Award Winning Blogger, MS Advocate, Consultant, Certified Life Coach & MS Patient Expert. Thriving in life despite multiple sclerosis! #takethatms
Southern California
Joined July 2012
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Girl with MS retweeted
Upcoming videos:
3/5/25: 14 mistakes doctors make with MS
3/12/25: Ocrevus 9-year data
3/19/25: Curing MS: The problem
3/26/25: Is Gadolinium Safe?
Let me know if you have video suggestions. youtube.com/@DrBrandonBeaber
Girl with MS retweeted
Please share, join us at the @AANmember 2025 annual meeting, in San Diego. Course C147 #Dx and #Tx in #MS in #diverse #populations with @drruthdobson and @LilyanaAmezcua @MSNewsToday @TheGirlWithMS @IntNatlWiMS @mssociety @uconnhealth @cobanmd
@drjim4ms.bsky.social
Girl with MS retweeted
Open enrollment has begun! Insurance coverage is an important part of living well with MS. Whether on Medicare, Employer, or Marketplace insurance, our MS Navigators can help you assess your current plan and compare new ones this year.
Find help here: ntlms.org/OpenEnrollment
Girl with MS retweeted
Christina Applegate on her multiple sclerosis pain: "I lay in bed screaming — like, the sharp pains, the ache, that squeezing. I can’t even pick up my phone sometimes because now it’s traveled into my hands..." rollingstone.com/tv-movies/t…
Girl with MS retweeted
Not the best picture of the girl that apparently ate Christina Applegate. But I was just given this shirt and it makes me happy. Small things.
Girl with MS retweeted
nature.com/articles/s41467-0…
I am excited to announce our work on how myelin loss culminates in neurodegeneration has been published at Nature Communications. While I have previously covered our findings as a preprint in more detail below, our key findings are:
Girl with MS retweeted
RIP Fernando Valenzuela whose talent and grace brought so many Angelenos and baseball fans together 🙏🐂⚾️🧢
Our Dodger Stadium Express is now Line 34
Girl with MS retweeted
🔬 Peek into the future of #MS therapies! In our latest #podcast, Brett Drummond of @MStranslate explores this exciting topic with @hwiendl of @UniFreiburg & Prof. Ludwig Kappos of @UniSpitalBasel. 🎧 Listen now! 👉 bit.ly/4e0LPUz
Girl with MS retweeted
On today’s MeSsy podcast we talk to this incredibly funny and wise and wonderful human. Brooke Eby. And she has ALS! Listen today wherever you get your podcasts. Then if you haven’t already, go back and listen from episode 1 xo
Girl with MS retweeted
Cesarian sections were more common in women with #MultipleSclerosis than the general population.
Canadian MS Pregnancy Study from @dr_dessa @KristenKryskoMD @UBC @stmikeshospital @UnityHealthTO @SMHNeurology @UofTNeurology ▶️ journals.sagepub.com/doi/ful…
Girl with MS retweeted
A thought...
The post below looked at lifestyle risks of getting MS: lack of Vit D, teen obesity, smoking...
Do u think researchers shld start asking about early trauma?
A 2022 study found childhood sexual & emotional abuse were linked to a greater risk of getting MS later.
Girl with MS retweeted
Why I’m Cycling 8000 km Across Canada for MS Brain Health – The Mission ... youtu.be/ulF35DcCiDY?si=PKIf… via @themsguide
Girl with MS retweeted
📞🎙️I'm excited to share that I'm hiring a dedicated clinical research coordinator for our team. If you are a scholar interested to work in early #MS, #risk factors and #progression please let me know. @mssociety #Progressive #MS #lifespan #MS. @GlialLab @NegarMowlazadeh
Girl with MS retweeted
Yes. We are changing MS with new criteria and more effective medications. BUT, we need to more to END MS as part of the @mssociety commitment to the "Pathways to cure" STOP, RESTORE. These progress is not helping all our patients. #ruralMS #diverseMS Stay tune @AANmember .
Multiple sclerosis is becoming milder. "Compared to 1990s trial populations, recently recruited patients have approximately 60% fewer relapses and 40% lower [disability progression] rates" pubmed.ncbi.nlm.nih.gov/3937…
Girl with MS retweeted
Timelapse this image was taken from:
xitter.cf/dominickmatthew/status…
Girl with MS retweeted
We flew over Hurricane Milton about 90 minutes ago. Here is the view out the Dragon Endeavour window. Expect lots of images from this window as this is where I’m sleeping while we wait to undock and return to Earth.
Timelapse coming in a separate post.
1/6400 sec, f8, ISO 500
Girl with MS retweeted
Decades ago, it could take 4-5 years to diagnose MS. Today it’s down to months.
The Society brought together MS leaders to create the original diagnostic criteria. Since then, the criteria have been regularly updated - including last year: ntlms.org/HowWeDiagnoseMS
ALT Dr. Tim Coetzee, CEO of the National Multiple Sclerosis Society (front, left), with MS researchers from around the world.
Girl with MS retweeted
The kappa free light chains index (cut-off 6.83) is 100% sensitive and 92% specific at differentiating paediatric #MultipleSclerosis from controls, and, if over 93.77, is 100% specific.
Study from @Hopital_Bicetre @univ_paris_cite ▶️ journals.sagepub.com/doi/ful…
Girl with MS retweeted
Frequency of #MultipleSclerosis misdiagnosis was 5-41% and higher in women (with up to 15.9 years to rectify a misdiagnosis), while underdiagnosis ranged from 3% to 58% (delay of 17.3 months).
Systematic review and meta-analysis from @UZH_en @uvmvermont ▶️journals.sagepub.com/doi/ful…
Girl with MS retweeted
One of the most challenging symptoms to manage in MS is upper limb tremors. This small study supports the use of Botulin toxin to improve tremors and functionality. @uconnhealth @mssociety pubmed.ncbi.nlm.nih.gov/3929…
