Young Adults Experiences of Decision Making (@YAExpDm) profile picture

A research study for young adults in UK who have #kidneydisease and have experienced #kidneytransplant or #dialysis decision.

Joined April 2019
Young Adults Experiences of Decision Making retweeted
The start of ABCD UKKA joint meeting talking about diabetes and kidney disease a global health problem ⁦@UKKidney⁩ ⁦@ABCDiab⁩ ⁦@ISNkidneycare⁩ ⁦@goKDIGO⁩
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Young Adults Experiences of Decision Making retweeted
UKKW 2023 Online content is now available! We have released recordings of all main plenaries & large sessions. 🎥 🖥️ Access is free for those who attended the F2F conference. If you were unable to attend you can still purchase access ➡️ bit.ly/3LsjsCZ
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Young Adults Experiences of Decision Making retweeted
This is your chance to spread the word that #KidneysMatter Our goal is to put #kidneydisease on everyone’s radar. We need you to get involved & to raise awareness of just how serious kidney disease is. Please share to show everyone that #KidneysMatter #WorldKidneyDay
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Young Adults Experiences of Decision Making retweeted
Please take a moment today to share some #kidney health facts with someone who isn’t already part of the #renal world! So much info out there from amazing healthcare & charity orgs around the world, just follow the #WorldKidneyDay hashtag #ckd #dialysis #transplant #kidneysmatter
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Young Adults Experiences of Decision Making retweeted
Don’t ever give up💪 🤩 #WorldKidneyDay
It's #WorldKidneyDay! This year we want to shine a light on the realities of living with kidney disease, and try and share some tips for those who suffer from it that could help to make their life just a little bit easier. Reply with your best #KidneyTopTips below 💜
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Young Adults Experiences of Decision Making retweeted
World Kidney Day stand. Ladies in pink. Come and talk about kidney health. Had 3 transplant patients who shared their story with me @mcdonaldc123 @claremorlidge @lauraratcliffe7 @praveenjeeva @enherts
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Young Adults Experiences of Decision Making retweeted
We know many kidney patients experience mental health problems, so we're excited to be working with @CentreforMH to make a difference to those who experience mental health problems. #mentalhealth #WorldMentalHealthDay @WMHDay
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Young Adults Experiences of Decision Making retweeted
Great poster by Rachael Wright on the role of eculizumab in lupus nephritis #FellowsDay19 – at Oadby, England
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Young Adults Experiences of Decision Making retweeted
Fascinating talk by Prof Adeera Levin on geographical differences in Kidney disease. Rise and prevalence of CKD of unknown origin! @Kidney_Research @ResearcherLucy @loudon_kevin @rhysdrevans @drmelaniechan @DavidAHughes16 @JeremyH43317806
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Young Adults Experiences of Decision Making retweeted
Please see poster below for more information about #YAExpDm study. We want to hear about your experiences of #dialysis /#transplant choice selection @YAKidneyGroup @BthftYaba @youngNKF @WellAware_TCF
Replying to @SPEAKstudy
@SPEAKstudy highlighted the challenges of living with CKD. @YAExpDm we are interested to understand how #dialysis/ #transplant choice selection affects #youngadults psychosocial and mental well-being. We love to hear from @YAKidneyGroup. Email me at [email protected]
Young Adults Experiences of Decision Making retweeted
Thank you @vancole9 for working to raise public awareness of what #kidney patients go through & for highlighting that even though #organdonation & #transplant are incredible, they’re not a cure & still come with significant life long psychological & physical health challenges
"It's been tough to accept that what I was, I no longer am" Among the crowd at the opening ceremony of the #WorldTransplantGames was former professional footballer Andy Cole. He admits his kidney transplant left him with more than just physical scars. @vancole9 @WTGF_Games #NUFC
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Young Adults Experiences of Decision Making retweeted
Here is our poster number 93 presented today on community kidney education #ukkw2019 If you are interested in the patient education materials and other resources - trigger tools and eclinics then visit the poster and scan the QR code @HelenRainey16 @DrGavinDreyer @Ashidotic
Replying to @NHSBartsHealth
@NHSBartsHealth community CKD education for patients & primary care based on this @nicolamthomas
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Young Adults Experiences of Decision Making retweeted
Sadly there simply isn't enough psychological & social support for kidney patients. None of the 84 units in the UK employ the recommended number of social workers, only 5% of the 84 units employ the recommended number of psychologists kidneycareuk.org/news-and-ca… #Corrie #Carla
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