European Reference Networks and Healthcare Director @eurordis. Views expressed are my own |
Joined November 2009
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The Curious Side Effects of Medical Transparency
newyorker.com/news/essay/the…
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Casualidad o patrón?
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A este cartel, colgado en las paredes del Hospital Ramon y Cajal, le falta una columna "Decálogo para la dirección del hospital". Sin una buena gestión, avanzamos hacia la deshumanizacion de la sanidad a marchas forzadas.@Sermas, @sanidadgob, @SanidadEnLucha @RyCEnLucha
This video by @rarediseasesint is brilliant 💜💜💜 rarediseasesinternational.or…
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Check out @eurordis new website. Hopefully now it'll be easier to navigate and find the information!
eurordis.org/
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A ver si tomamos nota @SaludMadrid
Just phoned a GP, highly recommended, because my old one retired during Covid.
Was told that first visit was $1800; annual physicals were $900; follow-ups from those were $450. No insurance accepted.
I politely passed. But my inner scream could shatter an asteroid.
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Los médicos de familia huyen de los centros de salud - "Si una médica de familia te diagnosticó una hipertensión y una enfermera la controla, evitamos un infarto pero eso no queda glamuroso” eldiario.es/1_86c7d6?utm_cam…
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Feliz año a todo el personal de tierra de @Iberia que está hoy en el área de facturación de Barajas! Y gracias por la paciencia infinita.
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"We can reform Facebook and Twitter while also reckoning with what they reveal about the nation’s mental health" theatlantic.com/ideas/archiv…
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James and Lindsay Sulzer spent their careers developing technologies to help people recover from disease and injury, @danengber writes. But in May 2020, the Sulzers' daughter had a freak accident that changed their work—and their lives—forever. theatlantic.com/magazine/arc…
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"Whilst everyone deserves an equal chance at life, life chances aren’t always equitable...can you help redress the balance?" A must-read post by @alliswat @eurordis blog.congenica.com/redressin…
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En Madrid @gmarsol1
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The myth of ‘good’ and ‘bad’ Covid vaccines: Why false perceptions overlook facts, and... statnews.com/2021/02/17/the-… via @statnews
We must guarantee equitable rollout of #COVID19 vaccines to all populations based on need. Read our CSO Call to Action signed by 200+ organisations across the world calling for urgent action on this agenda! tinyurl.com/10aybja8 #VaccinesForAll @eurordis
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This group of patient reps is doing an amazing work connect with patients and families. @eurordis #ERNs, #EnfermedadesRaras #RareDisease 💜
Would you like to be regularly informed re the work of @EpiCARE_ERN or be consulted on unmet patient needs/be willing to be a patient representative for your rare #epilepsy? 🤔If the answer is YES, then sign up to join our Patient Community!⬇️
#raredisease
eurordis.org/content/epags
