Dedicated to raising awareness, being a voice & supporting research efforts taking place at the University of Minnesota by Dr. Jakub Tolar.
Joined October 2012
- Tweets1.3K
- Following64
- Followers264
- Likes10
IRefuseEB retweeted
I believe that 2015 is definitely the YEAR!!! #healEB fb.me/3OvKdklt9
IRefuseEB retweeted
Watch @IanZiering tonight #ApprenticeNBC as he fights for sweet Elisa and all of those with EB! Go #TeamIan #healEB
IRefuseEB retweeted
Looking forward to new therapies for EB, as @Scioderm presents at the 33rd annual JP Morgan Healthcare Conference
marketwatch.com/story/sciode…
IRefuseEB retweeted
We are so happy. University of Minnesota Children's Hospital ranks among nation's best. blogs.umnhealth.org/6-10-201… via @umphealth
IRefuseEB retweeted
Tomorrow... @donnyosmond, Ambush w/ @jillmartin & @louislicari, Ask @loumanfredini, Moms Matter w/ Jamie Silver @JGSF2 & Kadee Troops!
IRefuseEB retweeted
Another Rare Disease Day event.
What will you be doing to celebrate Rare Disease Day 2014? Share with us in the... fb.me/2NxSptBWp
IRefuseEB retweeted
Read our recent blog post about Shea loveforshea.com/1/post/2014/… #EBawareness #epidermolysisBullosa
IRefuseEB retweeted
Just 3 weeks until I head up Kilimanjaro to raise money for people with epidermolysis bullosa, including my nephew. tinyurl.com/k9gss8n
IRefuseEB retweeted
YEAH!! Made the front page of the "Star Tribune". Now that is some GREAT exposure! fb.me/2GONp6TTU
IRefuseEB retweeted
So... IT'S OFFICIAL!! Our website is up & running! Go check it out! You will find all the information you need! We... fb.me/Xsohanid
IRefuseEB retweeted
Community Sound Bites - Our EB Resource Facebook community can be a great resource for sharing suggestions and off... ow.ly/2yVTEo
IRefuseEB retweeted
U of M is a pioneer in gene editing technique to help those with EB startribune.com/video/218158… #cureeb #irefuseeb #ebawareness
IRefuseEB retweeted
Westland restaurant to pay $50,000 for denying service to family due to skin condition. freep.com/article/20130508/N… #ebawareness
IRefuseEB retweeted
Yay!!! They have arrived!!! Now to get the orders shipped!!! #irefuseeb #cureeb #ebawareness instagram.com/p/YdkPNqyr5B/
IRefuseEB retweeted
Jamie is a true inspiration to the EB community...it is an honor to have had the opportunity to meet her and see... fb.me/1hhmojZ9o
IRefuseEB retweeted
As we come together today as a community to bring awareness to EB and other rare diseases, please take a moment... fb.me/1ynV6fiIu