Account not active. Yorkshire and Humber Children's Palliative Care Network. Working together for children and young people with life-limiting conditions.
Yorkshire and the Humber
Joined May 2017
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YHCPCN retweeted
Heartbreaking to say the least. It’s been my privilege to work with @YoHCPCN, a leader in paed pall care in the UK, a role model to other regions and MCNs. Wish policies and practices weren’t so shortsighted.
We must also share the sad news that the Yorkshire and Humber Children's Palliative Care Network will come to an end on 30 September.
Thank you so much for your work to improve the lives of children and families 🫶 Together we have achieved so much - as you can see! ⬇️ (2/2)
ALT YHCPCN 2018-2022. Following the news that the Network will come to an end on 30 September 2022, please see some of our brilliant achievements together - and a thank you for all your support.
YHCPCN retweeted
Our annual conference is coming up on 20 September!
👪 Accessible and equitable paediatric palliative care: Keeping children and families at the centre
Tickets have been subsidised and are just £15.
#ChildrensPalliativeCare #NHS #hospice
eventbrite.co.uk/e/annual-co…
YHCPCN retweeted
This is so important ... it can help a child get the medicines they need more easily and consistently; saves teeth from sugary medicines; wastes less precious NHS £. @EveryChildNENC @GreatNorthCH
Pills are a better, easier and healthier way for children to take medication. Take our short eLearning session developed to help healthcare professionals and carers to teach children how to swallow pills bit.ly/RCPCH-pill-swallow
YHCPCN retweeted
An MSc Thesis Research Project is seeking people who are willing to share their experiences of bereavement and mourning during the pandemic ⬇️
YHCPCN retweeted
📢👇Amazing to support Claire, Nat and Kev in handing this vital open letter to @10DowningStreet this morning. This should be a high priority for our next PM @trussliz @RishiSunak #EveryDayEveryNight @Tog4ShortLives
🆕 Bereaved parents Claire, mum to George, and Natalie and Kev, parent's to Ted have handed in Claire's #EveryDayEveryNight open letter, demanding that the PM does more to ensure that all seriously ill children have access to 24/7 care this morning.
togetherforshortlives.org.uk…
YHCPCN retweeted
Ensuring parents are fed is one of Sophies main wishes. She could never understand why I was never offered food. We really shouldn't be allowing parents to be starving in hospital or stressing about where they can find some. We fed every parent in Portsmouth hospital tonight.
YHCPCN retweeted
Supporting children and young people with central lines to access school and leisure activities is a core component of CCN services. What challenges have #weccns observed and how have you overcome these? Our team support a young man to go swimming with his peers every week!
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YHCPCN retweeted
The ICPCN launched the Hats On for Children's Palliative care Toolkit 2022. Please find the toolkit and other resources here bit.ly/3bN6X65
YHCPCN retweeted
We would like to share a story about Baby B. Baby B died at only 11 days of age from #neonatalHSV and we have been working closely with her family to improve awareness in our trust. [1/16]
YHCPCN retweeted
Are you a parent to a child with complex medical needs?
Do you access health care in a Tertiary Hospital in England?
Please get in contact with us if you would like to take part in a research study about your experiences: [email protected]
@Col_Partnership
YHCPCN retweeted
This is a must attend for anyone working in child death review @NCMD_England @CommChildHealth @RCPCHPresident
We are so pleased to be supporting the newly established Association of Child Death Review Professionals (ACDRP) as they look to hold their first national conference in Nov 2022
Please follow this link for further deatils and to register your interest partnersinpaediatrics.org/ne…
YHCPCN retweeted
A new report from @NCMD_England & @BristolUni has found that the deaths of 1 in 3 children who died under the age of 18 were due to health problems during pregnancy, labour or soon after birth.
Find out more ➡️ sands.org.uk/NCMD-Report
#BabyLoss #PregnancyLoss #Research
YHCPCN retweeted
Today's report shows that neonatal illness may contribute to 72% of deaths to age 10. As @DavidOdd1 explains in this video, suffering from health problems as a newborn increases risk of mortality across all categories of death. (🔊 Sound on!) Full report: ncmd.info/publications/newbo…
YHCPCN retweeted
*Parents of a child with complex medical needs*
Would you like to take part in research about your experiences of receiving health care for your child?
Please contact the study team by email if you would like to take part/find out more: [email protected]
@Col_Partnership
YHCPCN retweeted
Did you know that half of child deaths under 10 in England are in children less than a month old? This finding from our new report shines a light on the importance of perinatal health in mother and child. ncmd.info/publications/newbo…
YHCPCN retweeted
OUT NOW>> Our latest thematic report finds that poor newborn health contributes to as many as 72% of deaths among children up to age 10 in England. Read the full findings: ncmd.info/perinatal
YHCPCN retweeted
Great Lead Nurse role and opportunity to work across the Neonatal ODN. Consider applying, all details below #NeonatalNursing #QualityRole @LdnNeonatal @YHneonet @swneonatal @NWNeonatalODN @NNAUK1 @BAPM_Official
Closing Monday. A fantastic opportunity for the right candidate to help determine and deliver the Networks agenda across the WM. jobs.nhs.uk/xi/vacancy/91731…
YHCPCN retweeted
Palliative Care Works Autumn Conference 2022 will be a virtual event, to be held on Saturday 8th October. Please register for the webinar using this link bit.ly/3yjkFVR
YHCPCN retweeted
Fatwas by Muslim expert committees play an important role in shaping medical decision-making in #palliative care. #hpm #hapc journals.sagepub.com/doi/ful…
YHCPCN retweeted
⚠️Child mortality increases with deprivation
⚠️20%+ of child deaths might be avoided if deprivation was reduced
⚠️There may be more preventable deaths among children in deprived areas
All this and more in our new pre-print paper 👇
medrxiv.org/content/10.1101/… @DavidOdd1 @KarenLuyt