Jackson (@lifewithALS) header
Jackson (@lifewithALS) profile picture

Mum of 2 wonderful boys. 3 cats. Diagnosed August 2022 with ALS determined to fight and stay strong until a cure is found. Forever hopeful 🧡💙🧡💙

East Sussex
Joined November 2010
Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)Photo by Jackson (@lifewithALS)
Arise, Sir Kevin 🌹 Sir Kevin Sinfield received his knighthood at Windsor Castle today for his incredible MND fundraising efforts. So far, he has raised over £13 million for various MND charities in memory of his former @leedsrhinos teammate and close friend Rob Burrow. The England Men assistant coach recently completed his last #7in7 challenge, running seven ultramarathons in seven days and ultimately delivering the match ball to the @SuperLeague Grand Final at Old Trafford on Saturday. This effort alone raised over £1 million.
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Happy Birthday, to our Co-Founder, Stephen! 🎉 We’re incredibly proud of everything Stephen has achieved and the legacy he continues to build. From all of us at the Foundation - Happy Birthday, to the boss! #DarbyRimmerMNDFoundation #motorneuronedisease #AttackMND
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Arise, Sir Kevin 👏 Sir Kevin Sinfield, who has raised more than £11m for charity, received a knighthood for his services to the MND community, as well as for services to league and union rugby.
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So sad to hear #BrookeEby lost her battle with brutal ALS. To young and so unfair RIP x
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Jackson retweeted
It's global MND awareness day. Please take a look at my website for some hard hitting poems from a patients pov. I recommend watching Brutal and Trapped as a start. Please share. lifewithmnd.com
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Jackson retweeted
It's global MND awareness day. Please take a look at my website for some hard hitting poems from a patients pov. I recommend watching Brutal and Trapped as a start. Please share. lifewithmnd.com #MND #ALS #GLOBALMNDAWARENESSDAY
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It's global MND awareness day. Please take a look at my website for some hard hitting poems from a patients pov. I recommend watching Brutal and Trapped as a start. Please share. lifewithmnd.com #MND #ALS #GLOBALMNDAWARENESSDAY
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It's global MND awareness day. Please take a look at my website for some hard hitting poems from a patients pov. I recommend watching Brutal and Trapped as a start. Please share. lifewithmnd.com
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📺 WATCH @BBCBreakfast at 08:30 as KEVIN SINFIELD sets off from #Swansea on DAY 3 of his SIXTH gruelling #MND challenge, #7in7Together, in his relentless effort to raise funds and awareness for this hideous disease. IT all started when he 'went for a run for a mate'... FLY free, Rob Burrow 😢 To donate: donate.giveasyoulive.com/fun…
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New poem on my website about my recent stay in hospital with Aspiration chest infection. #MND please check it out. lifewithmnd.com Please share to raise awareness from a patients perspective
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The REASON so few (circa 5,000) are living with motor neuron disease #MND, is because so many are DYING; the MAJORITY due to RESPIRATORY FAILURE! HOW does it make sense NOT to provide a COVID BOOSTER for our most CLINICALLY VULNERABLE?! PLEASE 🙏 SIGN THE PETITION... petition.parliament.uk/petit…
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I wanted to share a fabulously raw insight into living with MND by poetry. Jaki is hoping to raise awareness of this challenging condition and so would be very grateful if you could kindly share with others. lifewithmnd.com/
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"I'M SORRY..." ...is all the Consultant can say when delivering a devastating diagnosis of motor neuron disease. There is NO effective treatment, NO cure and NO chance of remission... #MND #MoreNeedsDoing!
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Happy 21st birthday to Jack Sinfield from everyone at the Rhinos
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Jackson retweeted
Seeing Rob Burrows clip then Molly Mae winning. Are you joking 🙃 #NTAs
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Jackson retweeted
Well that just sums up the world we now live in....Molly Mae winning the NTA up against Rob Burrow...Freddie Flintoff and Amy Dowden...#NTAs #ntaawards
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Rob Burrow and Amy Dowden losing out to Molly Mae? There are fucking simpletons voting #NTAs
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Not her fault as it's an award voted for by the public but... what world are we living in where people who offer absolutely nothing of substance to the world are awarded and celebrated over the likes of Rob Burrows, and Amy Dowden #NTAs
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rob burrows and amy dowden documentaries up for an nta and molly mae wins… sorry no #NTAs
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Jackson retweeted
Molly Mae winning an NTA over Rob Burrow really reminds me how much I hate society today. And the mid-speech dedication felt false and completely inappropriate. His family’s face said it all #NTAs
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