Jen ♿️ (@TrippingTreacle) header
Jen ♿️ (@TrippingTreacle) profile picture

Jen ♿️

@TrippingTreacle

Medically retired Speech Therapist with #SPMS #parent & #blogger - coffee drinking ☕️ and frequently sleeping 🛏 #loveoneanother 🙏🏼 #MSstrong 💪 she/her

 England, United Kingdom
trippingthroughtreacle.com
Joined March 2016
  • Tweets7K
  • Following1.6K
  • Followers1.9K
304Media
Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)Photo by Jen ♿️ (@TrippingTreacle)
SPMS and My Body Image trippingthroughtreacle.com/s… via @trippingtreacle

SPMS and My Body Image -

As someone who has lived with multiple sclerosis for 30+ years, my body image has taken a battering. SPMS and Body Image.

trippingthroughtreacle.com
4
5
428
But I think it is important to acknowledge that I am aware that they do more than the average child; I want the children to know that I see all that they do, and that I appreciate their help so much. #youngcarers trippingthroughtreacle.com/g… via @trippingtreacle

Grr, You Expect Me to do Everything! -

'You expect me to do everything! My thoughts and questions about the kids being young carers

trippingthroughtreacle.com
2
114
Another word for woke;
Image from Bruce_Is_Here (@BruceInMich)
22
19
2
81
6,728
"I’m aware that I can still walk (albeit wall-walk) at home, I can still drive, and using assistive devices helps me to stay independent. But it obviously is no comparison to what my body used to be able to do." 🔗trippingthroughtreacle.com/s… via @TrippingTreacle #ChronicIllness #MS

SPMS and My Body Image -

As someone who has lived with multiple sclerosis for 30+ years, my body image has taken a battering. SPMS and Body Image.

trippingthroughtreacle.com
1
2
4
297
"The pain is constant; yes, there are times when it might be better than other days, but there is never an off-button. Living with chronic pain, the feelings and sensations that it invokes never stops." brainlesionandme.com/what-ha… via @serenebutterfly
What Happens When Pain Becomes Chronic

What Happens When Pain Becomes Chronic

It is hard to imagine a time when chronic pain did not play a significant part in my daily life. That time is incredibly hard to envisage as I lay here in excruciating, searing pain. But there was a...

brainlesionandme.com
3
3
3
430
Hopefully game-changing! How amazing would this be if it worked? 🤞🏻 medicalnewstoday.com/article…
MS: New drug may help regenerate myelin, potentially heal nerve damage

MS: New drug may help regenerate myelin, potentially heal nerve damage

Scientists have developed a new treatment that may help regenerate myelin around nerve cells, and potentially reverse the damage caused by multiple sclerosis (MS).

medicalnewstoday.com
1
1
6
400
Tired? No, listen. MS sucks the life force from you, chews it up and spits it out. And then you get to watch as MS pisses all over it. Meanwhile, you can’t think straight b/c all your remaining energy is going into continuing to exist. That’s MS tired. #MS #MultipleSclerosis
24
40
11
208
8,704
💥 My Current Blog Posts - Updated 💥 What's been happening in my world lately? Feel free to browse and explore at your own pleasure and leisure. Thanks. 🙂 → rebrand.ly/current-blog ← 🫵 What has been the most important thing for *You* this week? ❓❓
Image from Mal 'Pram' Kiely (@lancelotspram)
3
1
9
258
Expect to collect my new #motability car this week but I still need some adaptions made. I’m going to go for hand controls but I am a bit nervous about getting used to them! Any experiences? #Disability #MS
4
1
10
1,297
Happy #DisabilityPrideMonth folks. I wonder when we'll see the same ability to celebrate & have our voices heard that other groups get when they mark that they are proud to be who they are? Go us!
All smart in a shirt and tie Infront of a huge flight of stairs.

ALT All smart in a shirt and tie Infront of a huge flight of stairs.

13
140
7
636
28,085
I've been struggling a lot due to my #MS, so haven't been on social media much! But I wondered if any other MSers have had spasticity on one side of their neck? It has come on twice for me now, each time lasts a week or so and is painful AF :(
8
2
14
1,710
MS/menopause Thrilled the Burning Debate @ECTRIMS23 will be: "All women with MS should start hormone replacement therapy at menopause unless contraindicated." With @drruthdobson, @rrvoskuhl & @melindamagyari Recognising 2/3 of ppl with MS are women & all will go thru menopause
Image from Rachel Horne (@RachelHorne19)
9
16
1
86
8,567
I’m sure this had the best intentions as an act of friendship but… it’s classic non-disabled gaze. A wheelchair is the dignified way to move when you can’t walk, not a horrible thing to escape. Being lifted out of it and carried makes most of us (not all!) wince at the thought.
BBC Sport (@BBCSport) profile pictureBBC Sport
@BBCSport14 May 2023
Beautiful. Kevin Sinfield carried Rob Burrow over the finish line at the end of the first Rob Burrow Leeds Marathon 🥹
228
332
73
4,327
1,444,565
True confession After asking if ppl with MS often found themselves apologising/justifying their disability, I realised it was time to make some changes. So today I took out my Transport For London "Pls offer me a seat" badge which has been in my drawer for 3 yrs. Time to use it.
Image from Rachel Horne (@RachelHorne19)
10
7
142
6,715
#MEAwareness
Sally Doherty writes 👩‍💻 (@Sally_writes) profile pictureSally Doherty writes 👩‍💻@Sally_writes12 May 2023
If you watch anything today, PLEASE watch this from @alice_ella_. It is AMAZING. #MEAwarenessDay #MEawareness (Tweeting it myself as it's not on her Twitter account, otherwise I would obviously retweet it instead)
2
238
Sharing this from my blog for #MEAwarenessDay #WorldMEDay ~ quotes from 42 people with #MECFS, on the reality of what it feels like living with this devastating disease. “A life with ME is like a non-existence. I’m alive, yet not really living” #pwME notjusttired.com/2019/05/08/…
10
15
763
If you contact an #MSNurse via email, is there a specific time frame for when they need to get back to you? I emailed as I had a specific complicated question to ask and the phone went to voicemail. I’ve never met her, but she told me that I could always email her as needed.
1
2
468
I just experienced my first MS hug. Scared me because it, at first, felt similar to the chest pains I had with my heart attack a year ago. This article helped me understand the difference. Whew! multiplesclerosisnewstoday.c….

The MS hug: Symptoms, triggers, treatments, and tips to manage |...

The MS hug causes tightness around the chest and is a common sensation for people with MS. Learn more about its symptoms and treatments.

multiplesclerosisnewstoday.com
15
10
4
79
5,379
This is so important. I was diagnosed earlier than the lady Aaron is talking about but I too was 'left to languish'. I was never offered an MRI to look at whether my MS was progressing or DMDs between the years 1995 - 2016. Few relapses and told that I had 'benign MS'. Now SPMS.
Aaron Boster MD (@AaronBosterMD) profile pictureAaron Boster MD@AaronBosterMD8 May 2023
Warning. This is a rant. It's also just my opinion. youtu.be/yNVczpLwPMM via @YouTube
3
1
15
2,196
Brilliant interview today with Prof Sarah Rugheimer. All round over-achiever and MSer. We talked about disclosing your #MS to an employer. The good, the bad and the ugly. Subscribe to theMSguide.com and tick the bell to be notified when the video is live.
Image from theMSguide.com 🧠 (@themsguide)
Image from theMSguide.com 🧠 (@themsguide)
1
1
19
950
Load more