Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
San Mateo, CA
Joined March 2020
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Unite Genomics retweeted
Congratulations to everyone in the ALS community who worked tirelessly to make today’s approval happen! Here’s to notching many more wins from here!
Unite Genomics retweeted
Sandy,
Thank you for the enormous gift you were and continue to be for all of us.
With compassion, discipline, love, and unwavering faith in what people are capable of, you raised the bar for all of us. You spoke to everyone’s better angels. [1/9]
Unite Genomics retweeted
ALS is not just a disease of old men
Beautiful women of #HerALSstory were dx'd w #ALS b4 their 35th birthdays
May 9th is #WomensCheckUpDay & start of #WomensHealthWeek. ALS symptoms in comments but women more often affected w #bulbar onset.
#ALSAwarenessMonth #WomensHealth
Unite Genomics retweeted
We've got a few bonus facts for you for today's #FactFriday.
-It’s estimated that between 14,000 and 15,000 Americans have ALS.
-It affects slightly more men than women.
#ALSAwareness #ALS @alsnewstoday
Unite Genomics retweeted
Join @PaganoniMDPhD and @MeritCudkowicz on Thursday 3/31 at 5 pm ET to learn about the HEALEY ALS Platform Trial and expanded access to investigational products for people who can't otherwise participate in the trial. partners.zoom.us/webinar/reg…
#ALS #MND #HealeyHope #EAP4U @MDAorg
Unite Genomics retweeted
Join us from 10 a.m. – 4:30 p.m. on Wednesday, March 30th to watch an Advisory Committee discussion on Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step in AMX0035’s path toward approval in the FDA.
Register here: bit.ly/3qjCb9o
#ALSEvent
Unite Genomics retweeted
A very important milestone NRSN achieved - an FDA IND Clearance in the US, boosting the clinical program to potentially bring PrimeC faster to patients in need.
Thanks to the devoted team of NeuroSense Therapeutics for this impressive achievement!
finance.yahoo.com/news/neuro…
Unite Genomics retweeted
Please join @MeritCudkowicz, @PaganoniMDPhD and @univofkentucky researcher Ed Kasarskis, MD, PhD, for the latest news from HEALEY ALS Platform Trial plus Q&A! Thursday 3/17 at 5 pm Eastern: partners.zoom.us/webinar/reg…
#ALS #MND #HealeyHope #EAP4U @MDAorg
Unite Genomics retweeted
Join @PaganoniMDPhD, @MeritCudkowicz, Warren Wasiewski, MD, Chief Medical Officer at @seelostx and Shafeeq Ladha, MD, Regimen E co-lead, to learn about trehalose, the newest investigational product in the HEALEY ALS Platform Trial. Thurs 3/10 at 5pm ET: partners.zoom.us/webinar/reg…
Unite Genomics retweeted
Thousands of ALS patients wake up every morning with the hope that this drug will be approved.
Everyone is aligned - look at this coalition. All we want is @US_FDA and @BrainstormCell to move the process on the ALS clock.
2 minutes to sign. Individual actions add up.
People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on @BrainStormCell and @US_FDA to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition: bit.ly/3KGubrG
Unite Genomics retweeted
Please join us on February 3rd at 5:00 pm ET for our weekly Q&A about the HEALEY ALS Platform Trial. @PaganoniMDPhD and @MeritCudkowicz will present this week’s updates on the trial and answer questions from the audience: partners.zoom.us/webinar/reg…
Unite Genomics retweeted
Join us this Thursday at 5 pm ET for the latest HEALEY ALS Platform Trial news, with special guest @shesterlee, Chief Research Officer of the @MDAorg, who will share how the MDA is working to fight ALS. partners.zoom.us/webinar/reg…
Unite Genomics retweeted
Happy New Year! Please join @PaganoniMDPhD on Thursday, 1/6 at 5:00 pm Eastern for the first HEALEY ALS Platform Trial weekly Q&A webinar of the year!
partners.zoom.us/webinar/reg…
ALT Photo of Dr. Paganoni. Caption: "Happy New Year! Please join us for the first weekly Q&A webinar of 2022 and learn about plans for the new year."
Unite Genomics retweeted
Please join Merit Cudkowicz, MD, MSc, Sabrina Paganoni, MD, PhD, and Neil Thakur, PhD of the The ALS Association, this Thursday 12/2 at 5:00 pm ET for an update on the HEALEY ALS Platform Trial and questions from the audience.
Register here: partners.zoom.us/webinar/reg… #HealeyHope
Unite Genomics retweeted
Happy Veterans Day and thank you to all who have served. Military veterans are 2x as likely to be diagnosed with #ALS. If you are a veteran with ALS, @iamalsorg has put together this guide to help you navigate securing care and benefits from the VA: iamals.org/get-help/navigati…
Unite Genomics retweeted
Join us Thurs., 11/4 @ 5pm EST for a biostatistics & HEALEY ALS Platform Trial webinar.
@PaganoniMDPhD & @MeritCudkowicz will present HEALEY ALS Platform Trial updates. Guest speaker, Lori Chibnik, PhD, MPH, will answer questions on biostatistics. partners.zoom.us/webinar/reg…
Unite Genomics retweeted
Activist and ALS Patient Ady Barkan Is Battling to Get Home Health Care for Everyone Who Needs It
apple.news/A7TrHRM6vSj2UP7h0…
Unite Genomics retweeted
Megan Miller, PhD (@megbmiller) Director of Science and Policy at @iamalsorg, joins @MeritCudkowicz and @PaganoniMDPhD this Thursday at 5:00 pm Eastern to talk about the latest from the HEALEY ALS Platform Trial and more: partners.zoom.us/webinar/reg… #HealeyHope
Unite Genomics retweeted
Biogen trial of ALS drug fails main goal, but company says data are encouraging
reuters.com/business/healthc…
#ALS #UniteAgainstALS #EndALS #ALSawareness #ALSresearch
Unite Genomics retweeted
At this week's HEALEY ALS Platform Trial webinar, @PaganoniMDPhD hosts Jen DiMartino, Executive Director for @alsone_official. Join us on Thursday at 5:00 pm Eastern Time: partners.zoom.us/webinar/reg…
#HealeyHope
