The CSF Leak Association is a UK registered charity CCEW (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
England, Scotland, Wales & NI
Joined April 2016
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Over on our Instagram, Facebook, & LinkedIn (links in bio) you can view the full set of the graphics.
For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website:
csfleak.uk/
CSF Leak Association retweeted
🧠 Neurosurgery Consultant Interview Masterclass
Ready to take the next step in your neurosurgical career?
📅 10 February 2027
📍 UCL Wolfson Centre, London
💷 £225 external | £125 NHNN
✅ Expert panel insights
✅ Mock interviews & presentation practice
✅ Personalised faculty feedback
Only 20 places available!
🔗 qssimulationcentre.com/cours…
#Neurosurgery #MedicalEducation
Meet Deborah Lunnon.
She’s experienced recurrent spinal CSF leaks since 2007.
Deborah has had multiple interventions, all of which have worked for varying degrees of time, but the leaks ultimately return.
#csfleak
#neurology
#EDS
#csfleakassociation
#The Ehlers-Danlos syndrome
#InvisibleDisabilitiesWeek
🫥 Help make CSF leaks more visible 🙂
Share challenges and triumphs!
Share what helps get you through the day and help us make CSF Leaks visible! 💙
#csfleak #invisiblenomore #livestream #invisibleillness #chronicheadachenvisible
CSF Leak Association retweeted
先日投稿した
厚労省研究班による
#脳脊髄液漏出症 診断基準では
私のような典型例は
診断されるようになったのですが
小児を含め約❽割の患者さんは
先の基準では診断に至らないとされています･᷄-･
⑮年後の今日も多くの患者さんが診断治療につながるよう
対策に取り組んでくださっています´-
“I felt like my head was going to explode. I never imagined it would feel so terrifyingly real.”
Meet Bernadette, a Dr who suffered a CSF Leak.
Links in the comments
#cerebrospinalfluidleak
#spinalcsfleak
#cranialcsfleak
#intracranialhypotension
#doctor
CSF Leak Association retweeted
UK CSF Group Meeting 2026
🚨 FINAL CALL FOR ABSTRACTS!
⏰ Deadline: TOMORROW, 20th October, 23:59!
📅 9th November 2026
📍 Royal College of Surgeons, Edinburgh
Submit your research for a chance to present at this year's meeting!
🔗 qssimulationcentre.com/cours…
#UKCSF #Neurosurgery #Hydrocephalus
Having a CSF leak can be frustrating. We want you to know we get it 💖
With your support we can raise CSF Leak awareness.
#CSFLeak #CSFLeakAwareness #CerebrospinalFluidLeak #SpinalCSFLeak #CranialCSFLeak #IntracranialHypotension
#SIH (Spontaneous Intracranial Hypotension)
CSF Leak Association retweeted
Dr. Matt Robbins leads off the Inaugual @issclsociety Meeting in NYC with a New York perspective on #spinalcsfleak
CSF Leak Association retweeted
@DrIanCarroll telling us what is new in Anesthesiology in CSF leak including #PDPH @issclsociety Inaugural Meeting
CSF Leak Association retweeted
Dr. Farnaz Amoozegar, Secretary of @issclsociety, discusses What Is New In Neurology at the Inaugural Meeting of ISSCL
CSF Leak Association retweeted
@KathaDCwolf presents very interesting data from across a spectrum of CSF disorders @issclsociety Inaugural Meeting
CSF Leak Association retweeted
@Eikeip discusses what is new in Neuroradiology in #spinalcsfleak (spoiler alert: a lot!) @issclsociety Inaugural Meeting
CSF Leak Association retweeted
@NeuroradLal Dr. Lalani Carlton Jones shows us why she is a world expert in #SIH @issclsociety Inaugural Meeting
CSF Leak Association retweeted
The inimitable Dr Deb Friedman discusses the knows and unknowns about connective tissue disorders and #SIH @issclsociety Inaugural Meeting
CSF Leak Association retweeted
@AjayMadhavanMD shows why he is a king of myelograms 👑 @issclsociety Inaugural Meeting
CSF Leak Association retweeted
The right diagnosis is spontaneous intracranial hypotension due to spinal #CSFleak. Notice the engorgement of pituitary, the effacement of prepontine cistern, the sagging of brainstem with ventral flattening of the pons, the narrowing of the mammillopontine distance, the rounding of the dural venous sinus cross-section.
Tonsillar descent is not the only finding, which should pull you away from the label of Chiari 1 malformation (a developmental deformity).
See this thread for a companion case and diagnostic scoring details xitter.cf/francisdeng/status/189…
CSF Leak Association retweeted
What is the most likely diagnosis, based on this image, which is commonly misdiagnosed (as on this webpage!) as Chiari 1 malformation?
radsource.us/chiari-i-malfor…
Stand Up for CSF leak Awareness
Help raise awareness, because awareness matters.
All it takes is one more person to know about CSF leaks and say “Hang on, I’ve heard of this.”
#CSFLeak #CSFLeakAwareness #CerebrospinalFluidLeak #SpinalCSFLeak
