oddball mix of enthusiasms -poetry, theatre, bronchiectasis
Tideswell, Peak District
Joined February 2009
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- Following624
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Barbara Crossley retweeted
Bronchiectasis is a lung condition you might not have heard of, but it affects more than 200,000 people in the UK and millions around the world. There are no treatments and it remains hard to diagnose, which is why @lifearc1 and @asthmalunguk are working together to change this.
Barbara Crossley retweeted
We did it!
More than 1000 participants joined us for the World Bronchiectasis Conference #WBC2024 hosted in Dundee.
Incredible breakthroughs for bronchiectasis patients, warm friendship and so many memories.
Thank you to everyone who worked so hard to make this possible
❤️❤️❤️
Barbara Crossley retweeted
For most of the past 3 decades, bronchiectasis has been treated as an infectious disease.
A new Review in @LancetRespirMed argues that bronchiectasis is primarily a chronic inflammatory disease and introduces a novel concept of disease activity: hubs.li/Q02FqqBl0
ALT Figure showing the role of inflammation in the initiation and progression of bronchiectasis. Copyright: Elsevier Ltd. All rights are reserved.
Barbara Crossley retweeted
The Precision Medicine Era of Bronchiectasis
🔓 Open Access
🔗 tinyurl.com/5n8yz8jy
Barbara Crossley retweeted
Good evening from #WBConf24!
Today we enjoyed meeting with our #bronchiectasis advisory group and hearing bronchiectasis facts presented in a patient-friendly way.
Visit our webpage and learn how we promote the voices of people with bronchiectasis: europeanlung.org/en/people-a…
Barbara Crossley retweeted
Its time to shift the paradigm in bronchiectasis
Thinking about bronchiectasis as an inflammatory disease means
- earlier intervention
- focus on non-antibiotic treatments
- clinicians and scientists working together
- Pipeline of new anti-inflammatory treatments
@MereteLong
Attending the #WorldBronchiectasisConference?
Check out our latest Review "Rethinking #bronchiectasis as an inflammatory disease"
The review is available free here: tinyurl.com/4eau8622
#WBC2024
Barbara Crossley retweeted
No better in Australia. Only around a half of patients with bronchiectasis in Europe perform regular airway clearance. Techniques and use of airway clearance management is heterogeneous, suggesting the need for clearer guidelines and stronger evidence. bit.ly/3v2CFGy
Barbara Crossley retweeted
Bronchiectasis is a heterogeneous disease. if we want personalised medicine, we need BIOMARKERS to guide treatment
Explore the pathophysiology of bronchiectasis by checking out our latest paper from @emma_d_johnson and @MereteLong
err.ersjournals.com/content/…
Barbara Crossley retweeted
Patient perspective represented by @crossb and her colleague from Greece @EuropeanLung @EMBARCnetwork
Barbara Crossley retweeted
Tomorrow is World Bronchiectasis Day! Join us for a special webinar- ask you questions and get answers from real experts on the condition including @michalshteinber @AlibertiStefano @crossb and many more
I'll be behind the scenes answering as many questions as i can!
Ask us your questions about bronchiectasis, particularly about current and future treatment. We will then answer these questions live in our Bronchiectasis Question Time webinar on 1 July.
Find out more: europeanlung.org/en/get-invo…
#WorldBronchiectasisDay
Barbara Crossley retweeted
Ask us your questions about bronchiectasis, particularly about current and future treatment. We will then answer these questions live in our Bronchiectasis Question Time webinar on 1 July.
Find out more: europeanlung.org/en/get-invo…
#WorldBronchiectasisDay
Barbara Crossley retweeted
New paper from @EMBARCnetwork
Diagnostic delay and access to care in bronchiectasis
A survey of 760 patients from 40 countries
40% of patients wait 5 years+ for a diagnosis and 25% wait >10 years from symptom onset
led by @AriettaSpinou @MichalShteinbe1
erj.ersjournals.com/content/…
Barbara Crossley retweeted
Join us for a free @EMBARCnetwork webinar on airway clearance and pulmonary rehabilitation 👇🫁 @ErsPhysios @ERS_Assembly9 @TheACPRC @TheACPRClondon @KingsResp @Physio_KCL @lifecourse_KCL
Register for this free webinar by EMBARC ersnet-org.zoom.us/webinar/r……. 26.06.24, Prof Michal Shteinberg is joined by Arietta Spinou and Beatriz Herrero-Cortina to discuss "Airway clearance and pulmonary rehabilitation in bronchiectasis"
@MichalShteinbe1 @AriettaSpinou @Beika_Physio
Barbara Crossley retweeted
So sad to learn of the death of Kathryn Bevis. I knew her first of all as a kind soul who cheered other poets on, then as my student. Later, I watched her soar and I used her stunning, resonant work in my teaching. Thinking of her family and many friends. xxx
Barbara Crossley retweeted
The UK has the worst death rate for lung conditions in Europe. Increasing funding for lung research will improve diagnosis and save lives. Here are the steps the government can take to improve the nation’s lung health: bit.ly/3UtpBTj
Barbara Crossley retweeted
Have you registered yet? #Bronchiectasis2024
The 4th annual Bronchiectasis Patient Conference will include talks from our Bronchiectasis Patient Advisory Group (PAG) members!
Register here: ow.ly/hq4T50QwUjA
Barbara Crossley retweeted
So cool to see our EMBARC @EuropeanLung patient groups hard work showcased at #ERSCongress
Visit the world village and use the qr code to get the self care guide
By patients for patients!
@EMBARCnetwork @crossb @EuroRespSoc
Barbara Crossley retweeted
I really enjoyed watching this last night and, as ever, learnt more ideas about how to manage my bronchiectasis. Thank you to everyone who gave their time up to do this and brilliantly chaired, @crossb
Recording available! #bronchiectasis Question Time on #WorldBronchiectasisDay
Hosted by Barbara Crossley with panelist Donna Heilweil- both - Bronchiectasis Patient Advisory Group members, Josje Altenburg Timothy Aksamit, M.D. Dr A…lnkd.in/dbVT8QjU lnkd.in/dnKkYP-9
Barbara Crossley retweeted
We had a lot of fun! Watch this great webinar on catch-up below 👇
Did you miss the last ERS webinar: Clinical case discussion on acute exacerbations in bronchiectasis and cystic fibrosis?
Watch the replay now via the ERS Respiratory Channel:
channel.ersnet.org/media-426…
Barbara Crossley retweeted
The new ELF/EMBARC resource – Bronchiectasis self-care guide –A bronchiectasis self- help guide, created by patients with the help of EMBARC The European Bronchiectasis Network professionals and designed for patients to help cope w…lnkd.in/dbc58p6M lnkd.in/dRvBnAN6