@id_cure

Treatment Registry for Repurposed Drugs. Share your treatment experiences-https://xitter.cf/t.co/yVDMIyjMs6. This is an unofficial friends of CURE ID account. Views our own

 Washington, DC
cure.ncats.io
Joined September 2019
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  • Followers3.5K
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Interested in participating in the CURE ID #LongCovid treatment survey, but have questions about it or want to learn more first? Come hear from patient advocates involved in the survey, as well as staff from CURE ID. Visit cure.ncats.io/pilot-overview…. Webinar: bit.ly/CureIDwebinar
CURE ID Long Covid website and mobile app where patients, care partners, and healthcare providers can share their treatment experiences. Provides a link to the website: https://cure.ncats.io/pilot-overview/Long%20COVID and lists the study sponsors, which include FDA, NCATS/NIH, CURE Drug Repurposing Collaboratory, ME Action, Solve ME, Long COVID Campaign, Patient-Led Research Collaborative, and Dysautonomia International

ALT CURE ID Long Covid website and mobile app where patients, care partners, and healthcare providers can share their treatment experiences. Provides a link to the website: https://cure.ncats.io/pilot-overview/Long%20COVID and lists the study sponsors, which include FDA, NCATS/NIH, CURE Drug Repurposing Collaboratory, ME Action, Solve ME, Long COVID Campaign, Patient-Led Research Collaborative, and Dysautonomia International

Image describing a free webinar being hosted by Dysautonomia International on the CURE ID for Long COVID treatment survey. Webinar is January 23rd, 2025 from 7-8 pm EST. Participants will learn: What is the CURE ID study? How can I get involved? What are the results so far?

ALT Image describing a free webinar being hosted by Dysautonomia International on the CURE ID for Long COVID treatment survey. Webinar is January 23rd, 2025 from 7-8 pm EST. Participants will learn: What is the CURE ID study? How can I get involved? What are the results so far?

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Tomorrow, Thursday, Sept. 24th is the day! Join us for an FDA Grand Rounds on CURE ID and the Agency’s Repurposing Efforts Featuring: Heather Stone, FDA CURE ID Lead and Amy Rick, CDER Associate Director/FDA Rare Disease Innovation Hub. Registration is NOT required. CME available
U.S. FDA
@FDASep 14
FDA Grand Rounds is back! TOPIC: CURE ID & FDA's Drug Repurposing Efforts WHEN: Sept. 24 | 12–1 PM ET Learn how FDA is using real-world data to find new treatments for diseases with limited options — featuring speakers from CDER's Office of Medical Policy & the Rare Disease Innovation Hub. fda.gov/science-research/fda…
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Lyme Innovation @Lyme_X 🙌 Thank you Secretary Kennedy @SecKennedy, Dennis Quaid @reaganthemovie, Dr. Stephanie Haridopolos @Dr_Haridopolos for your priority and leadership on Lyme disease, alpha-gal syndrome—the “meat allergy” from a tick bite—and all tickborne diseases. Helping millions! 💚
Secretary Kennedy
@SecKennedyAug 17
At HHS, we are taking bold new actions against Lyme disease, alpha-gal syndrome, and other tick-borne diseases—accelerating research, improving care, and driving new treatments. Millions of Americans need faster diagnoses, better care, and real answers. Thank you Dennis Quaid for lending your voice to this important cause and joining me in this video.
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Researchers continue advancing Ebola care. Stay informed through the CURE ID Forum and CDC. #Ebola #MedicalResearch #CUREID - cdc.gov/ebola/situation-summ…

Ebola Outbreak: Current Situation

Learn about the current outbreak of Ebola disease affecting DRC and Uganda.

cdc.gov
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Ebola spreads through direct contact with infected bodily fluids. Learn more on the CURE ID Forum. #Ebola #CUREID - cdc.gov/ebola/about/index.ht…

Ebola Disease Basics

Learn about Ebola disease, where it occurs, symptoms, and how to protect yourself.

