portrait of white woman with blonde hair pulled back, smiling

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Researchers need to be able to measure what you eat to be able to develop programs to support you to change habits. We are looking for stroke survivors to test the Australian Eating Survey to find out if it works for you! hmri.org.au/node/7892 #stroke #research #AES
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Tweeps at #ARCSAus who had so many qu's about involving #patients / #consumers in your research & project teams, check out this free online training - 40min. It's for researchers who work with survivors of stroke, but the learnings are transferrable. informme.org.au/learning-mod…

Working effectively with people with lived experience to design,…

informme.org.au
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Do you care for someone with post-stroke fatigue? Where have you found information about strategies that might help manage #fatigue? Share your experiences with us? (20-30min chat w/ @dsimpsonphysio - phone, videocall or in-person if in Newcastle) bit.ly/3HuNl1z
white woman with short hair asleep on the couch, cuddled up with cute white who is also asleep on its back

ALT white woman with short hair asleep on the couch, cuddled up with cute white who is also asleep on its back

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Measuring food intake can be complicated – and messy! But what if there were an easier way? We are looking for volunteers to test whether the Australian Eating Survey can be used by stroke survivors to accurately measure their food intake. hmri.org.au/measuring-your-i…
3 measuring cups with different berries in them

ALT 3 measuring cups with different berries in them

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If you’ve had a #stroke and are interested in helping develop a computer program that will assist with stroke recovery, please read more about how you can help! hmri.org.au/itakecharge
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You can take part in this phase of the study if you live in Lake Macquarie, Newcastle, Maitland, Singleton or Tamworth, or somewhere along the road between any of these places. The research team can drive out to you at home, or you can come to us at @HMRIAustralia . 🧠💛
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Dr Heidi Janssen @slootal and her team are looking for people to test a prototype of a computer character that could help people living with stroke. If you’ve had a stroke in the past 12 months, you can help! 🧠🧡 hmri.org.au/itakecharge
white woman (Dr Heidi Janssen) with shoulder length blonde hair smiling for the camera

ALT white woman (Dr Heidi Janssen) with shoulder length blonde hair smiling for the camera

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🗣️Do you have aphasia? 🥱Are you tired of post-stroke fatigue? ✅ What helps? ❎ What doesn’t? 👩‍🦱 Talk to Dawn, over a cup of tea, to help develop good treatments hmri.org.au/survivors-stroke…
white woman with brown curly hair smiling for a photo

ALT white woman with brown curly hair smiling for a photo

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Want to know what stroke survivors think about being active outside of therapy? journals.sagepub.com/doi/ful… @slootal @AVERTtrial @julie_luker @spratt_neil @anniemccluskey2 @JannetteBlenne2

Stroke survivors’ perceptions of the factors that influence engagement in activity outside dedica...

Objective To investigate stroke survivors’ perceptions of factors influencing their engagement in activity outside of dedicated therapy sessions during inpatien...

journals.sagepub.com
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We’re really tired of #fatigue. Help us develop a post-#stroke fatigue program – Australian stroke survivors and carers, we’re now seeking your input bit.ly/3HuNl1z Image description: White person with short hair sleeping on a couch, with a white dog, also sleeping
White person with short hair sleeping on a couch, with a white dog, also sleeping

ALT White person with short hair sleeping on a couch, with a white dog, also sleeping

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strokebrainPRC retweeted
Dr Daniel Omileke@DOmileke14 Dec 2021
Thesis done and ready to be submitted after the holidays 🎉. A pandemic PhD wasn’t ideal but we made it work and managed to have a good time in the process 😂 It is bittersweet to be leaving academia but I am very excited to be starting work as a Medical Writer in the new year!
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They are as tasty as they are nerdy!
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strokebrainPRC retweeted
Rene Stolwyk@rene_stolwyk9 Dec 2021
We will winding this project up early-mid next year, so currently recruiting our last set of participants - great opportunity for people with aphasia/low mood to received tailored aphasia-friendly psychological therapy. Please share! @strokefdn @strokeCRE @ASSBI1 @aphasiacre
Rene Stolwyk@rene_stolwyk7 Oct 2021
We are continuing to recruit for this study investigating a novel aphasia-friendly psychological therapy for post-stroke depression... and now offering the therapy over telehealth! So open Australia-wide at no cost to participants @TheStrokeAssoc @strokefdn @strokeCRE
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