World Autoinflammatory Awareness Month September
Joined August 2020
- Tweets446
- Following289
- Followers224
- Likes76
#AutoinflammatoryAware retweeted
It is time for #HumpDayShenanigans Take 2 to raise #AutoinflammatoryDiseaseAwareness for #WorldAutoinflammatoryAwarenessMonth on behalf of @FMFandAID Come hang, #donate and #share the #gofundme link
gofund.me/80bc3fa48 youtube.com/@darthpyrin twitch.tv/darthpyrin
#AutoinflammatoryAware retweeted
Obstetric and neonatal outcomes in pregnancies with familial mediterranean fever: a comparative study
@AAlliance_SAID @IndiaSAIDgenome @CdnANetwork @autoinflamaware @GencTRASD @hande_snc @anarsiknotrofil @Gulsandaluzun @ReumatologiaU
link.springer.com/article/10…
.@FMFandAID have been interviewing patients & parents throughout World Autoinflammatory Awareness Month.
Want to hear more? Check out their YouTube Channel youtube.com/@fmfandaid?si=R1…
#AutoinflammatoyAware
42
#AutoinflammatoryAware retweeted
📣 Shining a spotlight on Jack Drda 📣
Research interest is immunometabolism, with an emphasis on hepatic cholesterol biosynthesis and isoprenoid metabolites in rare autoinflammatory disorders, such as MKD and the newly described PMVK
#research #immunometablism 💚 🩷 💙
#AutoinflammatoryAware retweeted
Don’t miss TODAY’S @ERNReCONNET webinar at 16 CEST on “Microvascular Involvement in Antiphospholipid Syndrome (APS)” with Prof. Savino Sciascia, moderated by Prof. Ricard Cervera.
✍️Make sure you're registered to participate: rb.gy/zeammx
#AutoinflammatoryAware retweeted
Patient Interviews – Raising Awareness
This month we have scheduled several live patient interviews to raise awareness. We start tomorrow, Sept 3rd, with Josée, a patient and patient representative from Chile. Youtube.com/DarthPyrin
📢 New! European Society of Cardiology
2025 Patient Guidelines for pericarditis & myocarditis are available!
Clear, accessible information to support patients & families.
📄 Download here: escardio.org/Guidelines/Clin…
#esc2025 #PatientVoicesMatter #pericarditis #myocarditis
💚🩷💙
39
#AutoinflammatoryAware retweeted
📢 September is Autoinflammatory Awareness Month – Navigating the Medical Maze
Most doctors still fail to recognize these rare diseases, because they can’t diagnose what they don’t know.
💛 Join us and help raise awareness: fmfandaid.org
#AutoinflammatoryAwarenessMonth
#AutoinflammatoryAware retweeted
Clinical characteristics, disease trajectories and management of vacuoles, E1 enzyme, X-linked, autoinflammatory, somatic (VEXAS) syndrome: a systematic review
@AAlliance_SAID @CdnANetwork @autoinflamaware @CollegioCrei @ReumatologiaU @ComunidadSar
pubmed.ncbi.nlm.nih.gov/3812…
#AutoinflammatoryAware retweeted
A disproportionality analysis of FAERS data (2012–2022) reveals distinct safety profiles of #JAKinhibitors in #RheumatoidArthritis:
🔴 Baricitinib → Highest risk for CV events & cancer
🟠 Upadacitinib → ⬆️risk for respiratory & GI events
🟢 Tofacitinib → Lower cancer risk but more MSK AEs
📢 Personalized risk assessment is 🔑 for safe prescribing!
👉bit.ly/3Fijjlx
#AutoinflammatoryAware retweeted
📣If you are a person living with a #rheumatic disease and haven’t had the chance to share your experience on #cardiovascular risk and prevention, the survey below from a @eular_org study group is still open and more languages are available. Many thanks for your contribution!
📢 A @eular_org study group project!
Are you a person living with a #rheumatic and musculoskeletal disease? Share your thoughts on #cardiovascular prevention in this 15-min survey.
s2survey.net/rmd_cardio/
Languages: 🇬🇧🇮🇹🇪🇸🇫🇷🇩🇪🇵🇹🇭🇺 🇩🇰🇳🇱
Thank you!
#AutoinflammatoryAware retweeted
Autoinflammatory diseases are rare genetic conditions of the innate immune system, which cause debilitating and recurring symptoms.
#periodicfevers #autoinflammatorydiseases #RareDiseaseDay2025
#AutoinflammatoryAware retweeted
🅰️🅰️ What do you think about bDMARDs in renal AA #amyloidosis?
84 patients👫
3️⃣ aetiological subgroups:
🔵 chronic inflammatory diseases + AA ⇒ #tocilizumab
🔴 autoinflammatory syndrome + AA⇒ #IL1inhibitors
🔘 idiopathic AA ⇒ #tocilizumab
🔗 bit.ly/4dp6C4h
#AutoinflammatoryAware retweeted
Our #JanuaryIssue is out now! Featuring #Reviews on the ‘Treg paradox’ in #inflammatory #arthritis, classification of the #autoinflammatory interferonopathies and an update on #autoantibodies in the idiopathic inflammatory myopathies.
bit.ly/41Lg9QA
#AutoinflammatoryAware retweeted
#JanuaryIssue | Emerging concepts and treatments in autoinflammatory interferonopathies and monogenic systemic lupus erythematosus
The authors propose a pathogenesis-based classification of #autoinflammatory interferonopathies in this #Review
bit.ly/49MMpVt
#AutoinflammatoryAware retweeted
Images in Rheumatology
Autoinflammatory Diseases and Vasculitis: The Missing Link
📰 jrheum.org/cgi/content/full/…
#familialmediterraneanfever #autoinflammatorydiseases #vasculitis
#AutoinflammatoryAware retweeted
The essentials on Blau syndrome, brought to you by #GRAI (Romanian Group for #Autoinflammatory Diseases).
#AutoinflammatoryAware retweeted
.@EV_Erika_ @KajasteLab et al characterize a novel STING variant that causes SAVI disease—a rare, genetic autoinflammatory disorder involving increased type I IFN and inflammatory signaling. hubs.la/Q033w6GM0
📘 In our #Immunology update collection: hubs.la/Q033wd590
