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Diane Pickles

@dmpickles

A Jersey girl at heart living in MA; love family, sports, beaches, and books; Program Director, Project Singular, Additional Ventures. Opinions my own.

 Massachusetts
Joined March 2009
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Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)Photo by Diane Pickles (@dmpickles)
So grateful to have been a part of this incredibly important report.
Additional Ventures (@AdditionalVent) profile pictureAdditional Ventures@AdditionalVent16 Apr 2024
🚨New Report: Disproportionate Economic Burden of complex #CHD We’re proud to share our report examining the cost of complex #congenitalheartdisease on patients, families, and the US economy. Read more & download the full report! additionalventures.org/news/…
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We have exciting announcements dropping this week ... any guesses? 👀
Image from Additional Ventures (@AdditionalVent)
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Hot off the press! 🚨 We’re proud to share our 2022-2023 Annual Report – and highlight the people, projects, processes, and programs working towards finding a functional cure for #singleventricle #congenitalheartdisease ow.ly/Wg8V50PKfUB
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With $2.25M, how would YOUR team tackle single ventricle sequelae? 💭💡 #fundingopportunity #singleventricle @AHAScience Learn more and apply: ow.ly/isYm50PJ1xy 📆 Pre-Proposals (LOIs) are due December 19th!
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As a former employee of AHA, a current employee of Additional Ventures, and mom of an adult with single ventricle heart disease, I am incredibly excited about this new initiative. Please spread the word!
Additional Ventures (@AdditionalVent) profile pictureAdditional Ventures@AdditionalVent7 Sep 2023
📣 Today is the day! Together with @AHAScience, we are thrilled to announce the LAUNCH of the AHA/AV Collaborative Sciences Awards in Single Ventricle, dedicating over $13M to support #singleventricle focused research 🫀 Learn more and apply: ow.ly/1usC50PIYTT
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Stay tuned!
Additional Ventures (@AdditionalVent) profile pictureAdditional Ventures@AdditionalVent6 Sep 2023
👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle
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👀 We've been cooking up an exciting collaborative opportunity for the field, and we can't wait to share! Stay tuned for something BIG - announcement coming tomorrow❗#fundingopportunity #singleventricle
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“Just because the focus is narrow, I don’t think the impact is small” ~ Erin Hoffmann, President & Co-founder @AdditionalVent on the importance and broad downstream benefits of funding for research on #RareDiseases #SVIM2022
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Join us at #Cardiology2022 TODAY at 4PM for a happy hour & information fair about #ProjectSingular & @FontanOutcomes! + Hear from leaders in #singleventricle research @dmpickles Erin Hoffmann @kk_does_science Jack Rychik @CaroleLannon @sllihn @TomGlenn_3 ow.ly/TN4450KtVkm
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We're thrilled to catch up on all the latest advances in #pedscard & #congenitalheartdisease at #Cardiology2022! Stop by our poster today and learn about #ProjectSingular - our new direct-to-patient whole genome sequencing initiative for #singleventricle! ow.ly/OXhb50KtVcP
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I hope to see you all there! So excited to share these two amazing initiatives where I am honored to spend my time.
Additional Ventures (@AdditionalVent) profile pictureAdditional Ventures@AdditionalVent25 Aug 2022
Don't miss it! We're sponsoring an information fair & happy hour all about #ProjectSingular & @FontanOutcomes - two game-changing innovations in the #singleventricle space! REGISTER ow.ly/mYmk50KrnYs 📍Join us at #Cardiology2022 Sept 1st at 4PM PT nitter.gq/HeartCare4Kids/status/…
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It's not too late to join us at #SVIM2022 on October 6-9th at the Baltimore Marriott Waterfront! 🦀 Interested in participating? Submit your late breaking abstract now through Sept 5th & register by Sept 30th! Learn more & register: cvent.me/3PD9lD
Image from Additional Ventures (@AdditionalVent)
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🚨 Hot off the press! We're thrilled to contribute to the @JCDD_MDPI Special Issue on #HLHS Etiology, Pathogenesis, Management and The Future Catalysts for Change: The Role of Nonprofits in Solving #SingleVentricle @KaitlinPhD @dmpickles @kk_does_science mdpi.com/2308-3425/9/7/220/h…
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🚨THREE MORE MONTHS until we're hosting the biggest event in #singleventricle heart disease research!! You won't want to miss this special event -- head over to our website to REGISTER & join us at #SVIM2022 #conference October 6-9 ow.ly/oGOB50HpUF5
Image from Additional Ventures (@AdditionalVent)
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Deadline Extended! 🚨 We want to hear from YOU about what you'd like to participate in at #SVIM2022 Submit your ideas now for breakout sessions that will take place during the meeting. Due 7/15! forms.gle/noHcSv1h3JFhRze86
SVIM 2022 Breakout Session Application

SVIM 2022 Breakout Session Application

Breakout Sessions at the Single Ventricle Investigator Meeting are designed to encourage interaction and discussion between a small group of conference attendees (e.g., 15-50) pursuing a common goal....

docs.google.com
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We're hosting an open call for research proposals relevant to #singleventricle #congenitalheartdisease - including etiology, outcomes, care, & cures. Learn more about #SVRF2022 here: ow.ly/7QCO50JjT8z 💲 Up to $600,000 over 3 years 📆 #SVRF2022 LOI due Aug 5
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When you are the mother of a special needs child, you put one foot in front of the other & you fight like hell. Hear the story of @dmpickles this morning on at 11:30 on @WRKO680.
Image from Candy O'Terry aka Candy O (@CandyOterry)
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A power panel talking about an incredibly important topic: “The Lifelong Impacts of CHD”. Thank you! @NKasparian @SoodErica @AdrienneK_PhD @MoonsPhilip #ACHD2022 @sasha_opo
Image from Diane Pickles (@dmpickles)
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We're excited for #ACHD2022 at @CincyACHD @CincyKidsHeart this week where our own @dmpickles will present on #ProjectSingular 🧬 - our new direct-to-patient whole genome sequencing initiative for #singleventricle patients & families. You won't want to miss it!
Image from Additional Ventures (@AdditionalVent)
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What a fantastic time at #Weinstein2022 enjoying fantastic science and engaging discussion in beautiful Marseille, France! 🇫🇷 We are honored to attend this conference and support this impressive group pioneering advances in🫀 #cardiovascular #devbio & regeneration #heartdev
Image from Additional Ventures (@AdditionalVent)
Image from Additional Ventures (@AdditionalVent)
Image from Additional Ventures (@AdditionalVent)
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