Alternating Hemiplegia of Childhood UK (@SupportAHCUK) header
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Alternating Hemiplegia of Childhood UK

@SupportAHCUK

AHC is a rare medical condition that causes transient weakness of either or both, sides of the body & affects less than #1inaMillion | Reg UK Charity No 1192701

 United Kingdom
ahcuk.org
Joined April 2016
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Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)Photo by Alternating Hemiplegia of Childhood UK (@SupportAHCUK)
Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_14 Nov 2022
Replying to @elonmusk
That's a good move especially for very small organisations like @SupportAHCUK will make a massive difference. – at Edinburgh, Scotland
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Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_3 Nov 2022
Day 2: Photo Collage of the 10 Years Anniversary Symposium of AHC & ATP1A3 Diseases ahcuk.org/day-2-photo-collag…
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Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_3 Nov 2022
Day 1: Picture Collage on Facebook for 10 Years AHC & ATP1A3 Symposium (Edinburgh) 19th Oct 2022 ahcuk.org/day-1-picture-coll…
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Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_23 Sep 2022
Just awesome and cannot wait for the symposium to start #10YearsATP1A3 #AhcAwareness #1inaMillion #raredisease cc: @SupportAHCUK @aesha_ahcspain @AHCFE_ @olliesmission @kewdoc @RCPEdin @SigurdurJohann4 @PsychDrJo @bridget_vranckx @lyndseyamorton @_adriankowal @AHCkids
Defining the Future for AHC and ATP1A3 diseases (@10yearsatp1a3) profile pictureDefining the Future for AHC and ATP1A3 diseases@10yearsatp1a321 Sep 2022
170 and counting.... #10yearsatp1a3 #ahcawareness
Image from Defining the Future for AHC and ATP1A3 diseases (@10yearsatp1a3)
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Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_19 Oct 2022
What a great 1st day we have had on the 10th year since the gene discovery: Defining the future for AHC & ATP1A3 Diseases. The venue was great @RCPEdin @RCPEVenue with captivating talks from speakers . #10yearsATP1A3 – at Edinburgh, Scotland
Image from Abhishek Behl (@ABehl_)
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Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_19 Oct 2022
Viewing the posters at the @10yearsatp1a3 - amazing research being done and nice to see new things happening #10yearsATP1A3 – at Edinburgh, Scotland
Image from Abhishek Behl (@ABehl_)
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Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_3 Nov 2022
Final Day 3: (Theme: The Future) Memories to remember and ways to think ahead with research & involvement of the AHC community ahcuk.org/final-day-3-theme-… #10yearsATP1A3 #ahcawareness #1inamillion
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Inclusive Solutions (@IncSols) profile picture
Inclusive Solutions@IncSols19 Mar 2022
Access no areas: the day wheelchair activists stopped the traffic theguardian.com/society/2022…

Access no areas: the day wheelchair activists stopped the traffic | Letters

Letter: Prof Gerry Leavey remembers a 1990s protest in London’s Oxford Street – which ended up as a courtroom farce

