Great ride with @ActionPFsteve
Pulmonary Fibrosis Transplant Patients Support Group. Next meeting on 8 October 1600-1730. Contact: [email protected] [Photo shows group members @ActionPFsteve (5 years post-transplant) and @TriathARon (on active list) out for e-bike ride] @ActionPFcharity
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Very good podcast on Pulmonary Fibrosis symptoms, very proud to be part of it
When #PulmonaryFibrosis develops, it's probably not sudden changes you instantly notice - and that's part of the problem. Learn more about recognizing the signs on a new episode of the Journeys through Pulmonary Fibrosis podcast.
Thank you PatientMpower for everything you do for IPF.
Watch our video interview with #IPF patient activist Ron Flewett @TriathARon exploring the impact of the pandemic on #IdiopathicPulmonaryFibrosis patients and how home monitoring of FVC & FEV1 was a “huge reassurance during COVID-19” #virtualcare hubs.la/H0V8m5T0
Fantastic meeting we’ll do e everyone.
Kicking off our 7th @EU_IPFF General Assembly, reporting to our members, advisers and supporters what the European Pulmonary Fibrosis Federation has done in the past year, what we will work on in 2021 and 2022 in patient advocacy and research. We'll also elect new board members!
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Thanks @TheLancet for sharing our Trustee, Ron Flewett, and his wife Maxine’s story, about living with #IPF #PF here: thelancet.com/journals/lanre…
Help us to raise awareness and provide vital support to those living with this condition: pulmonaryfibrosistrust.org
@TriathARon @flewett
Thanks, just trying to make sure everyone with PF/IPF is aware of how the Pulmonary Fibrosis Trust can help them.
Another successful ILD support group meeting today including our virtual PR session. Thanks also to @TriathARon for his helpful talk on the @PFTrust.
Thanks for arranging Steve, learnt a lot, lovely to meet everyone.
Great meeting of the Pulmonary Fibrosis Transplant Patients Support Group (PF-Tx) today with excellent talk by Dr Jas Parmar of @RoyalPapworth. Next meeting late July. Info: [email protected]. @ActionPFcharity @lungtaskforce #CurePF
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Wouldn’t be where I am today without the love and support of Maxine and Lauren @laurencouchman1 @flewett
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Very proud to be a PRA for Royal Papworth Hospital and did not realise the impact we have made in the last couple of years.
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Supporting our Italian friends during IPF week. @flewett #MYIPFSTORY #EU-IPFF @lunguk @PFTrust facebook.com/ron.flewett/vid…
It was lovely seeing you all and as you all know Research is part of mine and Dave’s hope for the future. @flewett #myipfstpry #EU-IPFF
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Fantastic day talking to a wide variety of people about the benefits of research.
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Very proud of my wife #IPF #.@TriathARon
Maxine Flewitt describes some of the many hardships that are faced by #IPF patients. Heart rending, emotional, realism concentrates all the minds in the room.
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A truly amazing video brings it home the seriousness of IPF. #ipf
Too few people know about #IPF, still. Like Alice, share your story to raise awareness of IPF eu-ipff.org/about-ipf #MyIPFstory
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