A social scientist interested in educational support for caregivers of persons with dementia, independently produced drug information & research ethics
Joined December 2013
- Tweets442
- Following116
- Followers25
- Likes771
Linda Furlini retweeted
How doctored science infected Alzheimer’s research - thanks to @jackiefmogensen for a masterful entry point to my new book in a way that provides key context for this political moment motherjones.com/environment/… via @MotherJones
Linda Furlini retweeted
This long thread from @schrag_matthew is an object lesson, cautionary tale, and searing testimony about what went wrong in a key Alzheimer's journal trusted by scientists and clinicians to give honest advice on treatments.
Soutien à domicile | Victimes des coupes lapresse.ca/actualites/sante… via @lp_lapresse Quelle honte et quelle inhumanité de traiter les gens de cette manière ! Les services offerts sont déjà connus pour être insuffisants. hashtag#soutien à domicile
Linda Furlini retweeted
“How Bad Is Fraud in Alzheimer’s Research?”: a Q&A.
beingpatient.com/fraud-alzhe…
Linda Furlini retweeted
“UnitedHealth used an algorithm system to identify patients who it determined were getting too much therapy and then limited coverage. It was deemed illegal in three states, but similar practices persist due to a patchwork of regulation.” propublica.org/article/unite…
Linda Furlini retweeted
From pre-diabetes to Alzheimer’s disease in the cognitively normal, there is an ongoing push to label healthy individuals as sick. Who benefits from this and who is harmed? One of my favorite med journalism articles of 2024 dives into the debate.
🧵 1/4
latimes.com/science/story/20…
Condamné à la prison à vie à 81 ans | Abandonné par le système, il tue « par compassion » sa femme atteinte d’alzheimer lapresse.ca/actualites/justi… via @lp_lapresse Les proches aidants sont abandonnés par le système de la santé.
Accessibilité à LaSalle : des réussites et des angles morts, mais une volonté politique nouvellesdici.com/actu/acces… #handicap La volonté politique doit être rapide et l’action ciblée
Linda Furlini retweeted
Alzheimer’s and stroke research luminary Berislav Zlokovic goes on indefinite leave from #USC – my 2023 investigation showed evidence that he had been doctoring his research for decades | Science | AAAS science.org/content/article/…
Linda Furlini retweeted
But don’t worry about the safety of this new drug for #Alzheimers, b/c @US_FDA has asked #Pharma for a "prospective observational study" to track deaths, brain bleeds and swelling.
Final report due in only 13 years!
bmj.com/content/386/bmj.q201…
🙏@ShannonBrownlee @bmj_latest
Linda Furlini retweeted
"This book by @FearLoathingBTX left us wanting to be the kind of doctors who practice courage and candor, or at the very least ones who do not tolerate the occasional human sacrifice."
journals.stfm.org/familymedi…
🙏@STFM_FM
Linda Furlini retweeted
BMJ reports that 3 of 11 FDA advisory members who recommended approval of donanemab received direct payments or research funding from its manufacturer, Lilly, 2 had ties to Roche, Lilly’s partner in a #Alzheimer's blood test…
(conflicts continue 1/2🧵)
bmj.com/content/386/bmj.q201…
Linda Furlini retweeted
"No drug should be called 'transformative', 'landmark' or 'life-changing' until used in many people for sufficient time to identify harms": 🎯 @Pharmed_Out
Not in a 24-week clinical trial of fewer than 300 patients, evaluated by a surrogate marker.
healthjournalism.org/blog/20…
Linda Furlini retweeted
An analysis of FDA’s Adverse Event Reporting (FAERS) data, just posted on @researchsquare, provides early evidence of real-world increased mortality among #Alzheimers patients treated with anti-Aβ monoclonal antibodies, aducanumab & lecanemab. 🧵 (1/6)
researchsquare.com/article/r…
Linda Furlini retweeted
"An Alzheimer’s drugmaker is accused of data manipulation. Should its trials be stopped?"
biopharmadive.com/news/cassa…
Linda Furlini retweeted
"These trials [should] have never been permitted to start. There is a moral obligation not to experiment on patients in this context." 🙏🎯 @schrag_matthew
biopharmadive.com/news/cassa…
#research #misconduct #Alzheimers
Linda Furlini retweeted
So called "neutral" or "objective" patient organizations depend heavily on #Pharma, which uses the $$ it 'donates' to achieve its aims: 🎯@mgtmccartney
But these aren’t donations. They are bribes.
investigate-europe.eu/posts/…
@haronba @ColleenFuller
Linda Furlini retweeted
"I’m floored ... Hundreds of images. There had to have been ongoing manipulation for years."
Another stunning investigation by Charles Piller.
My new investigation for @newsfromscience: Did a top @NIH official manipulate Alzheimer's/Parkinson’s research for decades? Neuroscientist Eliezer Masliah found to engage in scientific misconduct; 132 of his papers fall under suspicion
science.org/content/article/…