theguardian.com
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Alternating Hemiplegia of Childhood UK retweeted
Epilepsy Research Institute (@EpilepsyInst) profile picture
Epilepsy Research Institute
@EpilepsyInst8 Mar 2022
To mark #InternationalWomensDay, we’re celebrating the extensive contribution of women to epilepsy research. And when it comes to that contribution, few have had an impact greater than that of our very own President, Professor J Helen Cross OBE. epilepsyresearch.org.uk/inte… #IWD2022
Image from Epilepsy Research Institute (@EpilepsyInst)
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Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_28 Feb 2022
Today is the 28th of February 2022 and it is International Rare Disease Day #rarediseaseday2022 #RareDiseaseDay we at AHC UK are delighted and proud to support @rarediseaseuk #1INAMILLION #AHCAwareness #RareDisease
Alternating Hemiplegia of Childhood UK (@SupportAHCUK) profile pictureAlternating Hemiplegia of Childhood UK@SupportAHCUK28 Feb 2022
Today is the 28th of February 2022 and it is International Rare Disease Day #rarediseaseday2022 #RareDiseaseDay we at AHC UK are delighted and proud to support @rarediseaseuk #1INAMILLION #AHCAwareness #RareDisease
Image from Alternating Hemiplegia of Childhood UK (@SupportAHCUK)
Image from Alternating Hemiplegia of Childhood UK (@SupportAHCUK)
Image from Alternating Hemiplegia of Childhood UK (@SupportAHCUK)
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Jo Brown 🕷 (@PsychDrJo) profile picture
Jo Brown 🕷@PsychDrJo18 Jan 2022
I'm so proud of this family, close friends of mine, especially my beautiful goddaughter! This is the 10yr anniversary of the discovery of one of the #AHC genes. If you have time, please take a look! #1inamillion #ahcawareness
Alternating Hemiplegia of Childhood UK (@SupportAHCUK) profile pictureAlternating Hemiplegia of Childhood UK@SupportAHCUK18 Jan 2022
2021 Finalist in #Raredisease Film Festival - video of living with AHC "One in a million" bit.ly/3rqoPYQ #1inamillion #ahcawareness with @kewdoc @iabehl
Image from Alternating Hemiplegia of Childhood UK (@SupportAHCUK)
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Alternating Hemiplegia of Childhood UK retweeted
Torie Robinson 🇺🇦 (@TorieRobinson10) profile picture
Torie Robinson 🇺🇦@TorieRobinson1018 Jan 2022
Live on FB today at 17.00 GMT / 18.00 CET - learn about the scientific developments and discoveries regarding the rare #epilepsy #AHC from Alexis Arzimanoglou & Rosaria Vavassori! ⬇️ facebook.com/torierobinson10…
Image from Torie Robinson 🇺🇦 (@TorieRobinson10)
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AHC Federation of Europe (@AHCFE_) profile picture
AHC Federation of Europe@AHCFE_17 Jan 2022
Do you want to learn about an extremely #raredisease? Join us tomorrow to learn about Alternating Hemiplegia of Childhood (AHC) #ahcawareness #1inamillion
Image from AHC Federation of Europe (@AHCFE_)
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Bridget Vranckx (@bridget_vranckx) profile picture
Bridget Vranckx@bridget_vranckx17 Jan 2022
Mañana celebramos el Día Internacional de la Hemiplejia Alternante #ahcawareness #1inamillion
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Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_17 Jan 2022
Tomorrow marks the 10th anniversary of International Alternating Hemiplegia of Childhood (AHC) day. Get ready and find out more about AHC and why it is 10 years! #ahcawareness #1inamillion #raredisease
Image from Abhishek Behl (@ABehl_)
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Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_17 Jan 2022
Do you want to learn about an extremely #raredisease? Join us tomorrow to learn about Alternating Hemiplegia of Childhood (AHC) #ahcawareness #1inamillion
Image from Abhishek Behl (@ABehl_)
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Alternating Hemiplegia of Childhood UK retweeted
AHC Foundation (@AHCkids) profile picture
AHC Foundation@AHCkids17 Jan 2022
Do you want to learn about an extremely #raredisease? Join us tomorrow to learn about Alternating Hemiplegia of Childhood (AHC) #ahcawareness #1inamillion instagram.com/p/CY1lEiwLKUy/…
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Alternating Hemiplegia of Childhood UK retweeted
AHC Federation of Europe (@AHCFE_) profile picture
AHC Federation of Europe@AHCFE_17 Jan 2022
Tomorrow marks the 10th anniversary of International Alternating Hemiplegia of Childhood (AHC) day. Get ready and find out more about AHC and why it is 10 years! #ahcawareness #1inamillion #raredisease
Image from AHC Federation of Europe (@AHCFE_)
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Alternating Hemiplegia of Childhood UK retweeted
AHC Foundation (@AHCkids) profile picture
AHC Foundation@AHCkids17 Jan 2022
Tomorrow marks the 10th anniversary of International Alternating Hemiplegia of Childhood (AHC) day. Get ready and find out more about AHC and why it is 10 years! #ahcawareness #1inamillion #raredisease instagram.com/p/CY1MxC1qbF5/…
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Alternating Hemiplegia of Childhood UK retweeted
Abhishek Behl (@ABehl_) profile picture
Abhishek Behl@ABehl_17 Jan 2022
Tomorrow marks the 10th anniversary of International Alternating Hemiplegia of Childhood (AHC) day. Get ready and find out more about AHC and why it is 10 years! #ahcawareness #1inamillion #raredisease
Image from Abhishek Behl (@ABehl_)
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