CNS in ENT skull base and rare disease Cambridge, UK | Interested in health, genomics, accessibility and communication skills | plus theme parks + escape rms

U.K.
Joined March 2009
Have you been watching The Face Doctors series on Really TV? Tonight is the final episode featuring our brilliant staff as they help patients get their faces back. What's been your favourite moment of the series? #CUHProud
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🐾🐾👏 #endnf2
"When I lost my hearing, my life crumbled around me. Being partnered with Arthur has made me feel human again" In 2020, Jamie fully lost his hearing due to a genetic condition called NF2, leaving him feeling anxious, afraid and alone.
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Updated genetic and epidemiological study of Schwannomatosis & NF2 related Schwannomatosis 👇🏼 #NF2 #genomics #schwannomatosis @NWGLH jmg.bmj.com/content/early/20…
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Juliette Buttimore retweeted
Understanding NF2 Podcast ft @nf2biosolution1 PhD student Grace Gregory & Prof. Gareth Evans. Bradley Findlay, Biomedical Sciences student, discusses #NF2 #Schwannomatosis & treatments. #ShineALightOnNF & support those living with NF2: youtu.be/57BYRMiirIs?si=vhAl… #WorldNF2Awareness
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Juliette Buttimore retweeted
What's your story? #NF2 & #Schwannomatosis is just one part of all the things that makes you unique. Share YOUR story for #WorldNFAwareness month and help us raise #NFAwareness & highlight the impact of #NF2: nervetumours.org.uk/get-invo… #MakeNFVisible #ShineALightOnNF
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Juliette Buttimore retweeted
Guidance on sudden hearing loss in #NF2-related #Schwannomatosis (#NF2-SWN). Learn about symptoms, diagnosis & treatment from Juliette Buttimore, Nurse Practitioner NF2 service, Addenbrooke's, Cambridge: nervetumours.org.uk/news/gui… #WorldNF2Awareness #ShineALightOnNF #MakeNFVisible
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Avastin Side effects - read the blog here in collaboration with our friends over at @NervetumoursUK and @j_buttimore NF2 specialist nurse at Addenbrookes #ENDNF2
Jo Ward, Chief Operations Officer at @nf2biosolution1, has written an update on side effects from her son Oscar's Avastin treatment journey. Both Jo and her youngest son Oscar have #NF2. Read more: nervetumours.org.uk/news/ava… #WorldNF2Awareness #ShineALightOnNF #MakeNFVisible
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Tuesday on the blog & our special Side Effects Thankyou everyone who helped with this issue - those who shared their experiences, @NervetumoursUK for all their help and @j_buttimore (NF2 services @ Addenbrookes) Please repost. nf2biosolutions.org/2023/12/… #ENDNF2 #Avastin
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Juliette Buttimore retweeted
A new AI system, Sturgeon, is redefining brain tumor surgeries. By swiftly sequencing during the operation, it provides precise molecular subclassification in under 90 minutes. A significant advance for patient care! nature.com/articles/s41586-0…
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⬇️ sign up here to hear about the INTUITT-NF2 platform clinical trial first results For those of us on UK time, there will be a recording available (with captioning) afterwards #endNF2 #nf2 #nf2swn
Mark your calendar for this exciting webinar about treatment options for NF2-related schwannomatosis and all other forms of schwannomatosis! ctf.org/nf2swn #endnf #nf2 #swn
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⬇️ watch Episode 3 on @channel5_tv to see our skilled ENT and neuro skull base colleagues at @UHBSkullBase operate to remove a vestibular schwannoma @BANAUK @JAMIE_CARS0N @mamawadey #acousticneuroma
📺 Brand New - Surgeons: A Matter of Life or Death, continues tonight at 9pm
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Artificial Intelligence developed by the NHS at #Addenbrookes Hospital in Cambridge is reducing the amount of time cancer patients wait for radiotherapy, using @MSFTResearch open-source software. Read more here: orlo.uk/Iwnzx #NHS75 #AI #Osairis @Cambridge_Uni
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Improvements coming in iOS17 for cognitive, vision, hearing, and mobility accessibility ⬇️
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#FACT: NF2-related schwannomatosis, or NF2, is the new term for the condition previously called neurofibromatosis type 2. More facts at ctf.org/facts. More about NF Awareness Month at makenfvisible.org. #endnf #endnf2 #nf2
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👇some great speakers taking part in the upcoming BANA support meetings
Many Acoustic Neuroma-related topics are being discussed in our January support group meetings. Please get in touch with us here at BANA to register your attendance - Email [email protected] or Telephone 01246 550011
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Introducing Feather AI. The premier audio-to-text summarizer. It's as easy as 1-2-3: 1. Drop in a link to a podcast or YouTube video 2. Enter your email 3. Receive a polished summary in your inbox in 5-10 min Built in 1 week during @bentossell's hackathon Here's the story 🧵
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And with 2022/23 data, starting Band 5 salary: £27,055 or £13.86 p/h So you can buy 46 Freddos at 30p each, a rise of 3 Freddos in 5 years but overall 35 Freddos worse off. #FairPayforNursing
For future reference this is how I want all maths explained to me.
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Fantastic day working with @BANAUK at the annual #acousticneuroma #vestibularschwannoma conference. Proud to represent specialist nurses alongside @mamawadey and Kiran from @UHBSkullBase to listen to patient voices and patient experience 👂⚖️🧠
Replying to @BANAUK
@BANAUK board of trustees proud to support our charity and annual conference. And 3 of the U.Ks #CNS specialising in #acousticneuroma #vestibularschwannoma @j_buttimore @mamawadey and @UHBNeurosurgery’s Kiran. We are all passionate in improving care for AN/VS. 🧠🦻
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Juliette Buttimore retweeted
We’re still looking for people with an #ABI to take part in this #research study looking at #adjustment and #identity in conjunction with @nhsfife @NCAlliance_NHS @NCAresearchNHS @UoE_Psychology @davidgillander @HeadwayUK Please share! 🧠
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