
adopter, SEND patent, therapeutic parent (on a good day), navigator of neurodivergence, author "and then there were four," "and trauma made five," #exhausted
Yorkshire and Humber, England
Joined January 2009
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So today my son didn't make it in.
And I'm not sure there is a route back into school that he can manage.
Even an hour has his anxiety and stress to such elevated states he's struggling.
If only there were alternatives to traditional mainstream school that had places...
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My son decided not to attempt school today.
He hasn't been in 9 months (because the situation isn't a match) but is starting again with 1h.sessions.
Today the movie "unauthorised absence" is released
I'll be watching it on YouTube - it's our story too
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If your child is smart but struggles in mainstream...
Doesn't struggle enough for specialist - even if she was they're not aimed at her smartness
Online learning misses friends, routine, structure
Classes are sensory nightmares
She falls between a rock n hard place. My 💔
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Just working on the style of Grandma and Grandpa - loving the glasses, knitting needles in her bun and their slippers...
I'd forgotten just how much I love these characters ❣️
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So many days are trudging through mud
Talking to people who might help
Educating people about your child's bespoke needs
Fighting for their rights
Filling out forms or referrals or trying to get appointments
It's exhausting
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Sometimes I can't find an answer to "how's it going?"
Sometimes the constant juggling of demands feels like I'm drowning
Sometimes the only place I can be me is on paper, writing in my book
Sometimes I just need to sit and read - I'm there now
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Dr Emma Sutton retweeted
To the “everyone is Autistic or ADHD now” crowd:
When the whole world stopped in 2020, and everyone was mandated to stay in their homes, every burnt out, high-masking autistic person got to finally drop the lifelong masks and just be themselves for months.
And when social distancing policies started dropping and we got back to “normal,” it was impossible for those people to simply pick those lifelong masks back up as we dropped them, shattered them.
Just sit with that.
Today is the first foggy morning where Sir Ruskin (my rusty owl) has a bejewelled cobwebs
He's really settling in
(Made by the fabulous Mick Kirkby-Geddes)
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And today, book two in the series went live on Kindle (paperback to follow)
What happens several years into the adoption journey?
And Trauma Made Five is an "unputdownable" story that's "heart wrenching and heart-warming"
amzn.eu/d/030UwBZk
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What shall I make for tea?
Let's start with who is eating.
Deffo - two adults.
Maybe - son and GF
Maybe - daughter and new friend (whose tastes I know nothing about)
Everyone likes/ dislikes/ loathes different things and I'm gluten-free
Even meals are cryptic conundrums
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What I missed most was
1. Solutions and signposts - when I described dysregulation central and someone mentioned PACE or NVR
2. Understanding - when I described something I was finding hard, someone going "that's tough, we've got you"
3. Community - feeling I belonged.
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Dr Emma Sutton retweeted
🚨 NEW: People with ADHD can now get a third off train tickets under Government changes to the disabled railcard to include people with neurodivergence
None appeal.
I don't like harsh edges (3 and 4 are out)
Or uneven tines (2)
I prefer a smooth even texture with no embossing (like 3 and 4 but the corner means nope)
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This week I resigned from a voluntary role I enjoyed
Because when life adds more plates to the ones you're already struggling to keep spinning, something has to give
EHCPs, DLA & PIP, SEND, adoption, neurodiversity, mental health...
That's more than a full-time role
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When my husband had a TIA (mini-stroke) his symptom was being unable to follow a text conversation
He thought the other person was drunk
Until the next morning when their texts made complete sense ...
The first sign of a stroke might not seem like much, like not being able to raise your arm. Or struggling to smile. Or slurring when you speak. Any sign of a stroke is always an emergency.
Face or arm or speech, at the first sign, it's time to call 999.
#WorldStrokeDay
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Draw with Rob was a lockdown slice of sanity for me (and one of our kids)
I'll never forget those moments of shared crafting....
It's the season of the witch's cat, so grab your pens and pencils and draw one with me! #DrawWithRob #Halloween 🐈⬛
✏️youtu.be/1QP_IE68EEM













