Raising funds & awareness for Usher syndrome research. Secretariat for All Party Parliamentary Group. Registered charity, 1181293.
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Joined September 2018
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Do you know about Usher syndrome patient information day @Moorfields on Saturday 21st March. Register here eventbrite.com/e/usher-syndr…
Follow us on twitter, Instagram and our website cureushersyndrome.com for all of our upcoming updates on research and trials for treatment for vision loss connected to User syndrome. @cureusher
#ushersyndrome #retinitispigmentosa
Listen to-and watch this interview about Usher Syndrome m.youtube.com/watch?v=rcvRKm…
International day of charity @cureusher
We raise awareness of usher syndrome
A rare genetic condition that is the leading cause of combined hearing and vision loss
We strive to raise awareness and raise funds for a cure for vision loss
❤️🤍
Cure Usher retweeted
After Saturday's washout, we move onto our final travel of the season as we take on @StamfordhamCC. Always a cold affair in the open fields of Grange Park with jumpers required! This week, we're delighted to raise awareness of the work of @CUREUsher. #UpTheCows
Cure Usher retweeted
Do you know what Usher syndrome is ?
It is a rare inherited genetic condition.
It’s the leading cause of combined deafness and blindness. Dual sensory loss.
There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at cureushersyndrome.com
Do you know what Usher syndrome is ?
It is a rare inherited genetic condition.
It’s the leading cause of combined deafness and blindness. Dual sensory loss.
There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at cureushersyndrome.com
Cure Usher retweeted
We have a few places left for @CUREUsher if anyone would like to run it and fundraise for us at the same time 🩷
🏃♀️🏃♀️ CAN YOU HELP 🏃♀️🏃♀️
We have limited spaces available but would love to fill them up 🙏🏼✨
All donations go directly towards research for a treatment for Usher syndrome
#ushersyndrome
Cure Usher retweeted
So very early Monday morning the Cure Usher Ball’s DJ starts his five day walk across the Trans Pennine Trail . Then he’ll join me to wing walk high above Manchester Sunday 27th July. All to raise funds for @CUREUsher . Can you help ?
justgiving.com/page/michael-…
Cure Usher retweeted
FUNDRAISING APPEAL: Help Save a Deaf Child's Sight!
#RaceToSeeTheRise
I’ll take on the biggest challenge of my life by trekking #Scafell Pike through the night in total darkness to reach the summit
Together, we can @CUREUsher
Let’s come together
Let’s rise
justgiving.com/page/jo-milne… – at Low Fell, England
ALT ID: a grainy photo of Jo as a child seated at a birthday party, she is wearing a boxy phonic ear (hearing aid). She has shoulder length blonde hair and is wearing a red dress and blue top
Cure Usher retweeted
What a legend. Georgia is running a MARATHON for @cureusher for her friends beautiful children who have usher syndrome. What a difference she is making and she’s nearly reached her target. I’ve sponsored. Please do if you can. Total respect. We support you every step 🏆
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound.
In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of life."
Georgia is running the @BrightonMarathn for @CUREUsher in support of her best friend Kim's two young children 💜
Donate here: just.ly/4k3LggG
The amazing Georgia running @BrightonMarathn for @CUREUsher
You’re amazing and we are cheering you on all the way. Please read and sponsor if you can. We are working toward me a cure for Cole and Sadie and so many more 🙏🏼🏆
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound.
In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of life."
Georgia is running the @BrightonMarathn for @CUREUsher in support of her best friend Kim's two young children 💜
Donate here: just.ly/4k3LggG
Who would like to support us find a cure for usher syndrome?
We have limited spaces left for the Birmingham half?
Www.cureushersyndrome.com
Cure Usher retweeted
Pls help me spread word tomorrow (tue) 8pm on ITV I'll be talking you through how to check if you can boost your State Pension by possibly £10,000s. There is an urgent deadline coming after which many lose the opportunity.
This is a must watch for anyone age 40 to 73.
Cure Usher retweeted
We had great fun today but the cause we’re supporting is a very real challenge for families. Please take a moment to learn more of @CUREUsher and support @jomilne10 and this amazing charity cureushersyndrome.com/
WORLD • HEARING • DAY
Please share your stories in the comments
#worldhearingday
#ushersyndrome
