Chief Patient Advocate @Rx4Good. Sarcoma survivor. Author. Fan of books, coffee, dragons and chocolate, in no particular order.
Nashville, Tenn.
Joined September 2008
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.@NashSevereWx Getting windy down here in Brentwood! #wheresmygarbagecan
Heidi Adams retweeted
The most powerful force in healthcare is the self-advocating patient
#NationalPatientAdvocacyDay
LOVE that slide…
Full house watching the amazing @jillfeldman4 highlighting the importance of always engaging patients in trial design, outcomes selection, & the importance of real world data & lived experience of patients
#ASCO22 #LCSM @EGFRResisters
Heidi Adams retweeted
Looking for a little Friday happy hour optimism? Come give a listen from 5-6p et to me talking about what all's going on and where we might could be headed via Radio Free Rhinecliff: radiofreerhinecliff.org/
More than 3 million times a year, technologists make a mistake and accidentally inject radiation into a patient’s arm tissue instead of vein during a nuclear medicine scan. Join me in signing this petition to demand safer nuclear scans! safernuclearmedicine.org/pet…. #ActNowNRC
Heidi Adams retweeted
#youngadultcancer patients face a unique set of problems, but not so long ago they were a largely invisible and underserved community. On this episode we talk to mavericks of a new generation who fought to give young adults like them a voice. #ayacancer open.spotify.com/episode/3Oh…
Check it out!
Hi @heidisa! We have a great opportunity for young adults, ages 16-24, impacted by cancer. Our 3-day Virtual Summer Campference is back, June 25-27th! It's a place to have fun and learn with a community that gets it. And it's FREE! Apply here:
nextstepnet.org/campference/
Loved watching @suleikajaouad on @CBSSunday speak eloquently of #cancer survivorship as a young adult. Can’t wait to read her new book! amazon.com/Between-Two-Kingd…
Heidi Adams retweeted
This is a statement I plan to give to the Utah legislature tomorrow. Please read and RT or like if you support it so I can demonstrate public interest in protecting the fertility of young patients with cancer. Thank you in advance. 🙏
THREAD/
Go, Loyce, go!!❤️🎉
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Per @WrayCharles: Since its inception in 1812, this is only the 4th time an editorial has been collectively signed by the entire NEJM Editorial Board. nejm.org/doi/full/10.1056/NE…
For all my pharma/biotech advocacy friends out there--your nonprofit partners need you!
"How To Be A Good Advocacy Partner In the Time of COVID-19" - Check out this roundup blog of great ideas from our clients and partners: bit.ly/advocacypartners
Hey, @WholeFoodsPR and @NewsRalphs, when are you going to get your geriatric act together?
Your 71-year-old pen pal,
Lenny