cdc.gov
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Join the CURE ID Forum to discover real-world experiences with rare and emerging infectious diseases. #CUREID #GlobalHealth - cure.ncats.io/explore/infect…
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Know the signs of hantavirus. Early recognition matters. Explore clinical resources on the CURE ID Forum. #Hantavirus #CUREID - cure.ncats.io/newsfeed/artic…
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Have questions about infectious diseases? Discover case-based resources on the CURE ID Forum. #PublicHealth #CUREID - cure.ncats.io/resources
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#EHE & rare #sarcomas are hard to diagnose & treat. Referral to specialized centers, multidisciplinary care, & clinical trial participation improve outcomes. Collaboration between patients, advocates & researchers, like on cure.ncats.io—Join the action today!
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Learn about hantavirus prevention and explore infectious disease resources on the CURE ID Forum. #Hantavirus #CUREID - cure.ncats.io/explore/infect…
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Rare #sarcomas are increasingly treated with #combinations — evaluating drug combos based on tumor biology to find better options for patients who've exhausted standard treatments. Real-world cases on CURE ID help drive this science. Submit yours today. cure.ncats.io
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Case reports exploring combination therapies — chemo, targeted agents, and inhibitors — for osteosarcoma are growing. 53 reports & 2 discussion boards are on CURE ID. Every submission helps spark hypotheses for future research. Share your case today to help shape future research!
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Hantavirus spreads through infected rodent droppings, urine & saliva. Prevent exposure by cleaning safely. #Hantavirus #PublicHealth #CUREID
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Know where rodents live and reduce exposure at home and outdoors. Prevention starts with awareness. #Hantavirus #OneHealth #CUREID cdc.gov/hantavirus/about/ind…

About Hantavirus

An overview of hantavirus, how it's spread and how it can be treated.

cdc.gov
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We can learn from every person's experience with a #rarecancer. A case using doxorubicin and trabectedin for #leiomyosarcoma showed a promising response. Share your treatment on CURE ID today! cure.ncats.io pmc.ncbi.nlm.nih.gov/article… #Sarcoma
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Your clinical experience can help others. Join discussions on the CURE ID Forum. #ClinicalResearch #CUREID -cure.ncats.io/resources
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This #SarcomaAwarenessMonth, we are highlighting the value of real-world treatment experiences. Check out the 53 #Osteosarcoma cases shared and see the power in numbers! Join us by sharing your treatments and exploring what others have tried. cure.ncats.io
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Every shared treatment experience helps build a clearer picture of what works for #rarecancer. Collaboration across patients, clinicians, and researchers moves discoveries forward. Add your experience to CURE ID and be part of the effort. cure.ncats.io #Sarcoma #CUREID
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Great to see @FDAOncology supporting the use of CURE ID during #SarcomaAwarenessMonth! Share your treatment experiences and explore what others have tried at cure.ncats.io. Help turn treatment insights into action for rare cancers!
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+1 vote for Heather Stone @IDEpiHeather ✨ If you like repurposed drugs, open innovation to crowdsource solutions, or CURE ID (free platform by @ncats_nih_gov NIH + FDA for crowdsourcing frontline medical treatments that work), vote for the CURE ID creator — the amazing Heather Stone 💪🇺🇸🗽
CURE ID@id_cureJul 15
We are excited to see the head of #CUREID recognized on behalf of the whole team for their efforts to advance #drugrepurposing and patient health! Please vote for @IDEpiHeather for the Health Advocate Flywheel Award below by July 17th.
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We are excited to see the head of #CUREID recognized on behalf of the whole team for their efforts to advance #drugrepurposing and patient health! Please vote for @IDEpiHeather for the Health Advocate Flywheel Award below by July 17th.
Heather Stone@IDEpiHeatherJul 15
I'm honored to be a finalist for the GovCIO Media & Research Health IT Summit Health Advocate Flywheel Award for my work with @US_FDA and @ncats_nih_gov on CURE ID (cure.ncats.io) @id_cure. I'd greatly appreciate you taking a moment to vote: govc.io/qwTrdL
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