Exploring the balance between natural & formal #DisabilitySupports A partnership between @QueensSRT @VelaCanada @PlannedLifetime @PosAbilitiesCA and more
Joined September 2022
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Welcome to the Twitter account for a new #research project on balancing formal and natural supports for Canadians with disabilities and their families! #Disability #CommunitySupport #FormalSupports #NautralSupports #Caregiving #Caregivers #Advocacy
Beyond Services retweeted
Yesterday I was also honoured to visit the team at OREBACOM and some of their families. Excited to launch our new project today in Beira with a roundtable discussion on supports for people with disabilities and their families
We are so excited to see this research extended to an international context!
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Beyond Services retweeted
Congratulations to our award winners! Your dedication to giving care has touched countless lives and made a remarkable difference. Learn more about our winners: canadiancaregiving.org/meet-…
#CdnCaregiving #CCCESummit2023 – at Ottawa, Ontario
ALT Tonight’s award winners posing for a picture alongside CCCE executive Liv Mendelsohn
Beyond Services retweeted
Caregiving is not a one-way relationship. We’re exploring reciprocal care with sisters @AmyDMathers and Holly Mathers, moderated by @Terrencewkho. #CCCESummit2023 #CdnCaregiving
ALT Amy and Holly Mathers sharing about their relationship on a video screen
Beyond Services retweeted
Here is some background on the first winner of the Vickie Cammack Award:
Donna Thomson @Thomsod, author of "My Four Walls of Freedom," takes clear-eyed look at the value of a life theglobeandmail.com/life/dis… via @globeandmail @CdnCaregiving #disability #inclusion #CCCEsummit2023
Proud of our team members @Thomsod and @haldersey for contributing to this amazing panel at the #CCCESummit2023
. @thomsod facilitating an insightful panel discussing the critical relationship between caregivers, care providers, and those who access care.
#CCCESummit2023 #CdnCaregiving
@A_Fakolade_PhD @AMBinetti @haldersey
ALT Panelists speaking on stage at the Nexus between caregiving and care providing session
Beyond Services retweeted
@QueensUHealth @QueensSRT researchers at #cccesummit2023 using research to inform conversations for a national caregiving strategy @A_Fakolade_PhD @nicole_bobbette @_BeyondServices @queensuResearch
A few of our team members got to attend the #CCCESummit2023. What an incredible opportunity for learning and discussion around #Caregiving and #DisabilitySupports
"My sister LOVES me alot more!"
Paul Knoll describing the difference between the way he works together with Support Workers, and the relationships he has with his family.
#cccesummit2023 @_BeyondServices @Thomsod
Wow! We couldn't be more proud of our amazing team member, @Thomsod ! We are so lucky to have her ongoing guidance and support on this project. Congratulations, Donna! So well deserved.
@Thomsod just received the Vickie Cammack Trailblazer Award at #cccesummit2023. A proud and emotional moment for the @_BeyondServices team. @beccapauls @aletmanski @CaitlinPiccone @Navjit141
Disability news from around the world - definitely an interesting blog to follow!
#Disability #DisabilityNews #DisabilityTwitter #DisabilityAdvocacy #Advocacy
Curated disability news from the top of Everest to protests in Paris and Seoul. Meet radical disabled people from the past and present, and find out how home appliances are letting people down.
Supported by @Sightsavers_Pol and @CenterforInclu1
disabilitydebrief.org/debrie…
Beyond Services retweeted
'They’re calling for more inclusive research, diagnostic tools that account for the different ways #autism manifests according to race + gender, + more culturally relevant resources + support.' 19thnews.org/2023/06/black-w…
YES! Making information accessible is SO important!
#KnowledgeDissemination #KnowledgeMobilization #Disability #IntellectualDisability #Research
We just finished a collaborative project examining how Canada can better communicate public health information to people with intellectual disabilities and their families. This infographic has some highlights!
What are your thoughts on the findings?
ALT An infographic outlining how public health information can be better communicated to people with intellectual disabilities and their families. We know that access to information is a human right, and that people with intellectual disabilities get sick more often. We surveyed over 400 people to learn that information about COVID-19 vaccines were difficult to understand, overwhelming. We also heard from self advocates and family members that different formats work for different people. People like when resources use a variety of formats, say how their questions can be answered and why the information is important. Based on our findings, we recommend that the Public Healthy Agency of Canada (PHAC) follows our "Best Practices for Communication Public Healthy and Vaccine Information to Persons with Disabilities".
Beyond Services retweeted
Today is World MS Day! 🎉🎈 Join us as we stand in solidarity with the global MS movement. Today, we come together to raise awareness, build community, champion self-care and advocate for change. Join the conversation using the hashtags #WorldMSDay and #MSConnections ! ✨
"We were open to conflict before it even arose" - @haldersey on the key to successful partnerships in participatory action research at @csa_sociology
Beyond Services retweeted
“You want to be able to put two types of expertise together, and that requires trust” - @Thomsod presenting with @haldersey on the power of academic and family researcher partnerships in @_BeyondServices at @csa_sociology
We are so excited to be sharing results and calls to action from our scoping review on #NaturalSupports for Canadians with #Disabilities at the @csa_sociology conference this week! We'll be sharing more soon!
#Caregiving #DisabilitySupport
A beautiful message from a political advocate of the Anishinabek Nation! As those on our research team at Queen's University enter the long weekend, we take time to be grateful for traditional Anishinaabe and Haudenosaunee territory on which we live, learn and play.
Moozhendimoowin Naano-Giizhigad
Be gentle with yourself. You're doing the best you can.
Finish off the week strong and have a wonderful long weekend, everyone! #FridayFeeling
ALT Moozhendimoowin Naano-Giizhigad Be gentle with yourself. You're doing the best you can. Finish off the week strong and have a wonderful long weekend, everyone! #FridayFeeling
We're excited to hear this talk which sounds very relevant to our work in understanding how natural and formal #caregiving supports can be appropriately balanced in Canada!
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Beyond Services retweeted
Paying Family Caregivers Could Alleviate Shortage Of Providers, Study Finds disabilityscoop.com/2023/05/…
"The benefits of our therapies and interventions cannot be sustained in the absence of meaningful relationships"
A really interesting read on The Social Role of Friends from @citizen_network
An interesting article to consider for the work of the @_BeyondServices study. citizen-network.org/library/…
