PhD Biochemist. #SevereME šŸ›Œ

London, England
Joined July 2011
#MEKills ā€žList of deaths caused by myalgic encephalomyelitis or chronic fatigue syndromeā€œ #MyalgicE patients like Isla, Kara, Sam, Merryn... died from strokes,cardiac arrest,respiratory arrest, organ failure,sepsis,cancer,other complications or starvation. me-pedia.org/wiki/List_of_de…
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The problem w Miranda Hart isn’t that she ā€žovercameā€œ her illness or that people are begrudging her. It’s that she’s on national television, telling everyone that she walked her way out of it. That echoes what garner and all the other bps people say. It can be harmful for a lot.
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The ones who are the sickest of the sick, the ones who are ā€œchoosingā€ euthanasia, are not in a position to go on Celebrity Traitors to explain how ā€œfatiguing illnessesā€ work.
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Miranda Hart’s new memoir on chronic illness seems very well intentioned but this pseudoscience is worrying. If you’re writing a book after you’ve recovered, there’s a particular responsibility to be accurate to readers who are desperate to recover too.
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#RIP šŸ–¤Jessica Natalie Hermens 28.1.2002-8.9.2026šŸ–¤ Nicht nur ein weiterer Tod auf einer Liste von an #MECFS Verstorbenen - ein ausgelƶschtes hoffnungsvolles Leben... In Gedanken bei ihren Eltern und Geschwistern, sowie allen, die sie vermissen.šŸ’” remembered.co.nz/funerals/17…
Rip fellow me/cfs sufferer Jess Herman, a New Zealander, her passing was posted on the nz support group, I didn’t know her personally but she should be grieved by our community none the less šŸ’™šŸ•Æļørest in peace Jess. I’m sorry for another loss to this illness
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If a woman wearing a ā€œRelease the Epstein Filesā€ shirt makes you angry enough to join a group of men in beating the shit out of her, I’m going to assume you’re all fucking pedophiles too.
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#RIP Mikey Dekker ✰ 8. Februar 2001 † 8. Februar 2026 #MECFS nahm ihm alles, was ein Leben lebenswert macht!šŸ’” Er spendete sein Gehirn der Wissenschaft. Außerdem beteiligte er sich an der Forschung zu PEM. Er hoffte, damit anderen ein besseres Leben ermƶglichen zu kƶnnen.šŸ•Šļø
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1/3 Too many shocking accounts of appalling treatment of patients with #ME continuing to emerge. Despite some advances in recent years, the patient community has yet to change an entire culture. Until that happens, there will be little substantive change in attitudes/treatment...
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This is what Ed Sheeran's music would taste like as food:
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#RIP šŸ–¤Carolin Susanne Becker * 1.10.1988 † 3.9.2026šŸ–¤ ā€žDie Zuversicht und die Kraft, die das Leben forderte, hatte sie verloren.ā€œšŸ„€ In tiefem Mitgefühl mit allen, die ihr nahestanden.šŸ’” #MEKills WIE VIELE WERDEN NOCH GEOPFERT?
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In 1981 eight unimaginably brave souls put to sea in murderous conditions because a call went out. They sought neither reward nor praise. They were @RNLI and they were the best of their community. Support your local lifeboat
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Wenn du mit einer Bekannten spazieren gehst, deren Tochter (18) ebenfalls an #mecfs erkrankt ist, und das GesprƤch kreist darum, dass die Tochter assistierten Suizid beantragen mƶchte, weil es KEINE Therapie und KEINE Perspektive gibt – dann ist die Welt grausam aus den Fugen.
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The RNLI isn't subsidised by the taxpayer. Some people seem to be getting them mixed up with Eton, Harrow and Winchester.
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So-called ā€œpatriotsā€ are now trying to find the HOME ADDRESSES of @RNLI volunteers. Read that again. People who give up their time to launch into dangerous seas and save strangers are being personally targeted for doing it. This isn’t patriotism. It’s intimidation.
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We need to talk about the radicalisation of the elderly. They are not well equipped to handle social media fake news
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Throw a milkshake at farage and Reform will claim its an assassination attempt. Assault a women with a weapon and reform response is "Boo hoo" The hypocrisy is wild.
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We are witnessing an assault here and the police must investigate. The protester has a right to heckle, whether you or I agree or disagree with the views or approve or disapprove of the tactic. But it is against the law to physically attack people.
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Renaming Mar-a-lago to "Casa-de-Epstein" since anyone can rename anything.
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